Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanksgiving Is Upon Us


darlindeb25

Recommended Posts

darlindeb25 Collaborator
:D Morning all--I know many of you have seen posts from me in this forum--in this month of November we all give thanks--I just want to say a big thank you :D to everyone who responds to our many questions--I have learned so much in this forum :D --I frequent 4 forums and this is my favorite--this is where I have learned the most :) --everyone here is very caring and so ready to give advice even to some questions that may seem silly to others--thank you so much and everyone here----have a wonderful holiday season---Deb :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



granny Rookie
:D Morning all-- everyone here----have a wonderful holiday season---Deb :D

Great Idea, Deb!

Happy holidays to you and everyone who visits this board.

granny

Guest jhmom

I am also thankful for everyone here. :D When I first visited here I had SO many questions and didn't know where to begin.

A BIG thank you to all of you that help and care for each other enough to give your time and support.

ALSO a big thanks to Scott for putting all this together and offering such a wonderful place to be!

Take care everyone and I hope each of you have a Wonderful gluten-free Holiday Season!

celiac3270 Collaborator

I agree...I have visited a couple other celiac forums and none even comes close in my eyes. This one has enough people to provide a steady stream of conversation, but seems small enough for me to feel like I know people.

Thank you, Scott, for creating and maintaining this for us.

I, too, found this forum to be a lifesaver when I was diagnosed and it's so convenient for getting quick answers to my questions.

Happy holidays!

-celiac3270

dreamhouses Newbie

Hi, Being a newbie at this I am REALLY thankful to find this board and nice group of people. I havn't found a support group in my town, or even another gluten-free person. So basically I'm going it alone still, and doing okay. But as we head into the big feast season, and everyone is baking up their rolls to pass around the table, I will really be remembering that I might be sitting with my family and friends (as they all try to deal with my different diet, with varying success, yikes) but I have another "family" of people I can share or co-miserate with during the holidays. Thanks to all of you.

granny Rookie
Hi, Being a newbie at this I am REALLY thankful to find this board and nice group of people. I havn't found a support group in my town, or even another gluten-free person. So basically I'm going it alone still, and doing okay. But as we head into the big feast season, and everyone is baking up their rolls to pass around the table, I will really be remembering that I might be sitting with my family and friends (as they all try to deal with my different diet, with varying success, yikes) but I have another "family" of people I can share or co-miserate with during the holidays. Thanks to all of you.

HI and Welcome!! We are all in the same boat here and I think that's what makes this board work so well. Last year, there were a Whole Bunch of us who were Newbie's and we all survived the holidays by depending on eachother, the board, God and family and friends.

I live in a small town in OK and don't know of another gluten-free person till I cross the boarder into AR. I met her here on the message board and haven't met her in real life. It's just nice to know she is over there if I need her. Last year my kids were very accomodating with my diet because I'd almost died the previous yr and we were so grateful to finally know what was wrong with me. This year, it's a little different-I'm supposed to be a pro at this and know what I can eat; NOT!! I'm still so full of questions and that's why I'm here reading almost every day. I love this site and reading what other people are coming up with. There is a wealth of info here.

We're also glad you found this site cause now we get to share the holidays with You and all the other Newbies, too. Welcome aboard and God Bless. granny

dbuhl79 Contributor

Great idea Deb!

Definitely thanks to everyone on this board for responding to all of the questions we all ask, even if its repeatedly! Being new here, and unsure of my diagnosis, this has been a wonderful relief and resource to put my worries at bay. I am very grateful to have found this forum!

Dana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Donna F Enthusiast

Count me in too! I'm exTREMEly grateful for this site and everyone who participates!

And how GREATFUL I AM to live in a time where we have the internet. I probably never would have gotten a diagnosis if it weren't for the web, and I CERTAINLY would NOT have a clue about what I can and cannot eat! And I would never have met so many wonderful, helpful people as I have here. THANK YOU! What a lonely thing it would be to have to live this way without any support from people who are going through the same thing!

:wub:

-donna

strack2004 Rookie

I , also , am grateful for this board. This is my favorite of three and the one I visit almost every day unless the library is closed and I can't get up here to our school when the computers aren't busy. I'll be having Thanksgiving supper with my daughter, several grandchildren and 1 and a half great grandchildren. The second great grand is to be born at the end of March. My daughter and I have figured out together things I can have. I am getting used to just having those things and enjoying them. A Happy Thanksgiving to all of you. Ruth S.

tarnalberry Community Regular

I'm grateful for this board, the fact that I discovered I was gluten intolerant after I took up cooking, that I never had very severe symptoms, and that there are so many tasty foods in the world! And I'm very grateful for the support of my family and friends who have never made a disparaging comment about the diet.

celiac3270 Collaborator
And how GREATFUL I AM to live in a time where we have the internet. I probably never would have gotten a diagnosis if it weren't for the web, and I CERTAINLY would NOT have a clue about what I can and cannot eat! And I would never have met so many wonderful, helpful people as I have here. THANK YOU! What a lonely thing it would be to have to live this way without any support from people who are going through the same thing!

:wub:

-donna

I know! I completely agree. My mom and I have said that all the time.....where would I be without this board. When I was diagnosed, I was clueless and this is where I learned about celiac disease. I started out thinking that if it didn't say wheat, rye, barley, or oats on a label, it was gluten-free........then I got here and got educated :D.

The information on the regular celiac.com site is great and the message board is an even better resource :). I can't imagine not having the internet; I would either still be eating foods that had gluten, but didn't list it clearly, or I would've had to plod through stacks of books that often repeat each other.......ah, the wonders of technology :rolleyes:

kschmitz Newbie

I, too am so thankful for this message board. Since I was diagnosed in September, I have learned more from all of you than from my doctor and dietician. I also try to visit the board every evening after work, and although I don't often post, I read every new message. Your names have become so familiar to me, and I feel such a connection to everyone. Thanks to Scott and to all of you who are willing to share so much of yourselves.

ks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    3. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    4. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    5. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,958
    • Most Online (within 30 mins)
      7,748

    DLA
    Newest Member
    DLA
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.