Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need To Vent


JennyC

Recommended Posts

JennyC Enthusiast

My son has been on the gluten free diet for five months now, and nearly everything that I make is gluten free. I feel that I'm getting pretty good at cooking and baking gluten free. My MIL lives 10 minutes away, but we never see her. I thought that we should involve her more, so I invited her over for dinner. I served a good dinner, fried chicken, mashed potatoes, etc. At the end of dinner she says "sometimes you forget how good gluten really is." I made lemon meringue pie for dessert with a gluten-free graham cracker and pecan crust. It really was delicious. She only ate half her piece and said that she would take the rest home. As she was leaving one of my other guests asked if she wanted to take it home and she said no.

What I'm most mad about was her behavior at my son's forth birthday party yesterday. I made a gluten-free chocolate cake which I worked REALLY hard on and I even decorated it by myself, my first time ever, when she stood me up. At the party she said about my cake "I'm not sure if I like the texture...The texture's kind of weird. It's really rich" in a snobby tone to her friend. On top of that she didn't interact with my son, and she didn't even bring a card..let alone a gift. Not meaning to sound superficial, but if I was her I would at the very least bring a card for my grandson on his birthday! What did she come for, to criticize my food?!

I guess it is everything adding up that is making me so mad. It's hard enough that my son has to eat gluten free and feel different. He was not going to feel different at his party, and for her to talk bad about the cake that I put SO MUCH effort into really makes me mad and hurts my feelings.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

I can totally relate! It is so annoying and RUDE when people criticize this diet and what we eat. Most of the time the food is healthier than glutenous food. Hang in there!

Kassandra

jerseyangel Proficient

Jenny,

I don't know--some of this stuff just defies explanation :(

The woman sounds insecure to me--I'm sorry you have to deal with this. I agree that the worst thing is that she couldn't even be bothered to bring her own grandson a card or a gift on his birthday. How would she have liked it it you criticized her out loud for that? <_<

I do want to say that your dinner sounded delicious to me :D

Guest j_mommy

I agree with previous posters!!!!

THe least she could do is suck it up and put on a good face for her grandson and not make him feel more different!!!

THe sad thing is that if people give gluten-free a Food a serious try....alot of the times it tastes the same if not better than Gluten food.

I'm sorry she is being sooooo rude to you!!!

tarnalberry Community Regular

I'll be the dissenter on the cake front. That's something I would have been willing to hear (or say) - in a friendly tone - regardless of the gluten-free status. If you don't like a particular food, it's not necessarily offensive to say it, depending on the context. She may think that, because you're 'related', she can. My mother in law can *certainly* tell me something like that about my cooking, and knows that I'd want to hear it. But that's a matter of relationship level, not the comment itself.

gfpaperdoll Rookie

Some women do not make good grandmothers. She sounds like one of those. I would delete her from any invite list. No need to put up with her insensitive remarks. In not coming around she is saying that she is not interested in your family.

Does your son have two celiac genes? You should consider that her brain might be messed up from all the gluten & she could be in the early early alzheimer stages. You know when you look back on someone that gets alzheimer, you can almost always spot that there was a little something odd about them for years before that. I know a guy that is 35 & I think that he is in early stages of alzheimer with his weirdness & unprovoked unusually strong outbursts of anger. You know alzheimers does not just developre in one day...

a lesson that I recently learned at the advanced age of 60, is that you are not going to get along with everyone & that is okay, best to quit trying.

melmak5 Contributor

Wow, its really amazing how selfish and self-centered some people are that they cannot see beyond their own noses.

I am really sorry you had to deal with this. I am sure your son really appreciated all the effort, or just was able to be "normal" by having cake!

I know family is always a touchy subject, but she should not disrespect you or your son, especially in your own home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Jenny you are right she does need some manners and quick. The dinner sounded real good, next time invite us and leave her home. I bet your son may not have even noticed about the card/gift (although it was rude) he seems as if he is surrounded by love with the rest of your family. :)

JennyC Enthusiast

Thanks guys...she's not grandmother material. My son barely knows her and I was trying to change that, but obviously she is not putting in much effort. I was so annoyed because she was talking behind my back about my food, which everyone else liked. I can take positive criticism but this was not what was going on. She should just be happy that her grandson has a mother that loves him enough to put massive amounts of effort into his diet. We, as parents of children with celiac disease, put so much caring into our children's' food and lifestyle. I think that she has officially received her last dinner invitation, at least for a while. Although I must admit that I would not be too excited to accept an invitation from her either because the last time we did she had tons of store bought cookies everywhere. Their family never thinks about my son. I know it is not necessarily their obligation, but he is family so they should want to!

