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Bm Problems


faegan

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faegan Contributor

Hi, All.

I think this might win the "graphic post of the week" award.

I am currently having an issue with my BMs. Usually they are normal. However, sometimes they start normal but then they end up somewhere between normal and diarrhea. I have stopped eating dairy to see if it's the issue, and it's gotten a bit better but has not gone away.

I have gone to one of the best celiac doctors about the issue, and he has not been able to identify the exact issue. My blood work is normal, and my villae have grown back to normal since my dx and move to gluten-free diet 16 months ago. If it were a gluten issue, my blood work I think would have reflected it because I was tested and had the repeat biopsy while I was having the problem.

Looking for suggestions!

Thanks!


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hathor Contributor

Have you tried keeping a food diary? If the problem follows a particular food, you may discover another food intolerance or something that is cross-contaminated.

With the elimination of dairy, did you also start making sure you don't eat anything to which casein or a caseinate has been added? It is possible to get casein in nondairy items.

You might see if you are reacting to soy. That seems to be a common third intolerance for folks.

Beyond that, I would check your personal care items. A week ago I thought to look at the hair gel that I'd started using a few months ago (found it when cleaning out my bathroom and thought, "Hey, I might as well use this!) and saw it had hydrolyzed wheat starch and hydrolyzed wheat protein in it. I shudder to think of that gluelike stuff on my fingers (under my nails, etc), my rather casual rinsing of my fingers, all the times I touch my hair (restyling with wet fingers!), etc. AND all the times my fingers go into my mouth in the course of the day (eating, flossing, taking pills, etc.) No wonder I still had symptoms at times despite all the careful attention to my diet. I cut that out a week ago and I've been having the best poo of my life :lol:

Now, WHO is being graphic :rolleyes:

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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