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Abdo Pain


Luisa2552

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Luisa2552 Apprentice

Hello all,

I am wondering if anyone has experienced what I am. I have had a pain in my upper left abdomen for many, many months. It's what got me into the GI in the first place and started me on the Celiac track. My bloodwork came back positive and my trial gluten-free 10 days or so were amazing. Had my biopsies 10 days ago (i was back on gluten about a month prior to biopsies) ANyway, I've been mostly gluten-free about 10 days. I say mostly because I'm still new to this and I have been making mistakes here and there. Just last night my daughter offered me a bite of her veggie burger and without thinking I tried it! Duh!! The pain in my upper abdomen is still there. The doc said the endoscopy looked clean. Maybe it had nothing to do with celiac disease? Maybe I have to be gluten-free longer? Before I sow the GI I had a abdo. ultrasound and it didn't see anything, so I'm starting to think it's all in my head!??

Another question. I have run across may sites that list gluten-free products. One i was especially interested in was Peets coffee because I feel terrible after having my beloved Mocha so I figured it was something in the syrup. But Peets claims all their syrups are gluten-free. Does that include the artificial colors and flavors in those syrups? Would they know if the source was gluten-free? I read that if they are not form North America, they could have gluten...


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ravenwoodglass Mentor

It is not in your head, I repeat it is not in your head. The veggie burger is most likely the cause and you may end up experiencing an increase in some of your other gluten related problems too. The best thing I have found for this pain is pepto bismal, name brand. It gets rid of the pain for me in one dose and usually it doesn't return. You may also end up with D within a couple of days, or C if that is how your system reacts.

It is hard at first to get used to and gluten is hidden in so many things. Everything from yogurt to hair dye, orange juice to playdoh, imitation crab to lotions and the list goes on and on. It can be hard but this is a good place to read, ask questions and get knowledge and support.

Meanwhile try not be to hard on yourself and don't forget that nasty gluten can be a neurotoxin so if you seem very anxious or depressed that is part of the reaction and it will pass.

I hope you feel better soon.

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    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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