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Hi all.

These past few days have been horrible as my mother is unsure about my gluten issues. She's not sure that it's my problem because I am still sick ocassionally (after I eat a food containing gluten and I was unaware). She keeps saying, well how do we know that it's not lactose intolerance? Or just your eating habits? (which I must admit, suck. I love chips and foods filled with fat. I've been working on getting a more balanced diet, but I rarely have time to cook food, so its usually more chips and a banana for lunch) Or that it's Crohns? I've had a awesome response to the gluten free diet, but my mom is now thinking I've convinced myself that it's a problem with gluten when it's probably not.

My mom was the one who brought up the idea that it was probably relating to gluten! And brought me home magazine articles that convinced me!

And I know you are all probably saying, well, if you had a positive dietary response to gluten free, then you obviously have a problem with gluten. Well, I still have had D. Not in a pattern, sometimes I'll go for 3 weeks without it, and sometimes I'll get it twice in a week. It's just that my mom has lots of experience in the bowel area, given that she has Crohns. And has been through hell with it. So she knows poop.

Anyways, she really wants to know what's wrong with me, and I would as well. So I was telling her about Enterolab and the Celiac Gene Testing. We would like more information so that we can get on with our lives. So my questions about Enterolab are:

1) How much is it?

2) What kind of tests are they? And what do they involve?

3) Can Canadians be tested?

4) Is it worth it if I'm pretty sure I'm only gluten intolerant, rather than Celiac? (No one in my family has Celiac, however, my mother and great grandmother both had Crohns. My grandmother was developing Crohns in the short years before her death, but it was determined that it was from her undersized bowels from her premature birth)

If you can help me with any of this, I'd greatly appreciate it.

Thanks so much,

-Lissa

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Hi Lissa,

You can go to their website at:

http://www.enterolab.com/

There, you can check out information about all the tests they provide, how much they cost, etc.

I was even able to convince my insurance company (in the States) to pay for the test! :D

I think it's definitely worth your effort to go through their testing, because they do the gene testing as well as test for gluten antigens & other things (depending on what tests you order).

Your symptoms may be celiac, or gluten intolerance, but as I've learned from my own recent trials with all of this, it doesn't really matter what the end "title" is, as long as you find something that helps you feel better!

Also, getting in touch with a good G.I. doctor would be great too, in order to have blood tests done, & possibly a biopsy to see what might be going on (that would tell you whether it might be Crohn's,

celiac, or other problems).

Whatever the case, it sounds like you've had a good response to the gluten free diet, & maybe there's other food intolerances you might have too.

As far as family members "not having Celiac", remember that most people are never diagnosed accurately, & that Celiac masquerades as a whole host of other physical & psychological problems,

so somebody in your family may HAVE been Celiac or gluten intolerant, but only showed up as having migraines, or arthritis, or fibromyalgia or something like that.

Good luck, & keep us posted on what you find out!

Martha

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Lissa,

You mentioned that you still get d. My daughter is gluten free, but whenever we have tried to give her potato chips she gets sick. I can't figure out why, maybe they run on the same lines as wheat products or something. We've had to switch to tortilla chips, and then we have to be careful about the brand. (We buy "Nana's Cocina" at Whole Foods. We cannot buy "Green Mountain" which says gluten-free right on the package!)

(My husband and I are also gluten free, but do not react the same way my daughter does.)

Maybe the chips are getting you??? I'm sorry, I know you said you love them :(

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Lissa,

You mentioned that you still get d. My daughter is gluten free, but whenever we have tried to give her potato chips she gets sick. I can't figure out why, maybe they run on the same lines as wheat products or something. We've had to switch to tortilla chips, and then we have to be careful about the brand. (We buy "Nana's Cocina" at Whole Foods. We cannot buy "Green Mountain" which says gluten-free right on the package!)

(My husband and I are also gluten free, but do not react the same way my daughter does.)

Maybe the chips are getting you??? I'm sorry, I know you said you love them :(

hi, it may be something else in the chips bugging you, im allergic to soy so i only have a few choices of chips that i can eat as most of them use soybean oil. enterolab can test you for soy, casein etc.

GOOD LUCK

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hi, it may be something else in the chips bugging you, im allergic to soy so i only have a few choices of chips that i can eat as most of them use soybean oil. enterolab can test you for soy, casein etc.

GOOD LUCK

Thanks! My daughter DOES have a problem with soy, but I never thought about that with the chips because the nutritionist told us not to worry about soy oil or lecithin.

I wonder if she IS reacting to those? Do you have reactions to soy lecithin too? What brands of chips do you buy?

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4) Is it worth it if I'm pretty sure I'm only gluten intolerant, rather than Celiac?

Well, Enterolab doesn't even diagnose celiac; it diagnoses gluten intolerance. You can get the genetic testing in addition to the intolerance tests, but this just tells you if you have the identified genes for celiac. Not everyone with the genes has problems, and people can have severe problems with gluten without the genes.

If you wonder if you are reacting to casein (or egg, soy, & yeast) in addition to gluten, you can test these through Enterolab as well. Or you can just cut out dairy or whatever and see how it goes.

You don't mention how long you've been gluten-free. I've read that many people have problems with lactose when they first go gluten-free. They have to let their gut heal and then find they may be able to tolerate it in six months or so. (It is easy enough to see if you are reacting to lactose or casein, which are different things.)

It can take some time to heal. This could explain why you still have bouts of diarrhea. Or you could be getting bits of gluten from some unnoticed source. You have to look at your personal care items (I just discovered wheat in my hair gel), toss out scratched pots, spoons, or the like that have been used with glutened food, make sure nobody is getting glutened crumbs in anything you eat (like PB or anything else a knife with crumbs might go in), etc. I assume you carefully read all labels and are not eating oats?

It is a bother, but you might benefit from keeping a food diary. If you always get sick after eating a certain food, you may discover another intolerance or a brand that is cross-contaminated.

I hope you get feeling better.

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Also, getting in touch with a good G.I. doctor would be great too, in order to have blood tests done, & possibly a biopsy to see what might be going on (that would tell you whether it might be Crohn's,

celiac, or other problems).

I just want to add that this is NOT good advice, because at this point, because of being gluten-free for a while, it is absolutely TOO LATE to have blood tests and a biopsy done. They will all be negative by now!

By the way, all people with Crohn's have been shown to benefit from a gluten-free diet. I bet your mother is gluten intolerant as well. She might want to try a gluten-free diet herself, rather than doubting you!

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Just wanted to say that yes, your Mother & Grandmother's crohns disease is probably just untreated celiac. I have posted about a lady that is now in our group that thought she had crohns & then I convinced her to get the test at Enterolab.com & she had a DQ2 & a DQ8 & was positive for gluten & dairy. She went gluten free & she said about day 4 she felt like a new person. she was thanking me for prodding her to get the test, although she is a vet & worked with another vet that has celiac & even went into the gluten free cake & cookie business after she got so good from baking the gluten-free office cakes - she had never gotten tested, because she had a Diagnosis of crohn's...

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