Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

About Topical Gluten


lfij

Recommended Posts

lfij Newbie

Very few celiacs are likely to have any reaction to topical gluten contact. In order for a gut reaction to occur, it is likely that direct contact with the gut lumen is required. Many people with celiac disease have everyday contact with gluten (for instance, bakers with celiac disease who have contact everyday with wheat flour), and do not have any reaction to it. However, there are, on rare occasion, people who have had an anaphylactoid response to gluten, and these people should avoid gluten in all forms. Also, topical gluten breathed into the upper airways may cause symptoms of allergic rhetinitis in rare instances. If there is a simple alternative to a shampoo, cosmetic, etc., you may want to use the non gluten containing product.

- this is from the FAQ on the side bar

i just thought this was interesting because in fact most people without DH don't react, even though it remains a personal choice. (i didn't post this to start a whole thing again, just to show what the offical celiac.com answer is apparently)(even though i think bakers inhale some and therefore digest it), even the people who wrote this site who on many things seem quite reliable sort of say both sides are right.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmd3 Contributor

If I have a cut, scrape, or bug bite and my skin is open, no matter how small, I DO!

I also can't be exposed to Gluten flours, it gets my asmtha started.

Everyone is completely different, sorry to disagree with you.

Guest Doll

If someone has allergies (specifically a gluten IgE allergy), then they can possibly react to topical gluten. Someone can have both Celiac Disease and a gluten allergy of course, but yes, this would be fairly rare. It happens though. Many people with asthma also have allergies.

I do not have a firm opinion on DH. Most research suggests that most with DH need to also ingest gluten like Celiacs to have a reaction (gluten needs to be absorbed though the leaky gut). Some people say that open DH sores react to gluten exposure. I cannot personally see how this would happen without an allergy in addition to DH, but I don't have enough info to discredit the idea either.

We are a lively bunch, huh? :P

lovegrov Collaborator

Just personal experience, but I had DH for years and years and I don't react even the slightest bit to gluten on the skin. None. And you don't absorb it through your skin.

richard

lfij Newbie
Just personal experience, but I had DH for years and years and I don't react even the slightest bit to gluten on the skin. None. And you don't absorb it through your skin.

richard

i was really under the impression that you are, that, it has to hit your gut, i really doubt your skin absorbs things and it goes into your digestive tract. I think if it's just celiac, not an allergy on top of it, it works like you say.

gfgypsyqueen Enthusiast

Maye I am one of the lucky few...maybe I have a wheat allergy too...Maybe I am just hyper sensitive...who knows ...maybe I have some other new fun thing going on...BUT everytime I touch a gluten product, like bread, my hands break open and bleed. This has happened since I was first diagnosed with celiacs. My finger tips swell up and then burst along the cracks. These "skin splits" take forever to heal. And I have tested this. I never touch gluten. Then I make sandwiches handling the bread like a normal person and wahla fingers swell, split, bleed. Drives me crazy! And I do not have DH and so far I do not have any other food allergies.

So at this point, I go under the assumption that I have Celiacs and a contact allergy to wheat/gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,219
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.