Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice


ckmom

Recommended Posts

ckmom Rookie

First I want to thank this board! I have read so much helpful info, it's the main place that truly gets me thru.

Well, my 6 yr old daughter was dx. about 4 months ago. We have been doing very well, her stomach aches almost stopped immediately. Now, she has been complaining again of stomach aches. I don't know if it truly has anything to do with her celiac or not. She doesn't complain if she is doing something she wants to be doing or if she is busy and doesn't think about it! I really don't know what to think or do!? My husband thinks we should take her back to the Dr. but I just don't know if that's the answer. I feel like I am at a complete loss . . . I am trying so hard to make this transition easy for her by baking/cooking all of her old favorites gluten free which, the majority of them she enjoys. I am really feeling low and sorry for her and I don't know what to do. If anyone has any ideas please let me know - I take all of this advice to heart.

Thank You all in advance!!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

ckmom Rookie
With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

Thank You so much that sounds like a great idea. I actually already have a book to keep the food diary in. Making her lay down for a while does make sense. (Then I'll have another problem on my hands if this is for attention!)

Nic Collaborator

It's funny because we actually have the opposite problem. My son won't admit when something hurts. So we never know for sure when he is sick or when he is feeling better. But Carla's idea sounds like a good one.

Nicole

debmom Newbie

Aside from the possibility of hidden gluten (toothpaste?) could she have established a pattern of receiving attention when her stomach hurt? And now she uses that to gain attention when she is bored or needing some parent time?

My daughter and I developed a different relationship when she was sick and in pain all the time. We had to reestablish a new way of relating once she felt better. I had to find something to do with all the time I used to spend worrying about her! and I still was smothering her with attention when she really needed to have some independence once she felt better. (She is 15) But a sick child does create a different dynamic and maybe your daughter is also having trouble adjusting to a new one now that she is better. I'd check with the doctor though and let her know when the stomach aches seem to reappear. I'd keep a chart and see if there is a pattern to them (note what is going on in the family when they appear--). I like the idea of asking her to go lie down.

Good luck--

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    3. - melthebell posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    4. - trents commented on Scott Adams's article in Winter 2026 Issue
      4

      Why Celiac Diagnosis Still Takes Years—and How to Change That

    5. - Jmartes71 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,498
    • Most Online (within 30 mins)
      7,748

    genliu
    Newest Member
    genliu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • melthebell
      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
    • trents
      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
    • melthebell
      Hello community; it's nice to have found you. I am a 42 year old biopsy confirmed celiac. I have had it since I was 18. Well managed on a gluten free diet. No idea if I have the gene (presume I do) as never tested. Diagnosed as was anaemic and had a high celiac market (can't recall which), and a positive biopsy. Asymptomatic. Given this, I regularly test my two children. My eldest is the child in question. First tested at age 5 due to slight anaemia. Everything negative except for a slightly high DGP IGG (slightly elevated at 25). Not IGA deficient. Did a biopsy with a pediatric gastro, was negative. Next test at age 8. Everything once again negative, high DGP IGG at 116 U/ml this time. Living in a country now with no celiac knowledge so decided to whack him on a gluten-free diet and see how he goes. Next test at age 9 after a year on gluten-free diet. Everything once again negative, high DGP IGG at 174 U/ml this time! On a gluten-free diet. Final test was a week ago at age 10, on continued gluten-free diet. Once again a positive DGP IGG, this time over 250 U/ml. On a gluten-free diet. what the heck is going on with my kid? We have seen a pediatric gastro via telehealth, who was equally puzzled and suggested doing a gluten challenge and an endoscopy, which we have schedule for end of April. Kid is otherwise fine. Energetic and growing well. No significant gastrointestinal symptoms. Has anyone encountered something like this before?
    • Jmartes71
      Domino's and Mountain Mike also has glutenfree pizza.However the issue is the cross contamination. Not worth a few minutes of yum yums i n the taste buds with a painful explosion later.
    • Scott Adams
      I don't recall seeing "many people here recommending RO water," but reverse osmosis (RO) water is water that has been purified by forcing it through a very fine membrane that removes dissolved salts, heavy metals, fluoride, nitrates, PFAS, and many other contaminants. It is one of the most thorough household filtration methods available and can be especially beneficial in areas with well water or known contamination concerns. While RO systems also remove beneficial minerals like calcium and magnesium and may produce slightly “flat”-tasting water, most dietary minerals come from food rather than drinking water, so this is not usually a health concern for most people. Overall, RO water is very clean and safe to drink, and it can be a smart option where water quality is questionable, though it may not be necessary in areas with well-tested municipal water.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.