Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eye Infections Anyone?


Celiaction

Recommended Posts

Celiaction Rookie

Just wondering if anyone else gets this weepy, itchy, gooey, publicly embarassing problem.

I consistently get what seems to be an eye infection when poisoned (glutened). It may be an opportunistic infection (immune system busy elsewhere) or a more direct symptom.

There's extreme times when my eyes swell shut. And that old adage of "don't rub it" doesn't apply cause I just have to get these painful strings of goo out to survive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
Just wondering if anyone else gets this weepy, itchy, gooey, publicly embarassing problem.

I consistently get what seems to be an eye infection when poisoned (glutened). It may be an opportunistic infection (immune system busy elsewhere) or a more direct symptom.

There's extreme times when my eyes swell shut. And that old adage of "don't rub it" doesn't apply cause I just have to get these painful strings of goo out to survive.

You ought to be tested for Sjogren's Syndrome, which is another of those wonderful autoimmune diseases one can get along with Celiac. It is a simple blood test.

My eyes were incredibly screwed up a couple of years back, before I was diagnosed with celiac disease. I started to suffer from attacks of conjunctivitis when the mold count was high. I also have severe mold allergies that always seemed to affect my eye's the worst. I didn't know it at the time but I also had Sjogren's. My eye's would become brick red, like a hell hound, and would have some discharge, although small. They would feel sticky and sometimes I'd wake up and they would be sealed shut.

After going gluten-free and starting on Restasis eye drops for the dryness, they have improved dramatically and rarely bother me much. Only on very humid days do they become slightly red.

I wish you luck as it is horrible not to have your eyes be well.

Guest kivmom3

I used to work in the eye care field as a nurse so this is what i think:

You may be getting recurrent conjunctivitis infections due to an allergic response. I guess it could occur with being glutened since tons of things can happen when one is glutened. My suggestion is that when you do get the gooey, slimy, itchy eyes to NOT RUB! Take a cold compress and dab your eyes with it. It will make the eyes feel better and take the urge to itch away. Do it for about 10 minutes and make sure the towel is cold. Then get some over the counter tears, make sure they are gluten-free, i think most are, and use them. If it is a persistent problem, maybe check out an ophthalmologist and get some antibiotics or they may have some other suggestions that I'm missing. I've been out of the field for 9 years but try to keep up to date on eye issues.

Hope this helps :)

Gg

gfgypsyqueen Enthusiast

I get the "pink eye" thing from allergic reactions and who knows why. It's just one of those things I've always had. Nice scary bright red eyes that have goo and itch and swell. Painful and miserable. The Natural Tears help me. Anymore I just call in for a prescription for pink eye meds when it does not go away or feels different. The one anaphylactic reaction that I had, my swelling alerted me to the problem and a called the nurse before the reaction hit my lungs. I was in a hospital at the time. So now, I know when my eye goes nuts, something is really wrong with my system.

Celiaction Rookie

Thank you all for your kind, insightful comments. Each of your observations has helped me find better approaches to this "one more symtom of celiac disease." One thing I'll pass on is a naturaopathic remedy of coloidal silver eydrops. Seems to help.

sickchick Community Regular

Hi I am new, still waiting on my biopsy, but I am positive I have celiac. I do have the gooey eye problem, I hate it and I notice it's worse in the mornings when I am waking up. bleh.

Will try the colloidal silver :)

Nice to meet you all, too bad it's under these circumstances

sickchick

  • 1 year later...
blistovmhz Newbie
Hi I am new, still waiting on my biopsy, but I am positive I have celiac. I do have the gooey eye problem, I hate it and I notice it's worse in the mornings when I am waking up. bleh.

Will try the colloidal silver :)

Nice to meet you all, too bad it's under these circumstances

sickchick

I've the same problem. I actually outlined my entire history here at some point, but very generally, my Celiac symptoms began immediately after I got the first eye infection of my life. I took Moxifloxicin antibiotic eye drops for the infection, which cleared immediately, but the started to recur every week. Antibiotics no longer keep the infection at bay, and its been a constant fight since February. I've found that using "Similasan eye drops (Atropa Belladonna), thrice a day, keeps the infection at bay (didn't intend to rhyme there...), but the infection is ALWAYS still trying to come back. My eyes have been insanely itchy for six months, and all my childhood allergies have started coming back, one by one.

I ALSO just figured out that my thyroid replacement drug, has gluten in it (don't ask how may doctors told me otherwise). So while I've never gotten better from my Celiac symptoms nor hypothyroid symptoms, I've actually never been truly gluten free.

Did anyone else come up with a theory to explain, or a long term solution to the eye infections?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

blistovmhz-

To qualify myself, I am an optometrist.......what you are describing and those posters from 2 years ago is a severe allergic conjunctivitis caused by exposure to whatever you're allergic to. The best treatment is, of course, first to limit exposure but also there are a couple of really good anti-allergy eyedrops.

1. Is an Rx so you'd need to visit an eyedoc to get a script: Pataday used once a day to treat and prevent further occurances. Needs to be used on a consistent basis to prevent.

2. Is an OTC, basically same medication in a lower concentration: Zaditor-use twice a day, same as above.

3. The Similisan herbal remedy is also good for soothing though it doesn't prevent the extreme itchy outbreaks it can help while they're occurring.

I would recommend a combination of either 1 or 2, along with 3 as needed. Also cold compresses during extreme episodes helps a lot!! FYI: I myself get this too and it SUCKS!!

