Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Get Worst?


7-cody

Recommended Posts

7-cody Apprentice

Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I'm 24 and was diagnosed in april. My Gma has celiac and her symptoms have stayed the same through the years(ie she just got tested when I found out and doesn't want to do the diet...she figures she dealt with it this long and will continue the way she is...don't blame her).

The risks get higher the longer you go undiagnosed.....ie lymphomas,more damage to the intestines ect!!

Lisa Mentor
Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst

Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

7-cody Apprentice
Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

Yeah that's pretty much what I figured... :D

GeoffCJ Enthusiast

I was diagnosed at 31, but have had symptoms since I was in college. Maybe 19 years old or so. Didn't get diagnosed. Symptoms got worse, and I got more of them. around 6-7 years ago, I started having issues with Periphial (sp?) Neuropathy. I get painful tingling and numbness in my hands and feet.

Since going gluten-free, most of my symptoms have gotten better, but I am still having issues with the Neuropathy. It coems and goes, but is frequently still pretty severe. Some times I think it's getting better, sometimes I'm not sure. At this point, I'm hoping it isn't completely permanent.

I'd say it's like driving a car with low oil. The earlier you figure it out, the better, but it probably has more to do with the time between onset and diagnosis, perhaps not as much as the age at which you get it.

It does seem likely to my non-doctor mind that having undiagnosed celiacs during times of large body changes (growth, puberty, pregnancy, etc) might have larger implications than perhaps during times where there is less change (like as an adult).

Geoff

Betty in Texas Newbie

I think the older you are before being dignosed the more damaged you would have and more chances of having intiestional canser. I was 53 and always had it the dr said. I can rember going on road trips with partents when I was small and always said I waould get car sick and throu up well that is because we would stop on the way and eat the hamburgers. So it wasn't car sick it was sick with celiac.

Queen Serenity Newbie

I agree with everyone. The later the diagnosis, the worse off you could be. I was diagnosed at the age of 28. Six years later, I was diagnosed with hypothyroidism. So, the younger, the better. You are really lucky, and I hope that you stay healthy! :)

Vicki

G.F. since Sept. 1995


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748

    sturfninja
    Newest Member
    sturfninja
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.