Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acupuncture For celiac disease

geeze

By geeze
in Coping with Celiac Disease

Recommended Posts

geeze Rookie
geeze
Posted

I was diagnosed 3 months ago with celiac disease confirmed by blood test. My primae is a good doctor but admittedly doesn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


melmak5 Contributor
melmak5
Posted

I have been going to an acupuncturist for just over 2 months now. (I was dx with celiac 1 month ago)

Through this hell of tests, doctors, drugs and random dietary restrictions, acupuncture was the ONLY relief from the pain I got. After the 2nd session I slept through an entire night without waking up burp/vomit or having to readjust positions because of pain.

He actually suggested avoiding all grains, except brown rice, and eating plain steamed veggies and meat, from the start (I only wished I had listened to him earlier).

I am still in pain, still having horrible digestive problems, but the day or two of relief post-acupuncture is worth every penny.

PS - I have a horrible fear of needles and it took a lot for me to walk through the door, but he was so patient with me and the FIRST person I told my symptoms to who didn't try to discredit them or me. Oh, and the "needles" are not like hospital needles at all, and don't "hurt" in the traditional sense.

Guest j_mommy
Guest j_mommy
Posted

Are you doing accupuncture to "cure" the Celiac or to help the healing process????

I believe in it as a way to help the healing process and know that it helps with many other diseases!!!

Generic Apprentice
Generic
Posted

Accupuncture is wonderful for helping with celiac. I was diagnosed 19 years ago, and through the years I have accidently been glutened more times than I care to remember. I would get so sick, I would end up in the ER with severe vomitting and diarrhea. As the years progressed it was getting worse. To the point of I would end up delirious from dehydration within an hour of getting glutened. The last 2 times I had gone in, they thought I was going to die due to my blood pressure dropping so low.

Shortly after the last incident, I started accupuncture. Not only was she able to calm down my glutening reactions she cured my allergies and helped with sinus infection, dental pain and anxiety. I saw her for about 7 months. I wish I could afford to go back, just for up keep and other health problems that have arisen since. Now if I accidently get glutened, I get more of a "normal" reaction. Diarrhea and stomach cramps. They aren't severe like they used to be either.

As you heal and get better, you will have to go less and less.

I used to tell her she is worth her weight in gold. She changed my life!

ravenwoodglass Mentor
ravenwoodglass
Posted

Before I knew I was celiac I saw an acupuncturist for a a few months. While the relief I got was short lived, I was not gluten-free yet, it was remarkable. The thing I found most astounding was that when I would walk in I would be covered in purple splotches, livido reticularis, as he was doing the treatments the splotches would fade and after I left the office it would be hours before they would reappear. It was so amazing he took pictures. That alone made a believer out of me.

I am now about to start treatments again, I have never fully recovered from a bout of diverticulitis and consequent (unnneeded) med induced pancreatitis that I had last spring. I have no gluten symptoms at all but still not digesting properly. I am hopeful that between him and Enterolab we can get the old system back on track.

Babygirl6915 Explorer
Babygirl6915
Posted

I recently found out I can use my FSA or HSA card to pay for acupuncture treatments so I will be doing so very soon. I had received acupuncture before for migraines & it worked wonders. Hopefully this will help with some of my other allergy issues & my gut issues. I am glad to see others who have found this helpful!

geeze Rookie
geeze
Posted
  • Author
Are you doing accupuncture to "cure" the Celiac or to help the healing process????

I believe in it as a way to help the healing process and know that it helps with many other diseases!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


geeze Rookie
geeze
Posted
  • Author
Are you doing accupuncture to "cure" the Celiac or to help the healing process????

I believe in it as a way to help the healing process and know that it helps with many other diseases!!!

melmak5 Contributor
melmak5
Posted

Originally, I started to help figure out what was wrong. I continue because it helps with the symptoms.

Mostly the abdomen pain, bloating and D/C.

I have also found it amazingly helpful for relaxation. (also helps to sleep easier... although posting at 2am may be counter indicating)

sparkles Contributor
sparkles
Posted

I am glad to see that some of you have had some success with acupuncture. I tried it (sans Insurance) and it was not helpful and the cost was over the top.... several times a week for several months. I went for nueropathy and would have continued had there been some improvement. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
    3. Wheatwacked
      - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...
    4. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    5. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748
    Greg R.
    Newest Member
    Greg R.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.