Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Figure Out If It Is Dairy Or Gluten


Nic

Recommended Posts

Nic Collaborator

Hi, my son and my father both have celiac so it leaves to reason that I carry the gene. Because I cook gluten free for breakfast and dinner for my family I consider myself to be gluten light. A little over a year ago I started getting really bad stomach aches with terrible gas and bloating in the afternoon pretty much every day. For breakfast I usually eat cereal, sometimes gluten free, sometimes one that contains barley malt extract but for lunch at work always a sandwich with regular bread. Dinner is always gluten free. The stomach problems usually happen right after lunch. So I assumed it was gluten. So this week I tried cutting out gluten (I do much better keeping my son away from gluten than myself). And I thought I was seeing some improvement but today I ate gluten free cereal for breakfast and then ham and cheese on corn tortillas for lunch and the stomach problems came on pretty strong as they usually do. I know that if it is gluten it takes longer than a few days to feel better but todays reaction was immediate after eating lunch which contained no gluten at all. Does this type of reaction sound more like dairy or gluten? I was tested last year for celiac and was negative but probably would be due to being gluten light.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eriella Explorer

To me it sounds like gluten. Although it could be either or both. Most cheeses are low-lactose, so it would surprise me if you were reacting to them (unless you have casein issues). Your deli meat or tortillas might contain gluten, so that could be the culprit. Also, it could just be that you are healing.

I would recommend going 100% gluten free, casein free for a month, and then do a challenge. For week 1 eat something with gluten in it every day for 5 days until you get a reaction. If you don't get a reaction, YAY!! you can enjoy pizza again. If you do get a reaction, wait another 2 weeks on a gluten free/casein free diet and then try introducing lactose (but not full milk) every day for 5 days to see if you react. This means that you can have cheddar cheese and products where milk appears in the allergy label. If you react to that, it is a casein intolerance. If you are fine, for the next 5 days try drinking a glass of skim milk every day, if you are fine with that, then you have no problems with dairy. If you aren't fine with that, you have a lactose intolerance.

Some people, like me, can have small bits of lactose, but not a lot. I can either have mozzarella cheese, milk in my coffee, or ice cream-- not all.

Good luck! If you need any support, let us know!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,198
    • Most Online (within 30 mins)
      7,748

    Cbk
    Newest Member
    Cbk
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.