Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wonderful Family Doctor Experience


zarfkitty

Recommended Posts

zarfkitty Explorer

I just love, love, love my family doctor. I saw her this morning and made her a packet of my GI history, symptoms, tests and treatments. Also my non-GI symptoms and treatments.

I gave several reasons for not wanting the traditional celiac workup, which she accepted as solid.

Then I explained my enterolab results and why I think Dr. Fine is onto something. I was sure to keep my statements about Dr. Fine's work very objective, that the results were a good piece of information, not an accepted medical test.

I gave her documentation of my gluten-free diet and the positive response.

She told me she supported me 100%, she marked my chart gluten-intolerant, and she even asked me for Dr. Fine's website so that she could learn more about Enterolab. She said she believes in a wide spectrum of gluten sensitivity and that stool testing would be a very good tool to have when mainstream testing isn't enough.

At that point I literally jumped off the table and hugged her. She said I "enlightened her" today and that I was an easy patient because I did all her work for her.

Wheeeeeeeeeee! :D :D :D

p.s. I've got the packet saved on my computer. Email me if you'd like to use it as a template for discussing enterolab results with your doc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sandi Explorer
I just love, love, love my family doctor. I saw her this morning and made her a packet of my GI history, symptoms, tests and treatments. Also my non-GI symptoms and treatments.

I gave several reasons for not wanting the traditional celiac workup, which she accepted as solid.

Then I explained my enterolab results and why I think Dr. Fine is onto something. I was sure to keep my statements about Dr. Fine's work very objective, that the results were a good piece of information, not an accepted medical test.

I gave her documentation of my gluten-free diet and the positive response.

She told me she supported me 100%, she marked my chart gluten-intolerant, and she even asked me for Dr. Fine's website so that she could learn more about Enterolab. She said she believes in a wide spectrum of gluten sensitivity and that stool testing would be a very good tool to have when mainstream testing isn't enough.

At that point I literally jumped off the table and hugged her. She said I "enlightened her" today and that I was an easy patient because I did all her work for her.

Wheeeeeeeeeee! :D :D :D

p.s. I've got the packet saved on my computer. Email me if you'd like to use it as a template for discussing enterolab results with your doc.

can you please send me a copy I get my results back I want to go talk to my dr

sandi

thank you

zarfkitty Explorer

Sandi I sent you an email. I need your real email address so I can send you the attachment. The packet is really too long to post here as text. :)

Sandi Explorer
Sandi I sent you an email. I need your real email address so I can send you the attachment. The packet is really too long to post here as text. :)

Thank you again

it will be very helpful

sandi

celiacgirls Apprentice

Will you tell me your doctor's name? I am also in Austin and might consider switching doctors. I like my doctor but I don't think she believes in my gluten intolerance.

zarfkitty Explorer
Will you tell me your doctor's name? I am also in Austin and might consider switching doctors. I like my doctor but I don't think she believes in my gluten intolerance.

Your email address is hidden. Email me from my profile. I'm happy to share. :)

little d Enthusiast

zarfkitty

Good for you, I just went to my family doctor for my posible DH on friday, he I guess believes me he had all my results from my GI doc and when I told him that I have been having D along with the DH he said ok welll maybe there is a connection here and did not say ok ya you are a Celiac or anything just said if the diet helps well then continue on with the diet. Well ok thats fine but he never told me if it could be DH or not, but I did get a blood work up for the physical, will any blood work be abnormal if in the middle of a possible DH outbreak and D

donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    2. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

    5. - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,659
    • Most Online (within 30 mins)
      7,748

    Dr. Gunn
    Newest Member
    Dr. Gunn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.