-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Diagnosis confusion
Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha. Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and... -
- Scott Adams replied to CJF's topic in Gluten-Free Foods, Products, Shopping & Medications4Gluten free wheat flour????
Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive... -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines. The magnesium Threonate won't help by itself. Taking the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis. Those studies... -
- trents replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Diagnosis confusion
A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe... -
- Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Diagnosis confusion
Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.3k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha. Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and confusing. I guess the only thing about not getting the "official" diagnosis is not knowing how strict to be with CC (in my early 20s trying to think about the long term effects) but I hope starting the diet will bring some relief either way. Thanks again.
-
By Scott Adams · Posted
Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive celiacs should definitely avoid it. -
By knitty kitty · Posted
@Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines. The magnesium Threonate won't help by itself. Taking the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis. Those studies I sent show that damage at Marsh 3C or 4 will develop over a longer period of time. Newer diagnosis criteria would diagnose you with Celiac with your HLA DQ 2.5 genes and high antibody levels alone. You would benefit by following a gluten free diet. I have type two diabetes. I used to wake up with migraines if I ate high carbohydrate foods before bed. My blood glucose level stayed too high throughout the night. I'd wake dehydrated, foggy, and headachy/migraine developing the next morning. I was low in Thiamine. Thiamine is needed to make insulin. Diabetics have a greater metabolic demand for thiamine because they lose more thiamine in their urine. 98% of diabetics are thiamine deficient. Diabetes is another autoimmune disease that can accompany celiac disease. Have you had an A1C test? Eating a diet heavy in carbohydrates uses up available thiamine quickly. If you don't have sufficient thiamine, the body stores carbohydrates as fat. The SIBO bacteria flourish with a high carbohydrate diet. MCAS develops as the body fights the SIBO. Thiamine improves MCAS. Mast cells make histamine and release it as part of the inflammation response. Mast cells can become hypersensitive and release histamine at the least provocation in Thiamine insufficiency. Mast cells need Thiamine to help hold their wad. MCAS often occurs with and is exasperated by SIBO. I found the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) helps with both. This Paleo diet starves out the SIBO bacteria and calms the MCAS. If you change your diet, you change your intestinal flora. Following the AIP paleo diet and thiamine made a noticeable difference in my health fairly quickly. Thiamine works with the other B vitamins to make enzymes that keep the body functioning well. A B Complex, Vitamin C, and extra thiamine like Benfotiamine will help immensely. I hope this helps. I had to decide that my Celiac genes were switched on and causing health problems even though I did not have the high antibody levels and visible damage in my intestines needed to make a textbook diagnosis. You know your body best. I knew Celiac was my problem. I made the necessary changes and feel much better for it. -
A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe that NCGS can be a precursor to celiac disease so, if that is true, you may be in a transition phase. In view of how this has unfolded for you, I would suggest going whole hog into a gluten free diet commitment and see what impact it has on your symptoms. This may be of help in getting a a jump start in eating gluten free:
-
Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more than the 2 slices during the workweek. I had hoped that doing this for ~9 weeks would be enough, since I only did 2 weeks for the first scope earlier this year. Yes, the doctor who did the actual scope and told me about what she saw immediately after is the same doctor who reviewed the pathology report.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.