Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdo Pain


Luisa2552

Recommended Posts

Luisa2552 Apprentice

Hello all,

I am wondering if anyone has experienced what I am. I have had a pain in my upper left abdomen for many, many months. It's what got me into the GI in the first place and started me on the Celiac track. My bloodwork came back positive and my trial gluten-free 10 days or so were amazing. Had my biopsies 10 days ago (i was back on gluten about a month prior to biopsies) ANyway, I've been mostly gluten-free about 10 days. I say mostly because I'm still new to this and I have been making mistakes here and there. Just last night my daughter offered me a bite of her veggie burger and without thinking I tried it! Duh!! The pain in my upper abdomen is still there. The doc said the endoscopy looked clean. Maybe it had nothing to do with celiac disease? Maybe I have to be gluten-free longer? Before I sow the GI I had a abdo. ultrasound and it didn't see anything, so I'm starting to think it's all in my head!??

Another question. I have run across may sites that list gluten-free products. One i was especially interested in was Peets coffee because I feel terrible after having my beloved Mocha so I figured it was something in the syrup. But Peets claims all their syrups are gluten-free. Does that include the artificial colors and flavors in those syrups? Would they know if the source was gluten-free? I read that if they are not form North America, they could have gluten...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is not in your head, I repeat it is not in your head. The veggie burger is most likely the cause and you may end up experiencing an increase in some of your other gluten related problems too. The best thing I have found for this pain is pepto bismal, name brand. It gets rid of the pain for me in one dose and usually it doesn't return. You may also end up with D within a couple of days, or C if that is how your system reacts.

It is hard at first to get used to and gluten is hidden in so many things. Everything from yogurt to hair dye, orange juice to playdoh, imitation crab to lotions and the list goes on and on. It can be hard but this is a good place to read, ask questions and get knowledge and support.

Meanwhile try not be to hard on yourself and don't forget that nasty gluten can be a neurotoxin so if you seem very anxious or depressed that is part of the reaction and it will pass.

I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    4. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,717
    • Most Online (within 30 mins)
      7,748

    Lellymay
    Newest Member
    Lellymay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.