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Request #3

BamBam

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BamBam Community Regular
BamBam
Posted

My girlfriend joined toe boards last week, she got no responses to her simple questions, so I wrote to the board asking the same thing and have yet to get an answer, so I will ask again.

I've never been doctor diagnosed with celiac, I am self-diagnosed so have not had any blood work done. But we need to know what blood tests to request to be checked for celiac/gluten intolerance. My girlfriend has many symptoms.

Also what other test is recommended for other food allergies, we think she is highly intolerant of corn products. When she eats them she is running for bathrooms almost immediately. I've heard of Enterolab, and wasn't sure if there were any others or not.

I thank you in advance for any advice! :)

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ArtGirl Enthusiast
ArtGirl
Posted

I don't have this knowledge to relate to you, but I did a search on this board "blood tests to request" and came up with several threads on the subject.

This one Open Original Shared Link lists these tests:

Tissue Transglutaminase Antibody IgA and IgG

Gliadin Antibody IgA

Total IgA

You might want to do the search yourself and read the other threads that come up. You go to the search feature near the top of the screen - the one that gives the sample of tomato sauce - and key in the words you want to search on there - be sure you don't delete the word "site" at the end of the string.

Canadian Karen Community Regular
Canadian Karen
Posted

Here is the list I found on here:

They can test you for Celiac disease if you havent been tested and are still consuming gluten. These are the tests for the Celiac Panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Karen

Canadian Karen Community Regular
Canadian Karen
Posted

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

ArtGirl Enthusiast
ArtGirl
Posted
Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

So true. I am "only" gluten intolerant. I did have a blood panel for food sensitivities 10 years ago which showed up gliadin, wheat and gluten - but the doctor didn't even see that as a red flag, and I, of course, didn't understand the significance. After finding this forum I did finally go thru Enterolab and found that I have two genes for "intolerance" but none for Celiac. So probably if the doctors HAD run the tests they'd have been negative for Celiac and I'd still have had to figure it out for myself.

Edit...

I just reread your post and see that your girlfriend has a problem with corn. I do, too. I didn't fully recover symptom-wise until I eliminated corn and all corn derivitaves, including citric acid. There's a forum Open Original Shared Link that has been was very helpful to me. I have other links that give lists of foods to avoid (regarding corn) and if you're interested, just PM me and I'll send them to you.

holdthegluten Rising Star
holdthegluten
Posted

For the food allergy test you can try US Biotek and order the food allergy panel (your doctor has to order it), if you want convenience you can order an at home finger prick test (96 food allergy panel ELISA) from optimum health resources $379 Open Original Shared Link

BamBam Community Regular
BamBam
Posted
  • Author

Thank you so much for the quick responses. Rebecca will be back to work on Monday and I will have some good information for her.

Good to hear from you Canadian Karen - you're one of the oldies but goodies!! I miss hearing from some of the old timers!

BamBam

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happygirl Collaborator
happygirl
Posted

BamBam,

Also remember that it is the summer and many of the regulars aren't on the board as much....vacation, kids out of school, trips, nice weather, etc. The board has had a lot of new posters lately and it is hard to keep up.

I am happy that your question was answered. You are a good friend for helping her.

gfpaperdoll Rookie
gfpaperdoll
Posted

Yep, Karen gave you the right info on the blood tests. Just be sure to remind your friend that a negative blood test does not mean that she does not have celiac or gluten intolerance.

Not a blood test, but I really like Enterolab.com

Please also remind your friend that dietary trial is the real proof.

Sorry she did not get a reply to her question.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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