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Diseases Related To Celiac?


robic

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robic Newbie

Hi. I'm a fairly recently diagnosed celiac. I have, in the last 3 months heard of 2 women who suffered both celiacs disease and polycystic ovarian syndrome. I too suffer from both of these conditions. Does anyone know if there has been any research or speculations as to a relationship between the two? Is there any other women out there with both who might have some information. My doctor just scoffed and paid no attention to my query.

Thanks, Izzy


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rsavage Newbie

:o Dear Izzy,

I too have wondered if there might be some kind of connection between Celiac and female problems. Please allow me to explain. My mother (celiac) had uterine cancer. My sister (celiac) had breast cancer. This along with 3 women celiacs for each man sort of makes me wonder what if anything the hormones do to change cells. I have not seen anything about this but you know that some doctors think they are God and haven't a clue about things so they get real upset if you question them. Keep searching, there are good doctors and answers for all of us out there. God bless, Royann

Guest Terry

Hi- I have been diagnosed with Celiac for close to 7 years now- I have several other diseases that "go along "with celiac. Asthma, Diabetes, IGA deficiency, Interstisial cystis.

Terry :huh:

tarnalberry Community Regular

Some women have also found a link between celiac and vulvodynia.

beelzebubble Contributor

i also have pcos. i don't know if there's any sort of connection. but, i know that the incidence of irritable bowell syndrom appears to be higher among pcos'ers, so there might be. if you want, you can send me a pm, and we could chat about it.

c-

  • 3 weeks later...
slockhart Newbie

I'm yet another celiac with PCO syndrome. I discovered I was a coeliac in 2000 and have had bouts of cysts since then. However, I have only recently discovered that my gluten-free diet wasn't as gluten-free as I thought. No pain since starting the stricter diet but its only been a couple of months.

I have been doing quite a bit of research lately into gluten intolerance and its related diseases and I am sure I came across a connection between the two. However, at the time my focus was on another connection with coeliac disease and so put it aside. If I find it I will let you know. Otherwise, general infertility problems are well documented. There's a book called Dangerous Grains which summarises most of the known or suspected connections of gluten intolerance and other health problems including infertility. Also, a google search can be great and can even lead to the primary literature in the medical journals - perfect ammunition to arm yourself with when next you visit those doctors too lazy to do their own research and/or too arrogant to accept information from patients.

  • 3 months later...
armymom3 Newbie

Hi. I am a brand new member and I actually got on this board to find out this exact thing...I have type II diabetes and am 34 years old. Unusual as I was diagnosed when I was 32 and most Type II's are age on set as well as over weight. Not my case...I have not had the Celiac blood panel run yet but am going in on Monday. I have actually been using a gluten-free and wheat free diet for about 5 days now (had some slip ups along the way) and my sugars are much more manageable and I feel better. My grandmother had an allergy to gluten and wheat but as far as we know was never technically diagnosed with Celiac. She was also a Type II diabetic (age on- set). Is there anyone out there that is an early diagnosed type II and has Celiac? I found alot of correlation with Type I and Celiac but not so much info on Type II and Celiac. Strange, but I almost hope it is Celiac - atleast I would know what is wrong with me and get on the track of recovery. Also, does anyone out there with Celiac have gallbladder problems?

Thanks

Leslie


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Guest jhmom

Here is a very informative link about Research on Diseases and Disorders Associated with Celiac Disease

I hope this is helpful to each of you looking for answers :D

kalo Rookie

Hi Leslie. Welcome to the group. I wanted to say that I understand about wanting to have celiac disease. I have a 7 page health history which begins at birth and I was 55 on Thursday. After a diagnosis of chronic fatigue, fibromyalgia, low thyroid/low adrenal, IBS, and sinus/allergy and still not well it would be SUCH A RELIEF. Keep us posted. My blood test was negative which doesn't mean anything. I'm awaiting the results from a simple stool test from enterolabs. A much more accurate test. Best wishes. Hugs, Carol B

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    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
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    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
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