Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help On 2 Problems


Jodele

Recommended Posts

Jodele Apprentice

We just moved to Albuquerque NM and I am starting to have problems with my youngest DD. We all have been gluten free since last august. We all were doing so well but now my youngest, Katie, and I are starting to have problems again not as bad as before. She is having loose stool and complains about a hurt tummy. I started her on a cf diet and do not see an improvement much. I know I have problems with dairy and stay away from most of it. Still love to have cheese on my pizza but only have it once a month. I know if you have a problem with it stay totally away from it. :( I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

Well the best thing to do is just go back to the basics of eating like meat, fruits and veggies and maybe potatoes and rice and see if that improves. I had to cut out gluten, casein and soy to feel better.

I use fleishmans butter unsalted with no problems, or u can use like olive oil if its on a baked potato.

paula

CarlaB Enthusiast

I like coconut oil. The non-hydrogenated kind has wonderful health benefits. It works well instead of butter even in recipes.

Paula has good advice. Basics -- chicken, veggies, fruit, brown rice ... then rotate in other foods watching for reaction.

OceanGirl78 Newbie
Well the best thing to do is just go back to the basics of eating like meat, fruits and veggies and maybe potatoes and rice and see if that improves. I had to cut out gluten, casein and soy to feel better.

I use fleishmans butter unsalted with no problems, or u can use like olive oil if its on a baked potato.

paula

Paula - how did you come to the conclusion of casein and soy? Did you just cut everything out and add back in or are there tests you had done? I'm starting to suspect that I may have another allergy....

Thanks!

Laurie

Nic Collaborator

Ian's gluten free fish sticks and chicken nuggets (and I believe their corn dogs) are not only gluten free but allergen free as well. So are the products made by enjoy life. They make cereals, cookies, and cereal bars. My son was diagnosed Celiac at 4 and we took him off gluten we saw some improvement. But then after a while he was sick again so we tried milk. Now he is much better and so far no signs of trouble. But my plan has been that if the symptoms come back, soy would be my next choice of foods to take away. So far I haven't had to try it.

Nicole

Jodele Apprentice
Well the best thing to do is just go back to the basics of eating like meat, fruits and veggies and maybe potatoes and rice and see if that improves. I had to cut out gluten, casein and soy to feel better.

I use fleishmans butter unsalted with no problems, or u can use like olive oil if its on a baked potato.

paula

she is getting bored with the veggies and fruits and meat and giving me I hungery all the time. I what to feed her and have her feel full. I am going on vacation this weekend and I will not be able to keep her on the very basic foods. We are going to see my husbands family. One which thinks she is katie's other mother (love her to death but I hate to say no all the time. she dont understand with all the food problems. she want so help so much but she thinks yogurt will help katie's tummy and it is dairy.) I am going out of my mind I was going to wait untill vacation but she is companing 10 times a day and I cant stand watching my kids hurt. I guess I will have to wait untill I get back to get her off of every thing that could be hurting her. all the rest of my kids are doing great. I know I can keep them away from gluten but with katie I dont know if I can get her to stay away form the restof the intorences. :( I can keep her off of dairy and gluten for now and do the rest of it when we get back

thanks

Jodele

taweavmo3 Enthusiast

I know it can be really hard to figure these things out! The way you described her stools sounds to me like gluten may be sneaking in somewhere. First, I would start going through everything, including hair and body products, and double check that it's gluten free. This is where I start when dd's stools are questionable, or if she gets really moody.

If that is most definately not it, cutting out casein is a good move. I had to do this for my dd too, and she got a bit better, but still not 100%. Soy was the next to be cut, which honestly hasn't restricted any more foods for her, I just had to change brands. The only thing that is pretty much out is any butter substitute, b/c they all use soy. We now use coconut or olive oil, and dd is fine with it.

