Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son's Symptoms ?celiac?


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

My daughter was diagnosed 6 months after my son was born. She was a BIG baby and always healthy until that point (4 years old and highly symptomatic). My son was smaller, pretty healthy but always in the 10-15% for his age. No apparent GI problems and we were told by our ped's GI (who we do like) to feed him a reglar diet including gluten until he is 2 (next month) and then test him. The only issue we've ever had with him is significant eczema. It has covered his arms and legs pretty much since birth-tried different detergents, soaps, lotions, etc.. Winter months are worse, but as long as I cover him with Aquaphor before bed, I can keep it under control. Also, he is very prone to diaper rashes--the bad ones that look like I set him bare-butt on a stove top. His pediatrician does not feel that these are celiac symptoms and wants to wait until the 2 year point (especially since he is consistantly growing). I do trust him, he was VERY quick to test and diagnose our daughter, but..... Just wondering if there was anyone else out there with these symptoms, yes celiac/no celiac. Husband and I both test negative as do multiple other family members.

Thanks,

-Rachelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

They could be sypmtoms. Why don't you get him tested now? He has to be eating gluten anyway to do the blood test! since he's going to be two in month anyway I would ask your ped if you can do the blood tests now.

Ursa Major Collaborator

I agree that testing him now is a good idea. Eczema is ALWAYS caused by food intolerances. All five of my oldest daughter's kids have intolerances. And they all had eczema until the cause was figured out.

My oldest granddaughter was absolutely covered in eczema from head to toe until the age of two. The cause was primarily dairy. Once she was taken off all dairy, the eczema cleared up completely. She is also obviously gluten intolerant.

The twin's eczema cleared up when my daughter stopped eating nightshade foods (she was breastfeeding them until they were 13 months old), as well as all dairy and soy.

Her youngest (now eleven months old) also breaks out in a rash when Sarah has any dairy products.

I would suggest to have the bloodwork done, and as soon as the blood is drawn, take him off dairy and gluten. The eczema will need a few weeks to clear up completely. But if those foods are the cause, you should see a change for the better within a week.

Don't substitute soy milk for dairy, it could cause new problems. Better substitutes are rice milk (not rice dream, it is not gluten-free because it has barley malt) or almond milk.

  • 2 weeks later...
mamaloca2 Apprentice
My daughter was diagnosed 6 months after my son was born. She was a BIG baby and always healthy until that point (4 years old and highly symptomatic). My son was smaller, pretty healthy but always in the 10-15% for his age. No apparent GI problems and we were told by our ped's GI (who we do like) to feed him a reglar diet including gluten until he is 2 (next month) and then test him. The only issue we've ever had with him is significant eczema. It has covered his arms and legs pretty much since birth-tried different detergents, soaps, lotions, etc.. Winter months are worse, but as long as I cover him with Aquaphor before bed, I can keep it under control. Also, he is very prone to diaper rashes--the bad ones that look like I set him bare-butt on a stove top. His pediatrician does not feel that these are celiac symptoms and wants to wait until the 2 year point (especially since he is consistantly growing). I do trust him, he was VERY quick to test and diagnose our daughter, but..... Just wondering if there was anyone else out there with these symptoms, yes celiac/no celiac. Husband and I both test negative as do multiple other family members.

Thanks,

-Rachelle

I would get him tested, but don't bother with the blood test. It is said to be very innaccurate in children or anyone who is not in a very progressed stage of Celiac. Try Enterolab. Or bare minimum, try the diet. That was mine and my daughter's best indicator.

JennyC Enthusiast

My son was also prone to diaper rashes and had eczema. If your son is turning two next month then I would request that the doctor order the celiac panel and allergy tests for after his two year check up. Until then I would put him on a high gluten diet. If he's already on gluten, then in my opinion you might as well go for the official diagnosis and you can get blood allergy tests done at the same time to be sure that your son doesn't have any allergies to other foods. If the tests are negative and you still feel that he may be reacting to gluten, then I would try the diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.