Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice


ckmom

Recommended Posts

ckmom Rookie

First I want to thank this board! I have read so much helpful info, it's the main place that truly gets me thru.

Well, my 6 yr old daughter was dx. about 4 months ago. We have been doing very well, her stomach aches almost stopped immediately. Now, she has been complaining again of stomach aches. I don't know if it truly has anything to do with her celiac or not. She doesn't complain if she is doing something she wants to be doing or if she is busy and doesn't think about it! I really don't know what to think or do!? My husband thinks we should take her back to the Dr. but I just don't know if that's the answer. I feel like I am at a complete loss . . . I am trying so hard to make this transition easy for her by baking/cooking all of her old favorites gluten free which, the majority of them she enjoys. I am really feeling low and sorry for her and I don't know what to do. If anyone has any ideas please let me know - I take all of this advice to heart.

Thank You all in advance!!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

ckmom Rookie
With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

Thank You so much that sounds like a great idea. I actually already have a book to keep the food diary in. Making her lay down for a while does make sense. (Then I'll have another problem on my hands if this is for attention!)

Nic Collaborator

It's funny because we actually have the opposite problem. My son won't admit when something hurts. So we never know for sure when he is sick or when he is feeling better. But Carla's idea sounds like a good one.

Nicole

debmom Newbie

Aside from the possibility of hidden gluten (toothpaste?) could she have established a pattern of receiving attention when her stomach hurt? And now she uses that to gain attention when she is bored or needing some parent time?

My daughter and I developed a different relationship when she was sick and in pain all the time. We had to reestablish a new way of relating once she felt better. I had to find something to do with all the time I used to spend worrying about her! and I still was smothering her with attention when she really needed to have some independence once she felt better. (She is 15) But a sick child does create a different dynamic and maybe your daughter is also having trouble adjusting to a new one now that she is better. I'd check with the doctor though and let her know when the stomach aches seem to reappear. I'd keep a chart and see if there is a pattern to them (note what is going on in the family when they appear--). I like the idea of asking her to go lie down.

Good luck--

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748

    Jackir
    Newest Member
    Jackir
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.