Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seizures And Migrains


livvie2sha

Recommended Posts

livvie2sha Newbie

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

They could be related.

Quoting Peter Green, head of the Celiac Disease Center at Columbia, Celiac Disease: A Hidden Epidemic:

p 86-87

"The well-defined neurological associations with celiac disease include the following:

- peripheral neuropathies (numbness and/or tingling in the hands and feet)

- ataxia (balance disturbance)

- epileptic seizures, with and without intracranial calcifications (calcium deposits in the brain), particularly in children

- migraines

- brain atrophy and dementia

Any one of these complications may affect as many as 8 to 10 percent of people with celiac disease."

On p. 87-89 he talks briefly about epilepsy & seizure, and migraines.

One thing on p88 "The relationship between epilepsy and celiac disease may be simply be the occurrence of two relatively common diseases in the same patient. For others, especially in children, the connection is more clearly defined."

There are definately studies on celiac and migraines, and celiac and seizures, but I don't have access to medline now. Someone may post links to some in the this thread.

I have severe migraines that weren't resolving after years of drug therapy-no meds would help. (I've tried all kinds of things, including anti-epileptic drugs). That and a B12 deficiency were what caused my primary care physician to test for celiac.

I've been gluten-free since the end of May. I had a set of bad migraines right before going in the hospital and getting treatment for 'celiac complications' which including severe vitamin and mineral deficiences. Since then (in the past month) I've only had one (lasted 2 1/2 days though) and it was mild. It was clearly triggered by having gotten only about an hour of sleep and allergies.

Has your daughter been dx'd with celiac? Most important, has she had vitamin and mineral levels checked lately? If she's deficient, that could definately be causing or adding to her condition. B12, potassium, and magnesium are just 3 that are related to migraine; other nutrient def. also have severe effects on the neurol. system.

It's definately not just you and your family. I hope your daughter's health improves.

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    2. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      Blood results

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    4. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,569
    • Most Online (within 30 mins)
      7,748

    Denise F
    Newest Member
    Denise F
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly.  A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly.  It's very rare to have only one or two low vitamins in Celiac Disease.  B vitamins are water soluble, so any excess is easily excreted in urine.  Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible!   The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression.  Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12.  This precipitates a B12 deficiency in people with a low B12 level.  This can happen immediately, within days or weeks or months depending on B12 stores.    I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure.  My doctor put me on antidepressants which only made things worse.  Antidepressants don't correct a vitamin deficiency.   Please have her checked for B12 deficiency as soon as possible!"  
    • knitty kitty
      I'm so glad your daughter got her B12 level checked at last!  
    • Heatherisle
      Hi  Daughter finally had her B12 checked and her level was 30, normal range 180-200 so GP has prescribed medication for 4 weeks then further blood test so that probably accounts for how awful she’s been feeling recently. Folate was 2.2 just below the range of 3.0 - 20 so will need folic acid. Think iron levels were borderline but don’t know the numbers. Not sure if it was Ferritin levels they did. History of haemochromatosis in family , my husband has it and other daughter is a carrier. She still has a few more blood tests to be taken including Vit D levels. Has had deficiency in that last year and had 6 month course as had back pain and tingling in feet and hands. Anyway thank you everyone for all your previous replies and help!!!!
    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.