Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seizures And Migrains


livvie2sha

Recommended Posts

livvie2sha Newbie

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

They could be related.

Quoting Peter Green, head of the Celiac Disease Center at Columbia, Celiac Disease: A Hidden Epidemic:

p 86-87

"The well-defined neurological associations with celiac disease include the following:

- peripheral neuropathies (numbness and/or tingling in the hands and feet)

- ataxia (balance disturbance)

- epileptic seizures, with and without intracranial calcifications (calcium deposits in the brain), particularly in children

- migraines

- brain atrophy and dementia

Any one of these complications may affect as many as 8 to 10 percent of people with celiac disease."

On p. 87-89 he talks briefly about epilepsy & seizure, and migraines.

One thing on p88 "The relationship between epilepsy and celiac disease may be simply be the occurrence of two relatively common diseases in the same patient. For others, especially in children, the connection is more clearly defined."

There are definately studies on celiac and migraines, and celiac and seizures, but I don't have access to medline now. Someone may post links to some in the this thread.

I have severe migraines that weren't resolving after years of drug therapy-no meds would help. (I've tried all kinds of things, including anti-epileptic drugs). That and a B12 deficiency were what caused my primary care physician to test for celiac.

I've been gluten-free since the end of May. I had a set of bad migraines right before going in the hospital and getting treatment for 'celiac complications' which including severe vitamin and mineral deficiences. Since then (in the past month) I've only had one (lasted 2 1/2 days though) and it was mild. It was clearly triggered by having gotten only about an hour of sleep and allergies.

Has your daughter been dx'd with celiac? Most important, has she had vitamin and mineral levels checked lately? If she's deficient, that could definately be causing or adding to her condition. B12, potassium, and magnesium are just 3 that are related to migraine; other nutrient def. also have severe effects on the neurol. system.

It's definately not just you and your family. I hope your daughter's health improves.

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Going for upper endoscopy today

    3. - elisejunker44 commented on Scott Adams's article in Latest Research
      1

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Borky posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748

    powergs03
    Newest Member
    powergs03
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
      Surge of information on benefits of vitamin D McCarthy has been employing these methods since February 2007, and patient acceptance has been high. He said he checks each patient’s 25(OH)D level and supplements to reach a target of 80 ng/mL in adults and children. Of the first 1,500 patients McCarthy tested, 40% began with vitamin D levels less than 20 ng/mL and 70% less than 35 ng/mL. Only 1% initially had values within his target range. According to McCarthy, his target range is based upon several factors: A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; Data in patients with breast cancer showing a reduction in the incidence of new cancer with postulated 0 point at 80 ng/mL; Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL; More than 200 polymorphisms of the vitamin D receptor requiring higher D levels to attain same desired outcomes;
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.