Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is Too Hard!

Bravie

By Bravie
in Coping with Celiac Disease

Recommended Posts

Bravie Apprentice
Bravie
Posted
  • Author

I have a boyfriend. I don't think I ever meantioned that I have a boyfriend. He's great. Only problem is my mom doesn't allow him to come over to see me, so I call him on the phone and go out with him when I get the chance. He's very open to this diet and he tries to eat gluten free just so I don't feel bad. He's offered to let me stay at his place because my family isn't very understanding of my illness, and that we could clean up his place and live gluten free. But as you may know, I am living in a house with a strict mom, whom I listen to even when she's wrong.

She does not want me to stay with my boyfriend, who I will most definately marry someday. I'm angry because my mom gives him such a hard time, and he knows this. I'm 20 years old and I can move out if I want to. But you just don't know my mom...She'll have a panic attack and call 9-1-1 and make it look like i was kidnapped or something >< (not kidding).

I believe that things would be better if I stayed with my boyfriend because he is willing to help in any way possible.

(btw, thanks everyone who has taken the time to read about my lame complaints and outrages)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DawnS Rookie
DawnS
Posted
I have a boyfriend. I don't think I ever meantioned that I have a boyfriend. He's great. Only problem is my mom doesn't allow him to come over to see me, so I call him on the phone and go out with him when I get the chance. He's very open to this diet and he tries to eat gluten free just so I don't feel bad. He's offered to let me stay at his place because my family isn't very understanding of my illness, and that we could clean up his place and live gluten free. But as you may know, I am living in a house with a strict mom, whom I listen to even when she's wrong.

She does not want me to stay with my boyfriend, who I will most definately marry someday. I'm angry because my mom gives him such a hard time, and he knows this. I'm 20 years old and I can move out if I want to. But you just don't know my mom...She'll have a panic attack and call 9-1-1 and make it look like i was kidnapped or something >< (not kidding).

I believe that things would be better if I stayed with my boyfriend because he is willing to help in any way possible.

(btw, thanks everyone who has taken the time to read about my lame complaints and outrages)

Wow, now having somebody who tries to do this diet with you? That is a blessing! Everything is easier with somebody that will do it with you.

And you don't have to feel that your comments are lame, we've all been there and it's great to have somebody to listen to us, so it's our pleasure to do it for you :-) Take care and let us know how things are going.

little d Enthusiast
little d
Posted
I have a boyfriend. I don't think I ever meantioned that I have a boyfriend. He's great. Only problem is my mom doesn't allow him to come over to see me, so I call him on the phone and go out with him when I get the chance. He's very open to this diet and he tries to eat gluten free just so I don't feel bad. He's offered to let me stay at his place because my family isn't very understanding of my illness, and that we could clean up his place and live gluten free. But as you may know, I am living in a house with a strict mom, whom I listen to even when she's wrong.

She does not want me to stay with my boyfriend, who I will most definately marry someday. I'm angry because my mom gives him such a hard time, and he knows this. I'm 20 years old and I can move out if I want to. But you just don't know my mom...She'll have a panic attack and call 9-1-1 and make it look like i was kidnapped or something >< (not kidding).

I believe that things would be better if I stayed with my boyfriend because he is willing to help in any way possible.

(btw, thanks everyone who has taken the time to read about my lame complaints and outrages)

So let me guess your mom doesn't think that there is anything wrong with you as well. You just may have to move out to show your independence and to show her that you will be ok, and that your boyfriend is a good guy, regardless of his flaws. But on the other hand coming from a mother side of View she may not understand or want to understand that something could be wrong with her baby, if your mom is abusive in any way physical, mental it is not healthy for you to stay with her any longer, and I can fully understand that you don't want to hurt your mom's feeling, I'v been there. Like you said you are 20 your an adult you can make your own mind. I know that it is hard I lived with my mom until I was 28 and I moved out with my now husband and pregnate, and yes we planned on have a baby but didn't expect for it to happen so soon. But anyway your mom knows that you will eventually move out she may not be ready. If your dad is supportive of you dicisions then and your diet then maybe he can get her to understand, propably not likely if your mom is a strong woman that has strong opinions, I can understand that, and I can see were you it would be easy for you to get really upset. I am happy that you have a boyfriend that is supportive that is something that you need.

donna

Red Bonney Jo Newbie
Red Bonney Jo
Posted

I understand that being young with this crazy diagnosis is difficult. I am 23, I have mastered my diet at home, which meant moving into my own apartment (mainly to have a gluten free kitchen!) Going out with friends is still a major struggle for me. Many don't understand how I have to plan meals for every situation and how I don't trust anyone but me to make my food. I am less social than I would prefer to be because I am at home baking. This isn't bad for me though, it forces me to slow down, eat healthy and really enjoy the friends that understand my dining limitations. The diet is also very difficult with a very low income. I am lucky enough to have a job with insurance, but don't make much beyond rent. It is hard to see friends eating full meals at happy hours for less than $5 when I have a $10 plain salad, or co-workers getting free pizzas and knowing that if I want a pizza it will cost around $15 and at least an hour to make.

The way I look at it now is that my entire life style is changing for the better. I am living more organically, eating much much healthier than I ever thought possible, and happier than ever. I have found a nice where I belong, friends that understand and am growing up faster than I would have without this hurdle to jump over. I know it is possible for you to find your place too. I understand your anger as well, it comes and goes, but eventually it will get better. You will feel better, it took me over 6 months on a completely gluten-free diet before I started to feel like a human (which is exhilarating after being undiagnosed for at least 10 years).

Yellow Rose Explorer
Yellow Rose
Posted

I also have been at this a short time only 4 months. I have glutened myself so many times I don't think I will ever get the hang of it. I have ranted, raved, and cried. Yesterday was my birthday and all my children and grandchildren came over to eat and celebrate with me. One of my daughters asked what she could bring and I told her to bring a cake for everyone else as I was not making one. She made a beautiful chocolate fudge (my favorite) with strawberries cake. It was a piece of art. I found myself in a very new place with a different attitude. I looked at that cake and didn't even want a bite. I knew if I took a bite every muscle and joint in my body would be inflamed within 2 hours and for several days. It just wasn't appealing anymore. You too will get to this point. I was able to enjoy my family eating my cake and I was eating a popsicle. It really felt good to be over that misery of wanting what I can't eat. I have been thinking of it as poison for the past couple of weeks after reading someone's post on the shelf of evil that has been designated for gluten products in her house. Poison is not appealing. Try looking at gluten food in this light and your subconsience mind will take over your consience mind and help you get through this. You also mentioned all you have left is God. How wonderful, there is nothing more that anyone needs. All things are possible with God. I can do all things through Christ who strengthens me. Ask God to help you with this and be very specific in your prayer life. I will add you to my own prayers.

Yellow Rose

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,368
    • Most Online (within 30 mins)
      7,748
    Jdhunt
    Newest Member
    Jdhunt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...