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I'm Not Sure...

goldyjlox

By goldyjlox
in Coping with Celiac Disease

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goldyjlox Contributor
goldyjlox
Posted

I posted here earlier this week mentioning that my biopsy was scheduled for Monday...well I have had it and of course dont remember at thing!!! Well, I have not gotten my results back as of yet and I am still eating small amounts of Gluten. I have never really gone completely Gluten free b/c I am very rarely sick, I get outbreaks (as I call them) once sometimes twice a year and they last for a week or two and then they are gone and I had always eaten a bland siet while sick..so dry toast!!! I live for Rice Crisy treats and eat chips, I very rarely eat bread or baking...not a flour person to begin with so its bazzar that I would come down with Celiac. My blood work came back on the higher side and that is the only reason we think that it is Celiac..I have always been diagnosed as IBS. So I guess what I am wondering is do you think that is Celiac if I can eat gluten on a regular basis and hardly EVER get sick. Two mornings this week we have had Waffles, today I had an ice cream cone, rice crispys for breakfast and now I have made rice crispys. I have my follow up next thurs. So I am not going to change anything until I know for sure. Also, I see that alot of people have other allergies too, I drink alot of milk and have alot of other dairy and these have necer bothered me. I am a bit overwhelmed reading all these posts b/c it seems that Gluten is in everything, I read something about Birth control pills...well I am starting mine tomorrow and the pharmacy said that there shouldnt be gluten in those, I am really confused but I am happy that there is som much information on this site to read.

Just in case, my symptoms include...gas, bloating, constipation, loose stools. Sounds like Celiac but also sounds like IBS, so I am confused. I would think that if you were allergic to something and you came in contact with it you would get sick right away..right???

Thanks for listening.

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Guest j_mommy
Guest j_mommy
Posted

Yes, those symptoms sound like celiac.

Celiac is often misdiagnosed with IBS!!!!

Not all celiacs have symptoms....I think that the diet is hardest for those who don't have symtoms! That said if your biopsy is positive and you go gluten-free, your inner body WILL heal....you may not know it's affecting your bowles but celiac does!!!

Do you have any other symtoms...such as fatigue, fuzzy thinking, depression ect????

melmak5 Contributor
melmak5
Posted

Good luck with your follow up appointment.

Yes, it sounds like celiac is a possibility, and yes, you could be able to eat gluten and not have a strong reaction, or your reaction may not be digestive.

NEVER trust "there shouldn't be gluten in ______"

Demand your pharmacist checks or ask for the manufacturer's contact so you can find out.

There are a lot of things "gluten shouldn't be in" but unfortunately it is in a lot of odd places and if you do have celiac disease, then you do need to make sure.

All the best figuring out what's going on.

Guest j_mommy
Guest j_mommy
Posted

Also wanted to add that you may not realize that you are having symptoms. I didn't think mine were out of the ordinary or contected to gluten in any way until after I was diagnosed...once I went gluten-free I thought back and realized everything!!!

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