Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice


ckmom

Recommended Posts

ckmom Rookie

First I want to thank this board! I have read so much helpful info, it's the main place that truly gets me thru.

Well, my 6 yr old daughter was dx. about 4 months ago. We have been doing very well, her stomach aches almost stopped immediately. Now, she has been complaining again of stomach aches. I don't know if it truly has anything to do with her celiac or not. She doesn't complain if she is doing something she wants to be doing or if she is busy and doesn't think about it! I really don't know what to think or do!? My husband thinks we should take her back to the Dr. but I just don't know if that's the answer. I feel like I am at a complete loss . . . I am trying so hard to make this transition easy for her by baking/cooking all of her old favorites gluten free which, the majority of them she enjoys. I am really feeling low and sorry for her and I don't know what to do. If anyone has any ideas please let me know - I take all of this advice to heart.

Thank You all in advance!!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

ckmom Rookie
With kids it is difficult to tell whether they really hurt or whether they are making it up for some other reason. What I do is tell them if they feel bad they should go lay down (and I make them do it) ... if they really feel bad, then they are happy to, but if they don't, all of a sudden they feel better.

Since your daughter feels fine when she's busy, I am wondering if she just misses the attention she got when she was ill. If so, the above should work because going to lay down is the opposite of getting attention.

If she does really seem to hurt, keeping a food diary might help. Sometimes other food allergies/intolerances show up after going gluten-free, so it really could be something else bothering her ... but I'd try to find out if it's real or for attention before you drag her to the doctor or put her on an elimination diet ... it should only take a few days to find out.

Thank You so much that sounds like a great idea. I actually already have a book to keep the food diary in. Making her lay down for a while does make sense. (Then I'll have another problem on my hands if this is for attention!)

Nic Collaborator

It's funny because we actually have the opposite problem. My son won't admit when something hurts. So we never know for sure when he is sick or when he is feeling better. But Carla's idea sounds like a good one.

Nicole

debmom Newbie

Aside from the possibility of hidden gluten (toothpaste?) could she have established a pattern of receiving attention when her stomach hurt? And now she uses that to gain attention when she is bored or needing some parent time?

My daughter and I developed a different relationship when she was sick and in pain all the time. We had to reestablish a new way of relating once she felt better. I had to find something to do with all the time I used to spend worrying about her! and I still was smothering her with attention when she really needed to have some independence once she felt better. (She is 15) But a sick child does create a different dynamic and maybe your daughter is also having trouble adjusting to a new one now that she is better. I'd check with the doctor though and let her know when the stomach aches seem to reappear. I'd keep a chart and see if there is a pattern to them (note what is going on in the family when they appear--). I like the idea of asking her to go lie down.

Good luck--

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Pain in the right side of abdomen

    2. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      4

      Barilla gluten free pasta

    5. - knitty kitty commented on Scott Adams's article in Latest Research
      2

      Do Severe Symptoms at Celiac Diagnosis Predict Long-Term Health? (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,477
    • Most Online (within 30 mins)
      7,748

    Matt Johnston
    Newest Member
    Matt Johnston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
    • trents
      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
    • Scott Adams
      This is a very common source of frustration within the celiac community. Many restaurants, including large chain restaurants, now offer a "gluten-free" menu, or mark items on their menu as gluten-free. Some of them then include a standard CYA disclaimer like what you experienced--that they can't guarantee your food will be gluten-free. Should they even bother at all? This is a good question, and if they can't actually deliver gluten-free food, should they even be legally allowed to make any claims around it?  Personally I view a gluten-free menu as a basic guide that can help me order, but I still explain that I really have celiac disease and need my food to be gluten-free. Then I take some AN-PEP enzymes when my food arrives just in case there may be contamination. So far this has worked for me, and for others here. It is frustrating that ordering off a gluten-free menu doesn't mean it's actually safe, however, I do feel somewhat thankful that it does at least signal an awareness on their part, and an attempt to provide safe food. For legal reasons they likely need to add the disclaimer, but it may also be necessary because on a busy night, who knows what could happen?
    • Scott Adams
      That is a very old study that concludes "Hypothetically, maize prolamins could be harmful for a very limited subgroup of CD patients", and I've not seen any substantive studies that support the idea that corn would be a risk for celiacs, although some people with celiac disease could have a separate intolerance to it, just like those without celiac disease might have corn intolerance.
    • knitty kitty
      @cristiana,  It's the same here, doctors check just Vitamin D and B12 routinely.  The blood tests for other B vitamins are so inaccurate, or expensive and time consuming, doctors tend to gloss over their importance.   B vitamins are water soluble and easily excreted in urine.  Some people need to be careful with Pyridoxine B6 because they can store it longer than most due to genetics.  A symptom of Pyridoxine B6 deficiency is peripheral neuropathy.  Taking Pyridoxine B6 will relieve the neuropathy, but excess Pyridoxine can also cause peripheral neuropathy.  So, if neuropathy symptoms return, stop taking the Pyridoxine and it will resolve quickly as the excess Pyridoxine is used.  But the body still needs the other B vitamins, so taking them separately without Pyridoxine can be an option.   If one is low in Vitamin D, one may also be low in the other fat soluble vitamins, A, E, and K.  Vitamin K is important to bone and circulatory  health.  Vitamin A helps improve the health of the intestine, eyes, skin and other mucus membranes.  Vitamin E helps our immune system stay healthy.   Important minerals, iron, magnesium and calcium, as well as a dozen or so trace minerals are important, too.  They need the B vitamins to be utilized, too.   Our gluten free diets can be low in B vitamins.  Our absorption can be affected for many years while we're healing.  Supplementing with B vitamins boosts our absorption and helps our bodies and our brains function at optimal levels.   Hope this helps!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.