Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please!

diapason05

Recommended Posts

diapason05 Rookie
diapason05
Posted

Alright. Here we go. I'm going to give a brief overview of me.. I've been hanging out here for a few weeks and I want to finally post something. Please read. Many of you are very knowledgable about this subject and all of its possible complications.

Me:

Age 3- Chronic Sinus/Ear Infections- Tonsils OUT

Age5- Appendix BURST

All Ages- very bad allergies (runny nose/sneezing kind.. anemia.. lots of colds..)

Age 15- Hodgkin's disease- 4 months of chemo and in remission

AGe 21- Did allergy test FINALLy- tested positive for all kinds of wild grasses, dust mites, wheat and soy. I do realize a wheat allergy reaction does not mean I'm intolerant of the gluten in wheat tho.

Age 22- period stopped/shingles/grew white hair on my head!! DIAGNOSED MYSELF WITH HYPOTHYROIDISM. did all the research and my oncologist ran tests for me and confirmed that I have auto-immune HASHIMOTO'S disease. Started 88 mcgs levothroid. period came back, hair grew under arms, boobs grew! whoa, amazing what that little thyroid hormone is capable of.

Mom has rheumatoid arthritis and symptoms of what I think are thyroid problems. She is eastern european.

Dad is Irish/Swedish- HAS hypothyroidism. His sister/ My aunt has CELIAC. evrybody has melanoma and my grandma and her sister had breast cancer and died of it ;(

I'm currently a 22/f.

5/13 I started being gluten-free. I immediately felt better and lost weight. I totally screwed up about a week ago and ate SUNCHIPS- definitely had some sort of um bowel reaction. I ate quite a few of them and gained about 3 lbs overnight. (this is common with me. I always gain an obscene amount of weight after eating these sorts of things.. bloated from gluten?)

I have been drinking half n half every day in my coffee and have not noticed any problems.. I've had yogurt and fat free lattes and while the coffee may seem to hurry along any bowel stuff that is going to happen..

Today I had a lot of Cocoa pebbles because I was sick of eating what I've been eating. I had these with a lot of 2% milk. This was a BAD IDEA. My guts rumbling now and I believed that these things were gluten-free.

Is it all the milk maybe????

Either that or I switched the type of food going into my body too fast.. It was used to a lot of protein, I guess.. and veggies.

I know most of you might say I ought to get tested first, but i dont have health care at the moment and If you noticed.. No one diagnosed my thyroid disease- I was given prozac and birth control pills to manage the symtoms. I had to do my own research to fix it. I figure that if a gluten-free diet (and milk free?) can help me, I'm going to do it. I am sick of being so sick!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I am not one who is going to tell you of the need to test first, there are too many false negatives. Your body and it's reaction to gluten is really the deciding factor. I replied on your other post also, your plan is solid for now. I do want to note on the issue of the cereal, the one you mentioned has a very, very high chance of CC. Do not judge whether it was milk or gluten by that cereal. EnviroKids makes a chocolate rice cereal that is also very good but is less likely to have CC issues.

The gluten free diet is a very healthy diet for the most part and if you start out like your other post plans for a couple months when you do add processed food back in you will have an easier time telling if you are reacting to it.

lmvrbaby Newbie
lmvrbaby
Posted

I agree with Ravenwoodglass. The thing that I was told was to stop milk cause it damages the villa in the intestines. I went months after gluten free diet and then had problems with milk. I went to rice or soy milk and haven't had those kind of problems. You can try it, not to much different than regular milk. Kind of like trying different breads, you try different kinds til you find the one you like best. Kepp up and maybe when you have health insurance you may have testing done. Just keep trying and I do hope you get better soon. I know how it is being sick and then you r fine for awhile then there is a mistake on a food and then stomach pains.

loraleena Contributor
loraleena
Posted

I may be wrong but I thought Coco pebbles weren't gluten free anymore. Also, you should stay a way from junk food while you are healing. You should stick to whole foods.

diapason05 Rookie
diapason05
Posted
  • Author
I am not one who is going to tell you of the need to test first, there are too many false negatives. Your body and it's reaction to gluten is really the deciding factor. I replied on your other post also, your plan is solid for now. I do want to note on the issue of the cereal, the one you mentioned has a very, very high chance of CC. Do not judge whether it was milk or gluten by that cereal. EnviroKids makes a chocolate rice cereal that is also very good but is less likely to have CC issues.

The gluten free diet is a very healthy diet for the most part and if you start out like your other post plans for a couple months when you do add processed food back in you will have an easier time telling if you are reacting to it.

Alright.. I am going to stick to the simplest diet I can. It's an inconvenience for sure.. (Like when i am flying to Hawaii next week.. 17 hours of travel.. what do I eat???!)

But I am so bloated and in pain right now I think it's definitely worth any inconvenience.

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

As for the trip to Hawaii: pack your food for the plane. They have really cute soft coolers that look like tote bags now. Get a letter from the dr if you need to. Pack, sandwiches, fruit, scones, chips and dip, pretzles, all gluten-free of course. I am not found of sandwiches any more, so I make a sliced meat, salsa, and veggies mix. It fills me up and tastes great, plus it wont spoil easily like mayo.

You can buy water, chips, and candy bars at the airport. I wuold not eat much candy though.

Make a gluten-free list of foods to bring with you so you have an easier time on your trip.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.