Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lightheadedness & Weakness


New Mama

Recommended Posts

New Mama Rookie

I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



New Mama Rookie

Bumping...anyone?

Byte Me Apprentice

Hi!

It's possible the colander could still be causing a problem. I was very stubborn at first, not believing some things could hold onto gluten forever, and had occasional problems until I finally gave in and replaced everything as suggested.

Another possibility is you might have a virus. There is a super nasty one going around, all over the country it seems... my kids and I had it for almost a week. There were several days of lots of dizziness/light-headedness and weakness and I didn't even realize it was a virus, until all of us got the same symptoms and then the icky bathroom part of it kicked in. <_<

SunnyDyRain Enthusiast

I'm not well versed in Diabetes, but I think low blood sugar might be a option. If your body is being drained by BF at night, by the morning you might really need some sugar. That would explain why you feel better after you eat. Do you eat while/after BF?

I'd look into that and perahaps be tested for diabetes.

that's just my opinion, and i'm not real familiar with diabetes or BF.

Oh, and yeah..get a new colander.. even get a cheapy until you find one you like. I love the new collapsible ones they have now made out of silicone!

  • 2 weeks later...
Guest Doll
I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!

This sounds like hypoglycemia. Are you eating enough? You'd be amazed at the amount of calories needed for breastfeeding. :o

Try to eat small and frequent meals, avoid simple carbohydrates (which will spike your blood sugar and lead to a quick drop), add some fibre to your diet (brown rice, gluten free oats if you feel safe eating them), and make sure to work some protein in at every meal. Also eat as soon as you get up first thing in the morning.

Make sure you are not dehydrated. Have you ever been told your blood pressure was low?

If things do not improve or your symptoms get worse, please see your doctor. It is a mistake that a lot of people make in trying to self-diagnose Celiac/GI. I'm not saying you should go back on gluten (especially not in the breastfeeding case), but rather that if GI is *not* your problem, you are not treating what the real problem is and your symptoms will not go away. This is why people NEED to see their doctors before just starting a gluten-free diet, in case it's *not* Celiac.

I'm all for the gluten-free diet, but if you don't have Celiac/GI, it not going to resolve your problems.

jerseyangel Proficient

I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

New Mama Rookie
I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

I did replace the colander. :)

I recently had some bloodwork done to check for anemia and my thyroid, among other things. It wasn't a "fasting" test, though. Is that more accurate?

I'm actually currently working on the hypothesis that it's yeast overgrowth and am doing Bee's Candida Diet. If that doesn't seem to be working I'll go back to my doctor (actually, I'll see a new one, since I was not happy with my old one).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

New Mama Rookie
With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

No, I haven't. But I have been feeling this way for a long time, in winter (in Wisconsin) too.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bogger replied to Bogger's topic in Related Issues & Disorders
      2

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      32

      Severe severe mouth pain

    3. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      22

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      32

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,082
    • Most Online (within 30 mins)
      7,748

