Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Request #3


BamBam

Recommended Posts

BamBam Community Regular

My girlfriend joined toe boards last week, she got no responses to her simple questions, so I wrote to the board asking the same thing and have yet to get an answer, so I will ask again.

I've never been doctor diagnosed with celiac, I am self-diagnosed so have not had any blood work done. But we need to know what blood tests to request to be checked for celiac/gluten intolerance. My girlfriend has many symptoms.

Also what other test is recommended for other food allergies, we think she is highly intolerant of corn products. When she eats them she is running for bathrooms almost immediately. I've heard of Enterolab, and wasn't sure if there were any others or not.

I thank you in advance for any advice! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I don't have this knowledge to relate to you, but I did a search on this board "blood tests to request" and came up with several threads on the subject.

This one Open Original Shared Link lists these tests:

Tissue Transglutaminase Antibody IgA and IgG

Gliadin Antibody IgA

Total IgA

You might want to do the search yourself and read the other threads that come up. You go to the search feature near the top of the screen - the one that gives the sample of tomato sauce - and key in the words you want to search on there - be sure you don't delete the word "site" at the end of the string.

Canadian Karen Community Regular

Here is the list I found on here:

They can test you for Celiac disease if you havent been tested and are still consuming gluten. These are the tests for the Celiac Panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Karen

Canadian Karen Community Regular

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

ArtGirl Enthusiast
Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

So true. I am "only" gluten intolerant. I did have a blood panel for food sensitivities 10 years ago which showed up gliadin, wheat and gluten - but the doctor didn't even see that as a red flag, and I, of course, didn't understand the significance. After finding this forum I did finally go thru Enterolab and found that I have two genes for "intolerance" but none for Celiac. So probably if the doctors HAD run the tests they'd have been negative for Celiac and I'd still have had to figure it out for myself.

Edit...

I just reread your post and see that your girlfriend has a problem with corn. I do, too. I didn't fully recover symptom-wise until I eliminated corn and all corn derivitaves, including citric acid. There's a forum Open Original Shared Link that has been was very helpful to me. I have other links that give lists of foods to avoid (regarding corn) and if you're interested, just PM me and I'll send them to you.

holdthegluten Rising Star

For the food allergy test you can try US Biotek and order the food allergy panel (your doctor has to order it), if you want convenience you can order an at home finger prick test (96 food allergy panel ELISA) from optimum health resources $379 Open Original Shared Link

BamBam Community Regular

Thank you so much for the quick responses. Rebecca will be back to work on Monday and I will have some good information for her.

Good to hear from you Canadian Karen - you're one of the oldies but goodies!! I miss hearing from some of the old timers!

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

BamBam,

Also remember that it is the summer and many of the regulars aren't on the board as much....vacation, kids out of school, trips, nice weather, etc. The board has had a lot of new posters lately and it is hard to keep up.

I am happy that your question was answered. You are a good friend for helping her.

gfpaperdoll Rookie

Yep, Karen gave you the right info on the blood tests. Just be sure to remind your friend that a negative blood test does not mean that she does not have celiac or gluten intolerance.

Not a blood test, but I really like Enterolab.com

Please also remind your friend that dietary trial is the real proof.

Sorry she did not get a reply to her question.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Celiac disease symptoms

    2. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Celiac disease symptoms

    3. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Celiac disease symptoms

    5. - Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,051
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
    • Churro
      Thanks for your insight. I've been eating wheat bread at least 5 times a week for several months. I've been eating chicken or eggs 5 days a week for at least a year. 
    • trents
      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac disease with blood IGA antibody test. You should ask your physician to order a total IGA test. 2. Iron deficiency anemia can also give distorted IGA celiac disease blood antibody tests. 3. If you were already on a gluten-free diet or had been restricting gluten consumption for weeks/months prior to the antibody testing blood draw, then the test results would not be valid. Accurate celiac disease blood antibody testing requires you to have been consuming significant amounts of gluten for a significant time period leading up to the blood draw. It takes time for the antibody levels in the blood to build up to detectable levels. 4. Your low iron levels and other symptoms could be due to celiac disease but could also be caused by lots of other medical issues.
    • Churro
      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.