Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice


ckmom

Recommended Posts

ckmom Rookie

First I want to thank this board! I have read so much helpful info, it's the main place that truly gets me thru.

Well, my 6 yr old daughter was dx. about 4 months ago. We have been doing very well, her stomach aches almost stopped immediately. Now, she has been complaining again of stomach aches. I don't know if it truly has anything to do with her celiac or not. She doesn't complain if she is doing something she wants to be doing or if she is busy and doesn't think about it! I really don't know what to think or do!? My husband thinks we should take her back to the Dr. but I just don't know if that's the answer. I feel like I am at a complete loss . . . I am trying so hard to make this transition easy for her by baking/cooking all of her old favorites gluten free which, the majority of them she enjoys. I am really feeling low and sorry for her and I don't know what to do. If anyone has any ideas please let me know - I take all of this advice to heart.

Thank You all in advance!!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

ckmom Rookie
With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

Thank You so much that sounds like a great idea. I actually already have a book to keep the food diary in. Making her lay down for a while does make sense. (Then I'll have another problem on my hands if this is for attention!)

Nic Collaborator

It's funny because we actually have the opposite problem. My son won't admit when something hurts. So we never know for sure when he is sick or when he is feeling better. But Carla's idea sounds like a good one.

Nicole

debmom Newbie

Aside from the possibility of hidden gluten (toothpaste?) could she have established a pattern of receiving attention when her stomach hurt? And now she uses that to gain attention when she is bored or needing some parent time?

My daughter and I developed a different relationship when she was sick and in pain all the time. We had to reestablish a new way of relating once she felt better. I had to find something to do with all the time I used to spend worrying about her! and I still was smothering her with attention when she really needed to have some independence once she felt better. (She is 15) But a sick child does create a different dynamic and maybe your daughter is also having trouble adjusting to a new one now that she is better. I'd check with the doctor though and let her know when the stomach aches seem to reappear. I'd keep a chart and see if there is a pattern to them (note what is going on in the family when they appear--). I like the idea of asking her to go lie down.

Good luck--

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.