Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acne


pellegrino

Recommended Posts

Linda 60609 Newbie

I went gluten-free first and then casein free later. My skin cleared up when I went CF. This was quite a surprise to me (don't you love good surprises?) because I've done two strong courses of accutane in my adult life that made my skin beautiful while on the drug but the effects didn't last. I've been through every medical and alternative acne treatment on the planet and the only two that have worked well are accutane and casein-free. Wow, I wish I had known about casein-free before the expensive poisonous accutane....

Thank you so very much for mentioning this. I found your post by searching for "cystic acne celiac," because my cystic acne (which I have had for 30 years) defied most treatments (I did 2 courses of accutane) but I am now left me with huge boxcar and icepick scars on my cheeks. The former cysts still fill up with pus all the time and nothing including antibiotics every gets rid of it. I am finally getting some answers from a doctor who thinks I have celiac, so I am searching to see if maybe celiac was the cause of the cystic acne. I will look into going casein free too.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lud Newbie

Hi my name is Ludwig and I want to tell you my quick story about my acne connection with gluten.

I had acne during the end of college and I thought it was one of those things that everybody goes through. I always assume that my face was going to clear up sooner or later but it didn't. Although my acne was consider minor I always had troubles with my nose, from time to time I would get pimples and sometimes it would turn red. At the first time it happened I knew acne was caused by my diet because I felt that after I ate certain food I would feel the adverse effects after. So I stopped eating everything and start from square one and one of the foods I came across was quaker oatmeal. I ate this several times because oatmeal to which I thought was healthy but my nose didn't get any better. So I searched "oatmeal acne" and came across acne dot org and one of those topics mentioned that quaker oatmeal contains gluten and it can cause acne. I then searched "gluten acne" on google and sure enough there were many results that came up. Then the rest is history. I ordered several non gluten products such as NOW protein whey, bobs red mill no gluten oatmeal and pancake mix. I will have these by next week and I will give these a try to confirm that I have this gluten intolerance problem. I will report back.

ravenwoodglass Mentor

Hi my name is Ludwig and I want to tell you my quick story about my acne connection with gluten.

I had acne during the end of college and I thought it was one of those things that everybody goes through. I always assume that my face was going to clear up sooner or later but it didn't. Although my acne was consider minor I always had troubles with my nose, from time to time I would get pimples and sometimes it would turn red. At the first time it happened I knew acne was caused by my diet because I felt that after I ate certain food I would feel the adverse effects after. So I stopped eating everything and start from square one and one of the foods I came across was quaker oatmeal. I ate this several times because oatmeal to which I thought was healthy but my nose didn't get any better. So I searched "oatmeal acne" and came across acne dot org and one of those topics mentioned that quaker oatmeal contains gluten and it can cause acne. I then searched "gluten acne" on google and sure enough there were many results that came up. Then the rest is history. I ordered several non gluten products such as NOW protein whey, bobs red mill no gluten oatmeal and pancake mix. I will have these by next week and I will give these a try to confirm that I have this gluten intolerance problem. I will report back.

I would hold off on the oatmeal for a bit. Some of us react to even the gluten free oats.

Lud Newbie

I would hold off on the oatmeal for a bit. Some of us react to even the gluten free oats.

That is quite interesting, can you tell me why is that?

ravenwoodglass Mentor

That is quite interesting, can you tell me why is that?

the protein in oatmeal is similiar to the protein in the gluten grains. There are quite a few of us who do react to all oats, even the certified gluten free ones. If you are one of them it could make things confusing. If you avoid them for now you can add them back in after you have healed to see if you are someone who tolerates them.

curlyfries Contributor

I think it depends on what kind of acne you have, and what has been causing your acne. I have cystic acne (it seems to be largely genetic in my case). It has not gone away (I've been gluten-free for about 4 years now). Soy does make my acne much worse though.

Thank you so very much for mentioning this. I found your post by searching for "cystic acne celiac," because my cystic acne (which I have had for 30 years) defied most treatments (I did 2 courses of accutane) but I am now left me with huge boxcar and icepick scars on my cheeks. The former cysts still fill up with pus all the time and nothing including antibiotics every gets rid of it. I am finally getting some answers from a doctor who thinks I have celiac, so I am searching to see if maybe celiac was the cause of the cystic acne. I will look into going casein free too.

