-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6GI DX celiac despite neg serology and no biopsy
Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes... -
- Celiac.com Sponsor: Review commented on Scott Adams's article in Gluten-Free Grains and Flours2The Best Gluten-Free Flours for Baking (And When to Use Each)
Testing comments please ignore. 4- almond flour
- baking
- (and 8 more)
-
- Celiac.com Sponsor: Review commented on Scott Adams's article in Gluten-Free Grains and Flours2
The Best Gluten-Free Flours for Baking (And When to Use Each)
Testing comments please ignore. 3- almond flour
- baking
- (and 8 more)
-
- Wheatwacked commented on Scott Adams's article in Latest Research2
Understanding the Link Between Blood Pressure Medications and Celiac Disease Complications (+Video)
Good article. Losartan after my carotid artery surgery had me feeling like I was glutened and I was getting sicker. Doctor said keep taking Losartan, but two weeks later I could not get up from the floor. Many symptoms similar to before I started gluten free. It was crippling my hips, brain fog, no appetite, etc. I stopped AMA and all the symptoms...- anemia
- angiotensin receptor blockers
- (and 8 more)
-
- Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders19Headaches / Migraines and Hypoglycaemia
Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing. To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago. I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia. I also mentioned that I...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.5k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
By Wheatwacked · Posted
Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes time to heal and you need to focus on vitamins and minerals. Gluten free foods are not fortified like regular processed foods. -
By Sarah Grace · Posted
Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing. To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago. I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia. I also mentioned that I had issues with insomnia, vertigo and brain fog. It's now one year since I started on the Benfotiamine 600 mg/day. I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful. In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!! So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off. If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden. Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards, -
By knitty kitty · Posted
@rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort. SIBO can cause digestive symptoms. SIBO can prevent vitamins from being absorbed by the intestines. Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation). Thiamine is the B vitamin that runs out first because it can only be stored for two weeks. We need more thiamine when we're sick or under emotional stress. Gastric Beriberi is under recognised by doctors. An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement. Don't take Thiamine Mononitrate because the body can't utilize it well. Try Benfotiamine. Thiamine is water soluble, nontoxic and safe even at high doses. I thought it was crazy, too, but simple vitamins and minerals are important. The eight B vitamins work together, so a B Complex, Benfotiamine, magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet. Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine. -
By captaincrab55 · Posted
Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price. The gluten-free tags opened up a lot of foods that aren't actually marked gluten-free by the manufacture. Now I only need to check for my other dietary restrictions. Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag. Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you. I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly. Good Luck -
Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding. I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions. I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately. I guess another expectation I had is that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.