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I Guess I Was A Little Crazy


horsegirl

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horsegirl Enthusiast

I had my endoscopy & biopsy today and elected to do it without a sedative so I wouldn't be knocked

out the rest of the day. Even with a double spray of the stuff in my throat, & using every relaxation technique I could think of, it was VERY difficult & traumatic to go through. But, I did make it through, & once I remembered to breathe more & keep my eyes closed, it got a little easier. The nurses told me I'd done better than many of the people who DO have sedative, which I thought was interesting.

I'm still so tired today though, & feel nauseous from the whole thing. Glad it's over! Now I just have to wait & see what the biopsy shows. The doctor said he didn't see anything abnormal through looking directly, though I've only been back on gluten (a challenge) for 6 weeks now.

Today I'm back gluten free again! Whoo hoo! :D

Thanks for all the support!


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Judyin Philly Enthusiast

wow my HATS OFF TO YOU GIRL.

I'm impressed you did it awake and did the gluten challange for 6 weeks.

Amazing..

you are one strong woman. Please post your results.

JudyL

horsegirl Enthusiast

Thanks, Judy. I appreciate the kind words! :)

I'll keep everyone posted on the biopsy results.

Enterolab did say I'm positive for all the gluten tests, plus casein too. :(

Also, I have 2 copies of the HLA-DQ1 genes, which explains all the neuro symptoms I've had.

Martha

little d Enthusiast

WOW! I'm impressed too. I know having a baby without an epidural is a woman power but getting scoped without anything that is something I would not even consider doing myself, I bow down to you. Well I guess if I had a baby without and epi then I could have had a scope done without anything sedi. <_< or maybe a little crazy.

donna

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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