Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Importance Of Tests


foxdog

Recommended Posts

foxdog Newbie

My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lob6796 Contributor
My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?

Unless you need the test to give yourself piece of mind, I wouldn't even bother. You have the evidence you need to keep being gluten free, so just stick with it. In the future you can tell doctors that you have either celiac or a gluten intolerance proven by an elimination diet. That should be good enough for their purposes. To be tested for celiac you would have to go back on gluten for quite some time, given that you have been gluten free for so long. They could order you to be on gluten for up to 6 months before they would feel the tests to be accurate. I personally wouldn't want to go back to feeling so crummy and lose all that I had worked towards.

mftnchn Explorer

There is no benefit for you at this point, because you will have to go back to eating gluten, perhaps for months, for the tests to be positive.

Enterolab, which does not diagnose celiac, only gluten sensitivity may work for up to a year after you stop eating gluten. But at this point it is really hard to say if anything will show up for you.

I think you do what you know is right for yourself.

My suggestion: if you have first degree relatives with symptoms, encourage them to do testing before going gluten free. With a confirmed celiac in the family, if others have symptoms, doctors may take this more seriously. I.E. other may benefit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,122
    • Most Online (within 30 mins)
      7,748

    Sarer
    Newest Member
    Sarer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.