    Lisaskittiekat
    Newest Member
    Lisaskittiekat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Bogger
      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my doctor recommends it first over Reclast. Reclast is introduced into a vein thus bypassing the stomach which avoids all those stomach issues. But, once it’s in me, it’s there for a year or so. Any complications can’t be undone. With Reclast, I’m concerned about not being able to treat dental issues, several weeks of bone pain and the chance, although rare, of kidney damage. Plus all those other dozens of common side effects. It’s a very effective drug but looks pretty complicated to deal with. Hopefully I’m not just being a big chicken. In 2018 I fell and broke my ankle in two places. It took three screws to put it back together which is normal for that surgery. There was no mention of any difficulty or signs of bone loss. Thanks to my dog, I fell about a month ago onto a concrete floor with thin carpet. I landed on my left hip, then my spine, one vertebrae at a time, then clunked my head on the door frame. Twisted my wrist too. It was all in slow motion waiting to feel a crack that didn’t happen. Went to the ER tho. Amazingly, I didn’t even see any bruises. Thanks again for that link. I need to read through it some more. My doctor’s appt is next week when I’ll make the big decision.   
    • trents
      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary. 
    • Caligirl57
    • Ginger38
      Sorry I didn’t get a notification you posted. Thanks for this information! Im Still battling it and the itching that has now developed in my scalp and on my face is unbearable. My hair has broke off. I now have hazing on my cornea and I’m at like week 8 now I think. I came Down with Covid right before Christmas and now I have strep throat!! I think my immune system has quit!! How much longer-l-lysine is recommended?  Thanks I have been wondering if I need to increase my zinc and or vitamin d And / or add anything else 
    • knitty kitty
      Aaaackkk!!!  Stop with the Omeprazole!  It's not good, especially if taken for a long period of time!!!   Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes.   Omeprazole is a proton pump inhibitor that has been shown to cause continuing villi damage to the small intestines!        Factors associated with villus atrophy in    symptomatic coeliac disease patients on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/28220520/ Proton Pump inhibitors reduce digestive enzymes which results in poorly digested food.  If the food is not broken down by the digestive enzymes, then the nutrients cannot be released from the food and cannot be absorbed by the villi.  Damaged villi cannot absorb nutrients from food.  PPIs block Thiamine B1 transporters, so that thiamine cannot be absorbed.  PPIs reduce the production of the intrinsic factor required for Cobalamine B12 absorption.  The absorption of other vitamins and minerals are affected as well.    The Effects of Proton Pump Inhibitors in Acid Hypersecretion-Induced Vitamin B12 Deficiency: A Systematic Review (2022) https://pubmed.ncbi.nlm.nih.gov/36545170/ Proton Pump Inhibitors like Omeprazole should be used only on a short term basis, like two weeks.  Continued use can cause nutritional deficiencies because PPIs prevent the absorption of vitamins and minerals.      Profound Hypomagnesemia Due to Proton Pump Inhibitor Use-Associated Wernicke’s Encephalopathy: A Case Report on Excitotoxicity https://pmc.ncbi.nlm.nih.gov/articles/PMC12618944/    Proton pump inhibitors and risk of vitamin and mineral deficiency: evidence and clinical implications https://pmc.ncbi.nlm.nih.gov/articles/PMC4110863/ Vitamin and mineral deficiencies contribute to health problems like Non Alcoholic Fatty Liver Disease and Chronic Renal Failure and Osteoporosis.    Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/    The association between proton pump inhibitors and hyperparathyroidism: a potential mechanism for increased fracture-results of a large observational cohort study https://pubmed.ncbi.nlm.nih.gov/37530847/ Regular Proton-Pump Inhibitor Intake is Associated with Deterioration of Peripheral Bone Mineral Density, Microarchitecture, and Strength in Older Patients as Assessed by High-Resolution Peripheral Quantitative Computed Tomography (HR-pQCT) https://pmc.ncbi.nlm.nih.gov/articles/PMC12546302/ Vitamins and minerals are essential to our health and can prevent disease. Long term use of PPIs can cause kidney disease and liver disease!    Association between Proton Pump Inhibitor Use and Risk of Incident Chronic Kidney Disease: Systematic Review and Meta-Analysis https://pubmed.ncbi.nlm.nih.gov/39061988/    Proton pump inhibitors use and the risk of fatty liver disease: A nationwide cohort study https://pubmed.ncbi.nlm.nih.gov/32886822/  Thiamine deficiency unrelated to alcohol consumption presented with urinary retention and Wernicke's encephalopathy: A case report https://pmc.ncbi.nlm.nih.gov/articles/PMC10415583/ Essential nutrients are needed to repair and heal the body!    High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pubmed.ncbi.nlm.nih.gov/33608323/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ There are liquid forms of B complex vitamins that are available over-the-counter and by prescription.   I pray for ears to hear.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.