Muscle Amd Joint Pain

[Janeti]

Help!!! I just don't understand why I still get the muscle pain that comes and goes. Sometimes mild, sometimes I get get my mind off of how uncomfortable I am. The joint pains comes and goes and sometimes I get swelling also. I am being so careful, and taking vitamins, including magnesium for my muscles. In the morning when I wake up, I just lay in bed and I can feel all the muscles twitching. Its been 6 months, and I don't know what else to do. Does anyone have this problem? Or does anyone have any suggestions? Janet

[happygirl]

Have you had a follow up appointment with your doctor? Have your antibody levels been checked to see how well you are responding to the diet? Are you getting glutened or are pretty much 100% gluten-free? Vitamin/mineral levels checked?

I would be concerned that something else is going on, and would see my doctor to talk about these issues. Sometimes we attribute all of our symptoms to Celiac, when there may be something else going on, that we overlook.

[gfpaperdoll]

what types of food are you eating? Are you dairy free? soy free?

are you eating white potatoes? They are known to cause joint pain.

Are you eating a lot of beans? They are high in lectins. Are you cooking beans in a crockpot? not a good idea as they need a high heat to break down the lectins & they need to be cooked well done.

are you eating any of the gluten free grains???? gluten-free mixes for breads etc????

[Janeti]

what types of food are you eating? Are you dairy free? soy free?

are you eating white potatoes? They are known to cause joint pain.

Are you eating a lot of beans? They are high in lectins. Are you cooking beans in a crockpot? not a good idea as they need a high heat to break down the lectins & they need to be cooked well done.

are you eating any of the gluten free grains???? gluten-free mixes for breads etc????

I should have mentioned that I also have candida. But the answer to most of the questions are yes.

I know better, I should be staying away from potatoes, but the gluten free mixes are not good also?Why are they a problem? I also ate out Saturday night, and as soon as we were done I had a stomach ache...glutened....I am sure. The next day, running to the bathroom, and muscle pains. I think that its leaky gut.

I hate going to the Dr, I get scared. I will stay away from potatoes, and see if it helps. I guess I know it's time for a Dr visit, but I just want this whole mess to go away...know what I mean? Janet

[CarlaB]

Could you be magnesium deficient? You can safely supplement mag., so I would to see if it helps. Don't get the kind mixed with calcium, get one that's all magnesium.

If this continues even when you're not glutened, I would be very concerned that something else is going on. Many of us have other problems along with our gluten intolerance.

I would get strictly on an anti-candida diet and take probiotics to see if that helps.

[mftnchn]

Hi Janet.

I think these are all good things to check out. You could keep a food diary and see if there was any change in symptoms.

If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades. The other food I would check is eggs. This approach would cover the most common food intolerances. If this doesn't bring any relief, you could consider additives, colorings, etc. Try only organic whole foods for 10 days and see if that makes a difference.

When you eliminate, make sure you have absolutely none for 5-10 days. I would suggest at least 7, because joint symptoms tend to be slower to clear and slower to come on. If you clear up, add an item one at a time and watch for symptoms (a cautious approach would be to add one item every 4 days). If you don't clear up, start eating the food group again for a week and see if you have any worsening of symptoms. If no change go to the next food group.

You can also consider the possibility of lyme disease which is also notorious for causing joint and muscle symptoms. Have you ever noticed that being on antibiotics improves your worsens your joint symtpoms?

[Janeti]

Hi Janet.

I think these are all good things to check out. You could keep a food diary and see if there was any change in symptoms.

If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades. The other food I would check is eggs. This approach would cover the most common food intolerances. If this doesn't bring any relief, you could consider additives, colorings, etc. Try only organic whole foods for 10 days and see if that makes a difference.

When you eliminate, make sure you have absolutely none for 5-10 days. I would suggest at least 7, because joint symptoms tend to be slower to clear and slower to come on. If you clear up, add an item one at a time and watch for symptoms (a cautious approach would be to add one item every 4 days). If you don't clear up, start eating the food group again for a week and see if you have any worsening of symptoms. If no change go to the next food group.

