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Casein Issues

Eriella

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Eriella Explorer
Eriella
Posted

Hi,

I have been gluten free since April and have convinced 2 doctors that I either have non-antibody producing Celiac (which runs in my family) or gluten intolerance and feel great!!

This past week I have been feeling sluggish, gassy, fatigued, and bloated. I know I am not feeling gluten because I am not having C or brain fog, but I still feel yucky. The only thing that was different about this week is that I had a ton of milk (milk with dinner, in coffee, on cereal in the morning, in ice cream, in cheese...). Each time after I ate it I felt icky (technical term :P ) about an hour afterwards. Does this sound like a casein issue? I know all signs say it does, but I really love cheese and ice cream!!

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Mango04 Enthusiast
Mango04
Posted

Yes, and I'm all about convincing people to go dairy-free....however, in this case, you might have just overdone it. I'd try cutting dairy out completely for a few weeks. You can then slowly reintroduce small amounts of it and see how you do :)

mmaccartney Explorer
mmaccartney
Posted

My casein intolerance is all about belching, a sulphur taste/smell, vomintg and diarreah....

It all starts about 2 hours after eating milk and then ends after about 9 hours of hell..

Lisa Mentor
Lisa
Posted

Does casein issues do intestinal damage as gluten does for a celiac? I have asked before and recieved inconclusive answers. Any one know?

Aged cheddar cheese hits me hard! Although, I don't get the brain fog.

kbtoyssni Contributor
kbtoyssni
Posted

You might have casein intolerance, or you might have a slight lactose intolerance. I feel sick if I eat a ton of dairy (like more than three servings a day) so I try not to eat too much. Sounds like you ate a lot so maybe you'll be able to handle it if you ate less.

Eriella Explorer
Eriella
Posted
  • Author

Thanks-- it is the milk. We have figured that much out. I am going off milk for 2 weeks, seeing if it makes me sick, then will stay off until I feel better. I think that it is lactose, not casein (or at least hoping)

Thanks for the suggestions!

CMCM Rising Star
CMCM
Posted

When I tested thru Enterolab, I did both the gluten testing and got a bonus one for casein. I tested positive for casein, and the doc from Enterlab said continuing to eat dairy could do just as much damage as eating gluten. I stopped eating gluten, and also eliminated dairy for many months. After that, I've found that I can tolerate small amounts of dairy.....a bit of milk in my cappuccino, a yogurt here and there. But I'm careful not to have too much, and not every day. I always thought it was the lactose that bothered me....perhaps it was lactose AND casein, I don't know. Certain things bother me more than others....the worse are milk and ice cream.

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Wayne Newbie
Wayne
Posted

Wayne

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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