Most of my acne issues have been cystic. I saw some improvement after going gluten-free, but then got worse again. Now that I am totally sugar free, my face is acne free :D

munchkinette Collaborator

My acne was crazy before I went gluten free. I mainly had the really deep painful ones, and they took weeks to heal. It took me 20 minutes to put on concealer every morning. It almost totally cleared up after being on the diet for a few months, and stayed that way for a few years.

Then it came back. I then realized I had to eliminate dairy, and later soy. It turned out that my flaky skin patches were from the dairy as well. Now that I've gotten rid of all three, my skin is almost always clear. The main reason I avoid dairy and soy now is because of the crazy acne (deep painful, or the blistery kind) that I get when I eat either one, although I'm sure that equally bad things are happening to my insides. If I get glutened I get all that acne plus little red dots all over my stomach.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chakra2 Contributor

Dropping gluten definitely improved my complexion, but it took dropping dairy and soy to get it 100% clear. Even soy oil in vitamins makes me break out (i stopped taking some of my favorite supplements, including fish oil, for that reason). I also switched to using baking soda, apple cider vinegar, and Calfornia Baby products on my face and that seemed to help too. I discovered that all of my other face soap and cream had either gluten or soy in them.

  • 1 year later...
kafree Newbie

I realise this is an old post but thought I'd reply anyway.

For people going gluten free for the first time, I'd advise you to hang in there. After having stubborn acne for 20 years (I'm now 35) and trying all sorts of regimes/antibiotics/contraceptive pills, I became convinced it was the result of my body reacting to certain food through an inflammatory response. I also had really bad dandruff that refused to respond to anything I tried.

After trying elimination diets on and off (and not very restrictively), and becoming so paranoid about everything I ate, I had IgG blood testing for 370 different foods. THe results came back as being reactive to gluten and eggs (among other more obscure foods). I eliminated these from my diet and had some really big breakouts before I finally became clear after about 6 weeks for the first time in years. Dandruff and itchy skin disappeared too! It seemed that my body went through a detox process in clearing out my skin and it took a while. I've also noticed, differently to other people on these forums, that my body reacts very slowly to gluten and eggs, as it may take 2 weeks or longer before the effects of ingestion show in my skin. Which made it very hard when I was undertaking an elimination diet to determining what was causing my symptoms. Interestingly too (as opposed to other contributers) my main symptoms of intolerance are skin problems. I experience some digestion and mood issues from these foods, but not to the extremes that others seem to. Nowadays I can have sml bits of gluten and egg on occasion without any adverse effects but if I have them regularly for a couple of weeks, I get a reaction. Different to allergies, my body seems to cope with small amounts of the intolerant food, until a threshold level is reached and a reaction occurs through an inflammatory response in my skin. ITs difficult being gluten-free combined with being egg-free as normally gluten-free foods in restaurants come in the form of frittata or other egg dish. Be careful you're not replacing gluten with something else that is causing a reaction.

Another suggestion - when trying out elimination diets to tackle acne, lay off the suppliments until you have established that certain foods aren't(or are) the cause. I was taking fish oil for months before I realised it was causing me to break in cysts really badly. Its always promoted as a treatment for acne/inflammation so it took me a while to figure out. I moved house, lost my suppliments and my skin cleared up!

Good luck and hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

    2. - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

    3. - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      2

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    4. - KelleyJo replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

    5. - HelenH posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Malt vinegar

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,547
    • Most Online (within 30 mins)
      7,748

    Lynette76
    Newest Member
    Lynette76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
    • KelleyJo
      Yes,  I've reacted to malt anything . . . it does come from barley.  I'm super careful to avoid anything containing malt or even maltodextrin unless it's labeled from corn.
    • HelenH
      Having avoided gluten well for many years I think I may have had a salad with Malt Vinegar and it was one of the worst 'attacks' I have experienced. I just want to know if anyone else has been so badly affected by malt vinegar.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.