Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sore Treatments


grey

Recommended Posts

grey Explorer

Hi all,

Hoping someone might have some suggestions about coping with canker sores? I've gotten them my whole life, either with no cause or in response to mouth trauma (biting the inside of my lip, by accident, I'll usually get a canker sore on that site). Since going gluten-free, I've had more sores, and I now have a real doozy of a set on the upper left.

I'm also curious if anyone's been dx'd w/ aphthous stomatitis. I've read a little bit, but it's unclear to me whether all of these mouth ulcer are AS or only some, and how you tell.

So, if someone has an over- the-counter gluten-free remedy, or a way to get rid/less of them, or just has experience with them, I'd love to hear about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CDFAMILY Rookie

Hi Grey,

I had a major problem with biting myself and developing painful ulcers that would actually eat away and become worse before getting better. They would last 2-4 weeks and usually I bit myself again during healing. As soon as I bit myself I would get so depressed because I knew how painful the next few weeks would be and nothing seemed to help.

It took 2 years of gluten free diet and lots of B12 and vitamin D3 and finally if I do bite myself, (which is rare these days) amazingly it heals within a couple of days...it is like a miracle....and to think I have been complaining to doctors and dentists for 20 years about this problem!!!

I did find I CAN NOT eat any food processed in a gluten environment so if you have been gluten free for awhile and are still having problems try eliminating processed foods and eat totally natural....your body will thank you for this and so will your mouth!

Ozz

  • 2 weeks later...
Moustique77 Newbie

My wife has celiac disease and pernicious anemia, so she has to get the B12 injections. She says that helped a lot with the problem. She believe hers had something to do with yeast overgrowth (also had some female troubles too that went away with the B12 shots).

I also get them, but I think mine come from stomach acid overproduction. I try to change my diet to help. I also got myself a product called Ora5. It helps get rid of them pretty fast.

grey Explorer

What is ora5? Is it a topical thing? I'd like to have some on hand. It took the last batch a really long time to heal and they were excruciating. Is it over the counter?

Yeast overgrowth is interesting and I need to look in to that. I'm already on B12 injections and a low-acid diet - which improves other things, but not this, sadly.

thanks

My wife has celiac disease and pernicious anemia, so she has to get the B12 injections. She says that helped a lot with the problem. She believe hers had something to do with yeast overgrowth (also had some female troubles too that went away with the B12 shots).

I also get them, but I think mine come from stomach acid overproduction. I try to change my diet to help. I also got myself a product called Ora5. It helps get rid of them pretty fast.

Moustique77 Newbie
What is ora5? Is it a topical thing? I'd like to have some on hand. It took the last batch a really long time to heal and they were excruciating. Is it over the counter?

Yeast overgrowth is interesting and I need to look in to that. I'm already on B12 injections and a low-acid diet - which improves other things, but not this, sadly.

thanks

Yes, Ora5 is a a topical solution and they have a website at www.ora5.com Really helped me a lot. I also remembered that I switched to a natural toothpaste that doesnt contain sodium lauryl sulfate as I have read that it can influence mouth sores. Between those two things I noticed a dramatic improvement.

If you go to dentist.net they have a section for canker sores and also a selection of sls free toothpaste. Dr. Katz also sells oral products that dont contain sls or other irritating ingredients and topical treatments. He's got a site at www.drkatz.com. Hope this helps!!!

cyberprof Enthusiast

Hi Grey,

I, too, had canker sores for years. Mine were also in response to biting my mouth or sometimes with no known cause. Thought it was normal, or at least a normal response to stress. 1-2 per month. I've only had one since I went gluten free and it was right after being accidentally glutened. Funny that you have more.

However, before diagnosis, my baby brother (an MD and MPH) said to eat garlic, preferably raw. So every time I get a sore, I make home-made hummus or Greek salad or ceasar salad. Cooked garlic is less potent but helps too. It clears them up within a day and seems to help with the pain right away. Anyway, it can't hurt, unless you're allergic to garlic.

I'm also very careful with toothpaste and haven't changed mine in 10 years. Whenever I try a new one, I get mouth sores. So, you could try a new one.

And I'd try the B-12 too. I just started taking the sub-lingual version.

~Laura

Hi all,

Hoping someone might have some suggestions about coping with canker sores? I've gotten them my whole life, either with no cause or in response to mouth trauma (biting the inside of my lip, by accident, I'll usually get a canker sore on that site). Since going gluten-free, I've had more sores, and I now have a real doozy of a set on the upper left.

I'm also curious if anyone's been dx'd w/ aphthous stomatitis. I've read a little bit, but it's unclear to me whether all of these mouth ulcer are AS or only some, and how you tell.

So, if someone has an over- the-counter gluten-free remedy, or a way to get rid/less of them, or just has experience with them, I'd love to hear about it.

mandasmom Rookie
Hi Grey,

I, too, had canker sores for years. Mine were also in response to biting my mouth or sometimes with no known cause. Thought it was normal, or at least a normal response to stress. 1-2 per month. I've only had one since I went gluten free and it was right after being accidentally glutened. Funny that you have more.

However, before diagnosis, my baby brother (an MD and MPH) said to eat garlic, preferably raw. So every time I get a sore, I make home-made hummus or Greek salad or ceasar salad. Cooked garlic is less potent but helps too. It clears them up within a day and seems to help with the pain right away. Anyway, it can't hurt, unless you're allergic to garlic.

I'm also very careful with toothpaste and haven't changed mine in 10 years. Whenever I try a new one, I get mouth sores. So, you could try a new one.

And I'd try the B-12 too. I just started taking the sub-lingual version.

~Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandasmom Rookie

Chronic canker sores was what lead to my diagnosis---Ive neve had a GI problem. I have tried nearly every remedy under the sun and have found tht over the counter pain releivers such as advil are the best choice untill the sores run their course. Seems to take 5-7 days no matter what you do!!!!

grey Explorer

Thanks for the comments! I too always thought they were normal -but I'm learning a lot of quirky things I thought were normal were celiac disease.

I ran out of my old toothpaste (Crest) not long after being dx'd, and used a some small travel ones, then switched again to a full-size Crest (which I thought gave me a rxn), and then to Tom's of Maine. Maybe that's why I had more after dx - all the changing.

I know all of these have sodium laurel sulfate - I might try switching to one without.

I'm fascinated by the garlic; I haven't eaten much since dx, but maybe I'll try it with the next outbreak!

thanks

Darn210 Enthusiast

I mentioned to my daughter's dentist that she was diagnosed with Celiac and asked about the ramifications of it dental-wise. I was expecting a conversation about enamel defects, but she said she is most likely to suffer from canker sores (at least more than the average Joe). She recommended just coating them as needed with a little milk of magnesia (sp?). We haven't had to try it so I don't know if it works, but it would be easy to try since we have it in the house.

In hind sight, the amazing thing is that she new what Celiac was and didn't bat an eye.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.