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Abdo Pain

Luisa2552

By Luisa2552
in Coping with Celiac Disease

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Luisa2552 Apprentice
Luisa2552
Posted

Hello all,

I am wondering if anyone has experienced what I am. I have had a pain in my upper left abdomen for many, many months. It's what got me into the GI in the first place and started me on the Celiac track. My bloodwork came back positive and my trial gluten-free 10 days or so were amazing. Had my biopsies 10 days ago (i was back on gluten about a month prior to biopsies) ANyway, I've been mostly gluten-free about 10 days. I say mostly because I'm still new to this and I have been making mistakes here and there. Just last night my daughter offered me a bite of her veggie burger and without thinking I tried it! Duh!! The pain in my upper abdomen is still there. The doc said the endoscopy looked clean. Maybe it had nothing to do with celiac disease? Maybe I have to be gluten-free longer? Before I sow the GI I had a abdo. ultrasound and it didn't see anything, so I'm starting to think it's all in my head!??

Another question. I have run across may sites that list gluten-free products. One i was especially interested in was Peets coffee because I feel terrible after having my beloved Mocha so I figured it was something in the syrup. But Peets claims all their syrups are gluten-free. Does that include the artificial colors and flavors in those syrups? Would they know if the source was gluten-free? I read that if they are not form North America, they could have gluten...

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ravenwoodglass Mentor
ravenwoodglass
Posted

It is not in your head, I repeat it is not in your head. The veggie burger is most likely the cause and you may end up experiencing an increase in some of your other gluten related problems too. The best thing I have found for this pain is pepto bismal, name brand. It gets rid of the pain for me in one dose and usually it doesn't return. You may also end up with D within a couple of days, or C if that is how your system reacts.

It is hard at first to get used to and gluten is hidden in so many things. Everything from yogurt to hair dye, orange juice to playdoh, imitation crab to lotions and the list goes on and on. It can be hard but this is a good place to read, ask questions and get knowledge and support.

Meanwhile try not be to hard on yourself and don't forget that nasty gluten can be a neurotoxin so if you seem very anxious or depressed that is part of the reaction and it will pass.

I hope you feel better soon.

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    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
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      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
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      By Dr. Gunn · Posted

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      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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