Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lightheadedness & Weakness


New Mama

Recommended Posts

New Mama Rookie

I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



New Mama Rookie

Bumping...anyone?

Byte Me Apprentice

Hi!

It's possible the colander could still be causing a problem. I was very stubborn at first, not believing some things could hold onto gluten forever, and had occasional problems until I finally gave in and replaced everything as suggested.

Another possibility is you might have a virus. There is a super nasty one going around, all over the country it seems... my kids and I had it for almost a week. There were several days of lots of dizziness/light-headedness and weakness and I didn't even realize it was a virus, until all of us got the same symptoms and then the icky bathroom part of it kicked in. <_<

SunnyDyRain Enthusiast

I'm not well versed in Diabetes, but I think low blood sugar might be a option. If your body is being drained by BF at night, by the morning you might really need some sugar. That would explain why you feel better after you eat. Do you eat while/after BF?

I'd look into that and perahaps be tested for diabetes.

that's just my opinion, and i'm not real familiar with diabetes or BF.

Oh, and yeah..get a new colander.. even get a cheapy until you find one you like. I love the new collapsible ones they have now made out of silicone!

  • 2 weeks later...
Guest Doll
I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!

This sounds like hypoglycemia. Are you eating enough? You'd be amazed at the amount of calories needed for breastfeeding. :o

Try to eat small and frequent meals, avoid simple carbohydrates (which will spike your blood sugar and lead to a quick drop), add some fibre to your diet (brown rice, gluten free oats if you feel safe eating them), and make sure to work some protein in at every meal. Also eat as soon as you get up first thing in the morning.

Make sure you are not dehydrated. Have you ever been told your blood pressure was low?

If things do not improve or your symptoms get worse, please see your doctor. It is a mistake that a lot of people make in trying to self-diagnose Celiac/GI. I'm not saying you should go back on gluten (especially not in the breastfeeding case), but rather that if GI is *not* your problem, you are not treating what the real problem is and your symptoms will not go away. This is why people NEED to see their doctors before just starting a gluten-free diet, in case it's *not* Celiac.

I'm all for the gluten-free diet, but if you don't have Celiac/GI, it not going to resolve your problems.

jerseyangel Proficient

I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

New Mama Rookie
I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

I did replace the colander. :)

I recently had some bloodwork done to check for anemia and my thyroid, among other things. It wasn't a "fasting" test, though. Is that more accurate?

I'm actually currently working on the hypothesis that it's yeast overgrowth and am doing Bee's Candida Diet. If that doesn't seem to be working I'll go back to my doctor (actually, I'll see a new one, since I was not happy with my old one).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

New Mama Rookie
With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

No, I haven't. But I have been feeling this way for a long time, in winter (in Wisconsin) too.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748

    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.