Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Get Worst?


7-cody

Recommended Posts

7-cody Apprentice

Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I'm 24 and was diagnosed in april. My Gma has celiac and her symptoms have stayed the same through the years(ie she just got tested when I found out and doesn't want to do the diet...she figures she dealt with it this long and will continue the way she is...don't blame her).

The risks get higher the longer you go undiagnosed.....ie lymphomas,more damage to the intestines ect!!

Lisa Mentor
Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst

Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

7-cody Apprentice
Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

Yeah that's pretty much what I figured... :D

GeoffCJ Enthusiast

I was diagnosed at 31, but have had symptoms since I was in college. Maybe 19 years old or so. Didn't get diagnosed. Symptoms got worse, and I got more of them. around 6-7 years ago, I started having issues with Periphial (sp?) Neuropathy. I get painful tingling and numbness in my hands and feet.

Since going gluten-free, most of my symptoms have gotten better, but I am still having issues with the Neuropathy. It coems and goes, but is frequently still pretty severe. Some times I think it's getting better, sometimes I'm not sure. At this point, I'm hoping it isn't completely permanent.

I'd say it's like driving a car with low oil. The earlier you figure it out, the better, but it probably has more to do with the time between onset and diagnosis, perhaps not as much as the age at which you get it.

It does seem likely to my non-doctor mind that having undiagnosed celiacs during times of large body changes (growth, puberty, pregnancy, etc) might have larger implications than perhaps during times where there is less change (like as an adult).

Geoff

Betty in Texas Newbie

I think the older you are before being dignosed the more damaged you would have and more chances of having intiestional canser. I was 53 and always had it the dr said. I can rember going on road trips with partents when I was small and always said I waould get car sick and throu up well that is because we would stop on the way and eat the hamburgers. So it wasn't car sick it was sick with celiac.

Queen Serenity Newbie

I agree with everyone. The later the diagnosis, the worse off you could be. I was diagnosed at the age of 28. Six years later, I was diagnosed with hypothyroidism. So, the younger, the better. You are really lucky, and I hope that you stay healthy! :)

Vicki

G.F. since Sept. 1995


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.