About the double gene...I wish I knew. But it seems very likely. :lol:

kbtoyssni Contributor

I'd also stop inviting her to dinner. You really don't need that sort of negative influence in your or your son's life.

One thing I very much dislike is when people say that gluten food tastes better and why would they want to eat any of my "yucky" gluten-free food. I just want to snap back that they eat plenty of naturally gluten-free food and love it (like chicken or veggies or nachos). It's just when it's got a gluten-free label on it that it becomes yucky. And yes, cakes and cookies often have a slightly different texture, but that doesn't make it taste bad. These are people who might be perfectly happy eating a new dish at a restaurant, but unwilling to try a new type of cake when it's labeled gluten-free.

zarfkitty Explorer

I can relate, JennyC. At my sister's recent wedding, I made a gluten-free, dairy-free cake and decorated it myself. Tiered and everything. (My sister is playing with gluten-free; I hope she decides to do it permanently.)

My mom brought the groom's cake (which was gluten). She bought it straight out of the refrigerator case at Walmart and wrote something silly on it with an icing pen.

She told me straight to my face that people would probably rather have the store-bought cake.

Just for anyone who's keeping score... I got asked for my recipe MULTIPLE times by people who had no idea it was a gluten-free cake, even though my mom was totally rude about it.

It takes time to shrug these sort of behaviors off. It helps to remember it's usually a power struggle in the head of the person behaving rudely and has nothing to do with you personally. Just remember her behavior when you're in control of the guest list. ;)

JennyC Enthusiast
I can relate, JennyC. At my sister's recent wedding, I made a gluten-free, dairy-free cake and decorated it myself. Tiered and everything. (My sister is playing with gluten-free; I hope she decides to do it permanently.)

My mom brought the groom's cake (which was gluten). She bought it straight out of the refrigerator case at Walmart and wrote something silly on it with an icing pen.

She told me straight to my face that people would probably rather have the store-bought cake.

Just for anyone who's keeping score... I got asked for my recipe MULTIPLE times by people who had no idea it was a gluten-free cake, even though my mom was totally rude about it.

It takes time to shrug these sort of behaviors off. It helps to remember it's usually a power struggle in the head of the person behaving rudely and has nothing to do with you personally. Just remember her behavior when you're in control of the guest list. ;)

Yeah, I'd love to cut her off of the guest list but I really shouldn't. But who knows how I'll be feeling next year... B)

I'm sorry about your experience. People don't realize how much work gluten free baking can be. It's not as if we throw in some rice flour and call it a day. I can't imagine how mad you must have been after she said that about a wedding cake!

Is there any way that I could possibly get that wonderful cake recipe? :) I would be very appreciative.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,407
    • Most Online (within 30 mins)
      7,748