You can also consider the possibility of lyme disease which is also notorious for causing joint and muscle symptoms. Have you ever noticed that being on antibiotics improves your worsens your joint symtpoms?

Hello,

I want to thank you all for your responses, especially GFPAPERDOLL, you were right!!!! It is the potatoes. I just can't tolerate them. I think that is the strangest thing, but it works. I haven't had any in a couple of days, and I am feeling much better.

I can't tell you all how much this site means to me. It is a source of comfort. Thank you all again Janet

[mftnchn]

Good, thanks for letting us know. Potatoes are from the nightshade family, so if you continue to have problems you could check those. Most common beside potato would be tomato and green pepper.

[QTPYE4YOU]

Help!!! I just don't understand why I still get the muscle pain that comes and goes. Sometimes mild, sometimes I get get my mind off of how uncomfortable I am. The joint pains comes and goes and sometimes I get swelling also. I am being so careful, and taking vitamins, including magnesium for my muscles. In the morning when I wake up, I just lay in bed and I can feel all the muscles twitching. Its been 6 months, and I don't know what else to do. Does anyone have this problem? Or does anyone have any suggestions? Janet

So does anyone know what is going on with you ? I kind of have the sdame thing goign on as you .... BTW I am Blair ---Let me know ?

[Janeti]

So does anyone know what is going on with you ? I kind of have the sdame thing goign on as you .... BTW I am Blair ---Let me know ?

Hello Blair,

Yes, I also have systemic candida, which causes a host of problems. They include, muscle and joint pain. At one time, when I got out of bed, my arm was in such pain, I had to help lift it. brain fog, headaches, body rashes, canker sores, hormone problems, and the list goes on and on. It's amazing what it does to you, and it is closely linked with celiacs. I hope this helps you, and if you need any further info, you can always google it. Good luck, Janet

[DeerGirl]

Have you had a follow up appointment with your doctor? ......... Are you getting glutened or are pretty much 100% gluten-free? Vitamin/mineral levels checked?

I would second happygirl's comments here. Sounds like it could be any of a number of vitamin or mineral deficiencies, easy for your doctor to check this out.

[Janeti]

I would second happygirl's comments here. Sounds like it could be any of a number of vitamin or mineral deficiencies, easy for your doctor to check this out.

It is time for some blood work to be done, probaly next week. The amazing thing about celiacs, is that since I have gone gluten free, my hasimotos is kind of at a stand still. I still have the antibodies, but my TSH has stabilized. Sounds crazy, I know. So the blood work should be interesting, but I still get nervous at the results...Janet

[DeerGirl]

It is time for some blood work to be done, probaly next week. The amazing thing about celiacs, is that since I have gone gluten free, my hasimotos is kind of at a stand still. I still have the antibodies, but my TSH has stabilized. Sounds crazy, I know. So the blood work should be interesting, but I still get nervous at the results...Janet

Janeti - good luck with the testing, hopefully your dr will have some ideas as to what is going on for you.

[tom]

Yes good luck w/ the tests!

And I second the idea of keeping a food/symptom diary.

It can really make it easy to spot some of these things.

[VRB]

Hi

In response to following up with a doctor. Do you know what type of doctor would be best for getting the correct blood work done? I have found that a general doctor seems to only be interested in seeing if your vitamin D results are good. There are many many other vitamins and minerals that we are missing now that we are Gluten Free. In fact after being diagnosed with Osteoporisis at 45, my general doctor did not even mention malabsorption issues. He just perscribed Actonel and sent me home. I learned about gluten intolerance from a "Chiropractor".

[Janeti]

I guess that a GI Dr should know what to look for. I just went to my primary Dr, he did a basic, vit

b12, d, cbc sed rate, thyroid(I have hashimotos). I guess from that they can tell if you are absorbing, or what you are missing. Maybe you should look into taking vitamis. Before I was diagnosed, my vit d was non existant. I take viactiv, magnesium, sublingual b12, co-q10. I also take probiotics. I think suppliments are so important while you are healing, and then some. Good luck, Janet