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Dd Had Scope Done This Morning

ptkds

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ptkds Community Regular
ptkds
Posted

My 14 month old dd had her scope and biopsy done this morning. They had to poke her 4 freakin' times to get the IV in. I was fine until the 3rd try, then I just started crying along with her.

Anyway, the dr saw ulcers in her stomach. We even got pics :unsure: .He said her intestines look somewhat ok, but he is pretty sure she has Celiac disease. He told me to put her on a gluten-free diet right now. So we should know something for sure from the biopsy in about 2 wks. My MIL is still saying it might not be Celiac disease, but I think it is just wishful thinking and she needs to accept reality! :P

On a sidenote, we stayed at the Ronald McDonald house last night since the hospital is nearly 2 hrs away from our home. Let me tell you, it was wonderful. They were the sweetest ppl, the place was wonderful, and they had TONS of food, though not 1 thing was gluten-free. So if you ever need to stay in one, don't hesitate. If you can afford to, donate to them. What they offer is fabulous. They had a bulletin board covered in pics of preemie and sick babies whose parents stayed there. It was very touching. And we saw 1 little girl who had a feeding tube in her nose. I don't know what was wrong w/ her, but I do know that it was a blessing for her and her family for them to stay so close to the hospital. Just my 2 cents!!

ptkds

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Lisa Mentor
Lisa
Posted
My 14 month old dd had her scope and biopsy done this morning. They had to poke her 4 freakin' times to get the IV in. I was fine until the 3rd try, then I just started crying along with her.

Anyway, the dr saw ulcers in her stomach. We even got pics :unsure: .He said her intestines look somewhat ok, but he is pretty sure she has Celiac disease. He told me to put her on a gluten-free diet right now. So we should know something for sure from the biopsy in about 2 wks. My MIL is still saying it might not be Celiac disease, but I think it is just wishful thinking and she needs to accept reality! :P

On a sidenote, we stayed at the Ronald McDonald house last night since the hospital is nearly 2 hrs away from our home. Let me tell you, it was wonderful. They were the sweetest ppl, the place was wonderful, and they had TONS of food, though not 1 thing was gluten-free. So if you ever need to stay in one, don't hesitate. If you can afford to, donate to them. What they offer is fabulous. They had a bulletin board covered in pics of preemie and sick babies whose parents stayed there. It was very touching. And we saw 1 little girl who had a feeding tube in her nose. I don't know what was wrong w/ her, but I do know that it was a blessing for her and her family for them to stay so close to the hospital. Just my 2 cents!!

ptkds

I am so glad that it is over for you. It is so strange for me to know that a 14 month old can have ulsers. But, an so glad that you have some answers.

I have a friend who is in Washington DC, who heads up the McD's Houses and has been a help to another family here at Celiac.com. It's good work and they are dedicated. It is hard sometimes to imagine what is behind closed doors sometime.

They are a wonderful group for support.

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