Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seizures And Migrains


livvie2sha

Recommended Posts

livvie2sha Newbie

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

They could be related.

Quoting Peter Green, head of the Celiac Disease Center at Columbia, Celiac Disease: A Hidden Epidemic:

p 86-87

"The well-defined neurological associations with celiac disease include the following:

- peripheral neuropathies (numbness and/or tingling in the hands and feet)

- ataxia (balance disturbance)

- epileptic seizures, with and without intracranial calcifications (calcium deposits in the brain), particularly in children

- migraines

- brain atrophy and dementia

Any one of these complications may affect as many as 8 to 10 percent of people with celiac disease."

On p. 87-89 he talks briefly about epilepsy & seizure, and migraines.

One thing on p88 "The relationship between epilepsy and celiac disease may be simply be the occurrence of two relatively common diseases in the same patient. For others, especially in children, the connection is more clearly defined."

There are definately studies on celiac and migraines, and celiac and seizures, but I don't have access to medline now. Someone may post links to some in the this thread.

I have severe migraines that weren't resolving after years of drug therapy-no meds would help. (I've tried all kinds of things, including anti-epileptic drugs). That and a B12 deficiency were what caused my primary care physician to test for celiac.

I've been gluten-free since the end of May. I had a set of bad migraines right before going in the hospital and getting treatment for 'celiac complications' which including severe vitamin and mineral deficiences. Since then (in the past month) I've only had one (lasted 2 1/2 days though) and it was mild. It was clearly triggered by having gotten only about an hour of sleep and allergies.

Has your daughter been dx'd with celiac? Most important, has she had vitamin and mineral levels checked lately? If she's deficient, that could definately be causing or adding to her condition. B12, potassium, and magnesium are just 3 that are related to migraine; other nutrient def. also have severe effects on the neurol. system.

It's definately not just you and your family. I hope your daughter's health improves.

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      31

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis
      3

      Need advice for some relief!

    3. - trents replied to MoniqueCham's topic in Related Issues & Disorders
      1

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    4. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      31

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,526
    • Most Online (within 30 mins)
      7,748

    Denisemariemoe
    Newest Member
    Denisemariemoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
    • Jmartes71
      Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
    • trents
      Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
    • Peggy M
      I am monitored for this value of Vit D.  I kept going down so the Vit D had to be increased.
    • MoniqueCham
      I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well to entocort. I have a number of autoimmune conditions including systemic granuloma annulaire (a skin condition) which was treated with methotrexate. I was on a low dose of methotrexate (15 mg once a week with folic acid every day when not taking methotrexate). In 5 months my sigmoid colon ruptured. Pathology reports show that I had significant necrosis of my sigmoid bowel due to no known cause and a large hole in the bowel. My surgeons felt that the methotrexate may have caused the damage and rupture to my bowel (1 in a million chance). My question is has anyone experienced similar issues with methotrexate given that the integrity of our intestines may be compromised in celiac disease?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.