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whattodo

Mri Scan Finding?

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Is there a link between Celiac Disease and Cerebrospinal fluid?

I am seeing a neurosurgeon tomorrow night but dont have a clue what the problem is. My doctor didnt have a clue neither, he just said that an area in the brain is larger than it should be. Perhaps inflamed. he refered to this area as the place where the brain fluid is found and then used to filter it around the brain.

My doctor admitted to me that he didnt know what this meant but it could simply be something i have had all my life. It still made me slightly worried so i asked him to refer me to a specialist to put my mind at rest. He said it could be a result of my numb face i get on and off.

I thought i would post it just to see if anyone has had the same thing when they had a mri scan.


Hope i dont become a nuisance but there are so many questions i need to ask

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Is there a link between Celiac Disease and Cerebrospinal fluid?

I am seeing a neurosurgeon tomorrow night but dont have a clue what the problem is. My doctor didnt have a clue neither, he just said that an area in the brain is larger than it should be. Perhaps inflamed. he refered to this area as the place where the brain fluid is found and then used to filter it around the brain.

My doctor admitted to me that he didnt know what this meant but it could simply be something i have had all my life. It still made me slightly worried so i asked him to refer me to a specialist to put my mind at rest. He said it could be a result of my numb face i get on and off.

I thought i would post it just to see if anyone has had the same thing when they had a mri scan.

Hi Jay,

I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms.

I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though.

I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS!

Chris

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Is there a link between Celiac Disease and Cerebrospinal fluid?

I am seeing a neurosurgeon tomorrow night but dont have a clue what the problem is. My doctor didnt have a clue neither, he just said that an area in the brain is larger than it should be. Perhaps inflamed. he refered to this area as the place where the brain fluid is found and then used to filter it around the brain.

My doctor admitted to me that he didnt know what this meant but it could simply be something i have had all my life. It still made me slightly worried so i asked him to refer me to a specialist to put my mind at rest. He said it could be a result of my numb face i get on and off.

I thought i would post it just to see if anyone has had the same thing when they had a mri scan.

Hi Jay,

I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms.

I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though.

I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS!

Chris

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Hi Jay,

I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms.

I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though.

I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS!

Chris

Hi chris, thanks for the response. When i had the MRI scan done it was done on the nhs. The neurosurgeon i am seeing tomorrow is being done private. I dont mind things happening to me below the neck, but things above the neck i do not want to mess with.

Why did the neurologist suggest that he test your cerebrospinal fluid, did he mention if it was celiac related or something else?

Do you get the numb face all the time or is it on and off or has it gone now you are gluten free (how long did it take). Mine used to be on and off but noticing it more now, its not really numb, its more like someone hit me in the face. Is this the same for you. Is the neurosurgeon the best person to ask for this strange sensation when i see him? I just want to ask him everything, for


Hope i dont become a nuisance but there are so many questions i need to ask

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Hi Jay...It sounds like you might be describing the arachnoid membrane. I don't know if there is a connection between celiac and something like that or not. I do know that my son has a posterior fossa subarachnoid cyst. It had to be shunted in 2001. I am a biopsy diagnosed celiac.

By the way, you are only 1 year older than him and have the same name.

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Hi Jay,

I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms.

I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though.

I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS!

Chris

I can not answer the first posters query but I do know that the reason he would want to test the spinal fluid would most likely be to look for the demylination that occurs with MS. The process throws cells into the spinal fluid. I had this done after my MRI showed UBO's to rule out MS. This is most likely what he is looking for in this instance. In my case although many signs pointed to MS all the nerve damage I have was due to celiac. Most has resolved, slowly, with being gluten-free.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Hi Jay!

I was just wondering how your meeting went with the Neurosurgeon? Would be good to know what he said as we both seem to be experiencing similar symptoms. I have my appointment with my new Gi tomorrow so hopefully will get somewhere now.

Keep us updated

Chris

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