Lisa16 Collaborator

Add my name to the list! When the celiac was at its worst (right before diagnosis) I would get GPC (giant papillary conjuntivitis), which was explained to me as an auto-immune problem of the lining of the eye. I have scarring from this and have been told I can never wear contacts again. I also had chronic dry eye that the doctors couldn't find a cause for.

The best thing for an eye infection is the antibiotic drops-- go see Elle's mom! Do not take chances with your eyes.

However, I find that if I think I have one starting up or feel my eyes are irritated, taking warm, wet teabags that have been used to brew my morning tea and putting them over the eye in question can sometimes stave off a full-blown infection. This is a home remedy I have seen people from various countries use and if you google it, you will see it is fairly common.

It works because the tea is astringent (and therefore soothes the irritation) and also slightly changes the Ph, making the area less hospitible for bacteria. In addition, hot compresses have been used for centuries to treat eye infections and the tea bags are warm.

Good luck! I would go see a doctor for a chronic condition like you are describing. But if they can't figure out what is wrong, giving the tea bag thing a try might be worth it. :-)

blistovmhz Newbie
blistovmhz-

To qualify myself, I am an optometrist.......what you are describing and those posters from 2 years ago is a severe allergic conjunctivitis caused by exposure to whatever you're allergic to. The best treatment is, of course, first to limit exposure but also there are a couple of really good anti-allergy eyedrops.

1. Is an Rx so you'd need to visit an eyedoc to get a script: Pataday used once a day to treat and prevent further occurances. Needs to be used on a consistent basis to prevent.

2. Is an OTC, basically same medication in a lower concentration: Zaditor-use twice a day, same as above.

3. The Similisan herbal remedy is also good for soothing though it doesn't prevent the extreme itchy outbreaks it can help while they're occurring.

I would recommend a combination of either 1 or 2, along with 3 as needed. Also cold compresses during extreme episodes helps a lot!! FYI: I myself get this too and it SUCKS!!

Any way to prove my eye symptoms originate from allergic response? I've tried an anti-histamine eye drop, but it did nothing. Though to be fair, the histamine tricks me into rubbing my eyes in my sleep, and then I get a bacterial infection, which the anti-histamine doesn't really help for... :) Also, the redness really shows more in the morning, and fades throughout the day, unless it actually breaks out into a horrible gooey infection.

The larger picture here, seems to indicate several failures (or freak outs) of my immune system, but I can be fairly confident that my immune system, while perhaps a bit confused, is doing a bang up job. Everyone in my house has been sick the past 6 months, while I have not. I however, get chronic eye infections, from which no one else seems to suffer. Histemic response would cause me to rub my eyes in my sleep, but again, I never get infections. I've done a lot of manual labour, and my hands are constantly filthy, and I've never thought twice about rubbing my eyes, and until Feb this year, I've never had a problem. The allergic response makes sense to me, but I still then, need to explain why I am now so susceptible to bacterial infection in my eyes, but no where else.

elle's mom Contributor
Any way to prove my eye symptoms originate from allergic response? I've tried an anti-histamine eye drop, but it did nothing. Though to be fair, the histamine tricks me into rubbing my eyes in my sleep, and then I get a bacterial infection, which the anti-histamine doesn't really help for... :) Also, the redness really shows more in the morning, and fades throughout the day, unless it actually breaks out into a horrible gooey infection.

The larger picture here, seems to indicate several failures (or freak outs) of my immune system, but I can be fairly confident that my immune system, while perhaps a bit confused, is doing a bang up job. Everyone in my house has been sick the past 6 months, while I have not. I however, get chronic eye infections, from which no one else seems to suffer. Histemic response would cause me to rub my eyes in my sleep, but again, I never get infections. I've done a lot of manual labour, and my hands are constantly filthy, and I've never thought twice about rubbing my eyes, and until Feb this year, I've never had a problem. The allergic response makes sense to me, but I still then, need to explain why I am now so susceptible to bacterial infection in my eyes, but no where else.

OK-it's hard to know for sure without looking into your eyes myself.......BUT I doubt you have actual infections (ie viral or bacterial). From the sounds of it on your first post it is definately allergic only. The redness, puffiness, intense itchiness, white stringy discharge, watering etc. are blatently allergy. Sometimes you can even get crusties that form while you're sleeping that cause your eyelids to be stuck together in the am. The two meds I suggested are more than just an antihistimine; they are a combination antihistimine/mast cell stabilizer. So in other words, if you use them regularly you should stop getting the respose you're describing. Initially, though they should provide some relief, but the real bang is beyond 2 weeks when your system will stop producing the reaction.

That being said, a household full of sickies and dirty hands/manual labor/rubbing could potentially lead to an acutual viral or bacterial infection. You need to visit an eye doctor-a good one- to know that for sure. They could do a conjunctival scrape and send it to the lab, but good luck finding someone to do that. Most likely it would have to be an MD (not an OD like myself, unless they have local hospital privaledges), but most docs anymore are so confident in diagnosing by observation and history alone a scrape is rarely done.

Also, chronic recurrent "infections" could also be a sign of contact lens related issues OR other things which I won't mention, but hopefully you don't have.

blistovmhz Newbie

Heh... I've tested myself for every possible virus or bacteria under the sun, and never found anything. Like I said, I've been dealing with the eye issue since Feb, so I've ruled out everything I could think of. Allergies was all that was really left, but I didn't know there was any discharge from the eye in allergic response.

I've switched to the Armour Thyroid med now, and feeling a lot better on day two, and eye symptoms are gone right now, so I'll just keep my fingers crossed and see how it goes for a couple weeks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    3. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.