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Bm Problems


faegan

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faegan Contributor

Hi, All.

I think this might win the "graphic post of the week" award.

I am currently having an issue with my BMs. Usually they are normal. However, sometimes they start normal but then they end up somewhere between normal and diarrhea. I have stopped eating dairy to see if it's the issue, and it's gotten a bit better but has not gone away.

I have gone to one of the best celiac doctors about the issue, and he has not been able to identify the exact issue. My blood work is normal, and my villae have grown back to normal since my dx and move to gluten-free diet 16 months ago. If it were a gluten issue, my blood work I think would have reflected it because I was tested and had the repeat biopsy while I was having the problem.

Looking for suggestions!

Thanks!


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hathor Contributor

Have you tried keeping a food diary? If the problem follows a particular food, you may discover another food intolerance or something that is cross-contaminated.

With the elimination of dairy, did you also start making sure you don't eat anything to which casein or a caseinate has been added? It is possible to get casein in nondairy items.

You might see if you are reacting to soy. That seems to be a common third intolerance for folks.

Beyond that, I would check your personal care items. A week ago I thought to look at the hair gel that I'd started using a few months ago (found it when cleaning out my bathroom and thought, "Hey, I might as well use this!) and saw it had hydrolyzed wheat starch and hydrolyzed wheat protein in it. I shudder to think of that gluelike stuff on my fingers (under my nails, etc), my rather casual rinsing of my fingers, all the times I touch my hair (restyling with wet fingers!), etc. AND all the times my fingers go into my mouth in the course of the day (eating, flossing, taking pills, etc.) No wonder I still had symptoms at times despite all the careful attention to my diet. I cut that out a week ago and I've been having the best poo of my life :lol:

Now, WHO is being graphic :rolleyes:

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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