    Ripken
    Newest Member
    Ripken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pablohoyasaxa
      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
    • Wends
      Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage.” NO - this is OCD brain at its best! Hijacking your thoughts and justifying it because of the very real fear of gluten contamination. That’s OCD all over. Like a devil in the driving seat. Fears that are based on some kind of reality are hard to argue with. Boss it back! Recognise this for what it is. OCD using fear of gluten as its excuse to keep you entrapped. Own the OCD in this scenario, don’t let it own you. Normal cleanliness rules apply. Washing your hands before you handle food you’re putting in your mouth is fine. Washing after the gym is normal. Once daily cleansing wipe of your phone etc. Even if you did go rubbing your hands all over surfaces and licking them there might be a trace exposure to gluten possible. But I’m guessing you don’t usually do that sort of thing. Even if you inadvertently were to ingest trace gluten - it won’t be enough to do damage, no. It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. Having said that, there is nuance and personal tolerance threshold. If you’re super sensitive “may contain gluten” labelling is a godsend. But this kind of labelling is more aimed at informing customers with type 1 food hypersensitivity/ allergy reactions. The company is basically legally covering themselves, because there may be a risk of cross contamination. Not to be confused that it means there is cross contamination. In addition to products being labelled gluten free. Many products that are labelled can still contain gluten by the way - in fact any processed products labelled gluten free can still contain the allowable level of gluten (up to 20 parts per million according to Codex). A study was done not too long ago that showed gluten free processed products such as cereals, breads, flours etc. can and some are in fact contaminated and have above the legal allowable amount of gluten in them. While most gluten free products are fine for most celiac patients and tolerated, highly sensitive patients fail to heal fully if relying on processed gluten free products. The trace gluten exposure adds up for someone eating a typical western diet of gluten free cereal for breakfast, gluten free sandwich for lunch, gluten free pasta or pizza for dinner for example day after day, week after week. This is why, at least in the beginning after diagnosis, the gluten free diet should be one of whole real food - food that does not require a label. Meats, oily fish, eggs, beans, natural gluten free complex carbohydrates and vegetables according to custom and taste. Limit fruit as fructose worsens leaky gut and has been hypothetically linked to increased OCD and ADHD - Professor Richard Johnson published study on this recently. “7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful?” NO and YES. What you listed as your current, limited diet is nutrient poor. Correct it as soon as possible for your own sake and future health! Ditto what others have replied regarding vitamin and minerals that are lacking in malabsorption syndromes like celiacs and need replenishing. Gluten free products are not fortified. You were likely healthier, dare I say it, on a gluten containing diet for this reason. Your brain , and gut for healing and maintenance, needs lots of nourishment from omega 3s, B complex vitamins, folate, B12, iron, selenium etc. Meats, fish, natural fats that come with, do not fear - the brain is made of fat. Limit sugar, seed oils, and high glycemic cereals and fruit like bananas unfortunately as they can cause blood sugar highs and lows that can worsen anxiety in some people. Refined carbohydrates should be limited for the same reason. Fructose and simple sugars in excess feed the unhealthy gut bugs that wreak havoc with anxiety disorders like OCD. White potatoes can be problematic for some, also. It can take six weeks of elimination to see improvements. Note, consult your physician regards insulin adjustment if you reduce carbohydrates in the diet. Dr Bernstein diabetes protocol has worked for thousands. Ketogenic and low carbohydrate diets for mental and neurological conditions have shown improvements. Limited studies have and are being conducted under metabolic psychology and nutritional psychology. In a good proportion of anxiety disorders, mental, and neurological conditions including dementias, the brain is lacking nutrition and usable energy, not a drug. Similar in many autoimmune conditions, including celiacs, the prevailing hypothesis is that gut inflammation and resultant permeability allowing exposure to antigens begets triggering the genetically susceptible immune system response. Modern lifestyle exposure, one of the biggest being the food we choose to eat plays a huge role. Avoid ultra processed products, high in seed oils, refined grains, and sugar. Not just gluten can cause a leaky gut. Fructose, alcohol, egg white lysozyme, emulsifiers, added gums, the list goes on. “8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if it’s gluten or something else but our dish washer doesnt seem to make it completely clean.” If in doubt have your own cutlery set, plate and dishes etc. for your sole use that you handwash yourself. Carry a camping fork/spoon set when out and about if needed. “9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.” That’s a classic OCD fear. Nothing to do with gluten as such. OCD brain is using gluten as the excuse here. I personally have the habit of using a cleansing wipe or dust cloth on my phone, nightly, that eases this sort of worry. For example a micro fibre dust cloth will do the trick, keep one on your nightstand? They are antibacterial as particles cling to the cloth. “10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers.”  NO. But again these OCD thoughts are hard to argue with. If in doubt, just a quick wipe with a cloth daily should suffice. Normal cleanliness practice. But if you don’t, or forget, don’t sweat the small stuff. “11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.” Better if it is gluten free, yes. “12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc.” Still safe if do not explicitly contain gluten grains / derivatives AND if within the use by and use within dates. “I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore.” Really hope these replies to your questions help. Just remember, in the midst of overwhelming thoughts and darkness under OCD clouded vision, the light and sunshine is always shining above. Take a moment or two when you are able in each day - even if it’s last thing at night - to meditate. Focus on something that you enjoy and appreciate. Or sit in a quiet space and try to relax and tune in to your higher self. Ask for guidance and soothing from your guardian angel. Over time it works but don’t worry if your brain is anxious. Eventually it will quieten down some. Try to focus on a real food, nutrient dense and naturally gluten free diet, this will help your anxiety and future health in the long run. Please eat real food - not cornflakes and sandwiches. Eat a steak, eggs or fish for example. Gluten exposures may happen, but don’t sweat it, dust yourself off so to speak, and carry on with a natural gluten free diet as best you can. Own your OCD don’t let it own you! Similarly, when it comes to a gluten free diet for celiac disease, own the process, don’t let it own you! You’re 18. That’s great. I’ve been managing OCD since childhood (in my 40s now. Many years of research, trial and error so to speak. Diet makes a difference. To quote Doc Brown to teenagers Marty and Jennifer, ‘ …your future hasn’t been written yet. No one’s has. It’s whatever you make it. So make it a good one.’
    • maryannlove
      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this relevant/helpful on Celiac.com.    
    • KimMS
      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
×
×
  • Create New...