Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Importance Of Tests


foxdog

Recommended Posts

foxdog Newbie

My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lob6796 Contributor
My naturopathic doctor discovered my gluten allergy through a four week allergy elimination diet. I didn't eat corn, soy, wheat, dairy, eggs, for four weeks. When I added these back in to my diet, I had a very bad reaction to wheat.

I've been strictly gluten-free for one year, and somewhat gluten-free for the two years prior to that.

In that time my vision problems, fatigue, endometriosis like problems, ovarian cysts, migranes, joint pain, has gone away, and I've lost a lot of weight. In short, I feel great, better than I ever have.

Should I even bother with the expensive diagnostic tests?

What are the benefits to having a test?

Unless you need the test to give yourself piece of mind, I wouldn't even bother. You have the evidence you need to keep being gluten free, so just stick with it. In the future you can tell doctors that you have either celiac or a gluten intolerance proven by an elimination diet. That should be good enough for their purposes. To be tested for celiac you would have to go back on gluten for quite some time, given that you have been gluten free for so long. They could order you to be on gluten for up to 6 months before they would feel the tests to be accurate. I personally wouldn't want to go back to feeling so crummy and lose all that I had worked towards.

mftnchn Explorer

There is no benefit for you at this point, because you will have to go back to eating gluten, perhaps for months, for the tests to be positive.

Enterolab, which does not diagnose celiac, only gluten sensitivity may work for up to a year after you stop eating gluten. But at this point it is really hard to say if anything will show up for you.

I think you do what you know is right for yourself.

My suggestion: if you have first degree relatives with symptoms, encourage them to do testing before going gluten free. With a confirmed celiac in the family, if others have symptoms, doctors may take this more seriously. I.E. other may benefit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,831
    • Most Online (within 30 mins)
      7,748

    SEOHAMI
    Newest Member
    SEOHAMI
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.