Like the other poster said, Enjoy Life products are totally allergen free, and most of the products I've tried are delicious. My kids LOVE the snickerdoodle cookies (and so do I!). We also use Ian's from time to time, or I make my own chicken nuggets or fish sticks with crushed corn flakes or rice flour (with added seasoned salt). We also do alot of Namaste mixes...also allergen free, easy, and tasty.

I have four kids gluen/dairy/soy free. It can be done, and it can be done so that the kids do not feel like they are missing out on anything. There are still plenty of sweet things and treats that they can have. Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Jodele Apprentice
I know it can be really hard to figure these things out! The way you described her stools sounds to me like gluten may be sneaking in somewhere. First, I would start going through everything, including hair and body products, and double check that it's gluten free. This is where I start when dd's stools are questionable, or if she gets really moody.

If that is most definately not it, cutting out casein is a good move. I had to do this for my dd too, and she got a bit better, but still not 100%. Soy was the next to be cut, which honestly hasn't restricted any more foods for her, I just had to change brands. The only thing that is pretty much out is any butter substitute, b/c they all use soy. We now use coconut or olive oil, and dd is fine with it.

Like the other poster said, Enjoy Life products are totally allergen free, and most of the products I've tried are delicious. My kids LOVE the snickerdoodle cookies (and so do I!). We also use Ian's from time to time, or I make my own chicken nuggets or fish sticks with crushed corn flakes or rice flour (with added seasoned salt). We also do alot of Namaste mixes...also allergen free, easy, and tasty.

I have four kids gluen/dairy/soy free. It can be done, and it can be done so that the kids do not feel like they are missing out on anything. There are still plenty of sweet things and treats that they can have. Good luck!

Thank you

I think I figure it out it is all dairy. she was off it for 3 days and was doing better but through the vaction she got some dairy. and the tummy aches came back. Now that we are home we can cut out all dairy and see if it well help out. My oldest is very sencitive with gluten so I know it cant be gluten I am very careful about that. I read avery thing. If that does not help then I will go soy free with her. I have problems with dairy all my life and I am going dairy free with her. she likes the soy milk and I found one for kids with the added calcium in it. My mom was upset that she was going dairy free and wanted me to keep her on a low dairy diet but I said no. thanks agian and I will up date after I see if this will work for her.

Jodele

confused Community Regular
Paula - how did you come to the conclusion of casein and soy? Did you just cut everything out and add back in or are there tests you had done? I'm starting to suspect that I may have another allergy....

Thanks!

Laurie

I am so sorry i never seen this until now. Well i tested postive threw enterolab for casein, but i had suspected for yrs that i had problems with it, i use to get so sick after sour cream and ranch dressing, i had just thought it was the brands i was using. so when i tested positive, i needed to see it on paper to actually give up my cheese, it has been really hard. I never knew anything about soy until i started to drink the soy silk and i would get sick all the time, but i had thought maybe it was just from finding out i was celiac and my body was healing. But the minute i gave up soy i have felt 100 percent better. Today i decided to see if i had a real problem with it, so i made some tuna that has soy in it, and sure enought after i ate it, my stomach started to hurt. It didnt hurt like when i gluten myself, but i can tell my body does not like soy at all. I have to admit im not adament about reading all the labels for soy as i am gluten and casein, but im pretty much eating an basic diet, cause im trying to diet lol. I hope this makes sense. If you have any other questions, maybe Pm me, since i have felt better, i dont read all the emails like i did when i first found out about being celiac.

paula

Karen B. Explorer

This may be a dumb question but does she have gluten-free playdough? That jumped into my mind when I read the post about gluten sneaking in somewhere.

Jodele Apprentice
This may be a dumb question but does she have gluten-free playdough? That jumped into my mind when I read the post about gluten sneaking in somewhere.

No playdo here. learn my lesson with that one last year at school with my middle dd. she had avery bad stomic ache on the way back from vaction she had some string cheese and from that time on she was hurting all the way home I felt so bad. :(

jodele

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.