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JessieFree

Biopsy Before Blood Test?

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I had a biopsy that came back positive then my GI gave me the blood test to confirm. I'm still waiting for the results I would think he would do the blood work first. I have a lot of the symptoms: gas, bloating, irritability, leg cramps, tingling. What's more reliable? I would hate to think I'm going gluten-free for nothing.

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Guest jj2gether4eva
I had a biopsy that came back positive then my GI gave me the blood test to confirm. I'm still waiting for the results I would think he would do the blood work first. I have a lot of the symptoms: gas, bloating, irritability, leg cramps, tingling. What's more reliable? I would hate to think I'm going gluten-free for nothing.

The same thing happened to me. I don't understand why the doctor did the biopsy first. Maybe to rule out many things at one time and narrow it down. The blood test for celiac only tests specifically for celiac and not for something else like crohn's. That's the only reason that I can think of.

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If you have a positive biopsy, then you have the gold standard diagnosis for Celiac.

He probably wasn't sure what you had, did an endoscopy to look for various things, one of which was Celiac.

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I had a biopsy that came back positive then my GI gave me the blood test to confirm. I'm still waiting for the results I would think he would do the blood work first. I have a lot of the symptoms: gas, bloating, irritability, leg cramps, tingling. What's more reliable? I would hate to think I'm going gluten-free for nothing.

You can go ahead and go gluten free. If you had a biopsy that came back positive, you HAVE celiac disease. Why he would do blood tests afterwards is beyond me, especially because your blood tests can come back negative even if you have celiac. 3% of all celiac's are IgA deficient so it will come out negative instead of positive. The biopsy is usually the last thing they do because it tells them 100% (if it is positive) that you have celiac.


~Sorry for the million questions, I really want to learn as much as I can!~

04/07 - Diagnosed Fibromyalgia

05/07 -Diagnosed Celiac from test & symptoms - scheduled for biopsy

~Also intolerant to milk, soy & beef

Daughter - 2yo - tested negative 03/07 for Celiac

-allergic to milk and soy

-retesting Celiac soon due to symptoms~

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You can go ahead and go gluten free. If you had a biopsy that came back positive, you HAVE celiac disease. Why he would do blood tests afterwards is beyond me, especially because your blood tests can come back negative even if you have celiac. 3% of all celiac's are IgA deficient so it will come out negative instead of positive. The biopsy is usually the last thing they do because it tells them 100% (if it is positive) that you have celiac.

I'm still very new at this, in fact I don't even have my biopsy results back. But from what I've read, sometimes doctors do the blood test after the biopsy because if it is positive, then future blood tests can help determine whether the gluten free diet is working, or if the patient is unwittingly consuming hidden sources of gluten. It's obviously much less invasive than doing another endoscopy in the future.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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I'm still very new at this, in fact I don't even have my biopsy results back. But from what I've read, sometimes doctors do the blood test after the biopsy because if it is positive, then future blood tests can help determine whether the gluten free diet is working, or if the patient is unwittingly consuming hidden sources of gluten. It's obviously much less invasive than doing another endoscopy in the future.

She wanted to know which was more reliable and that her doctor was doing blood tests to "confirm" diagnosis. I was just telling her that blood tests are not needed to CONFIRM a diagnosis. A positive biopsy is a positive diagnosis, end of story. He *should* have done blood tests first, not second. That way once the biopsy was done, she could immediately go gluten free instead of having to wait possibly weeks after the biopsy. If blood tests are done first, you can get the results of those back while waiting for your biopsy appt since that often takes weeks to get in. Yes, in the future, blood tests can tell the doctor if your body is still reacting to gluten (if the diet is working effectively or not). She had already had the blood drawn for the blood test, so it is fine for her to go gluten free before hearing the results of the blood test. That isn't going to effect anything other than her feeling better.


~Sorry for the million questions, I really want to learn as much as I can!~

04/07 - Diagnosed Fibromyalgia

05/07 -Diagnosed Celiac from test & symptoms - scheduled for biopsy

~Also intolerant to milk, soy & beef

Daughter - 2yo - tested negative 03/07 for Celiac

-allergic to milk and soy

-retesting Celiac soon due to symptoms~

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