Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yeah Her School Was Great!


Nikki'smom

Recommended Posts

Nikki'smom Apprentice

Yesterday i met with my Dd's school nurse to talk about al of this fun new gluten-free stuff and Celiac with her. She was WONDERFUL! She said this is the 1st time she has dealt with a Celiac child but said we can learn together! She brought in the head of the cafiteria and she was also great! She said she already put a call into her director to find a list of gluten-free food on the menu so we can put together a specail gluten-free list for my dd. theya re trying t figure out where in the chain of the school system is the dietican/nutricianist also for the help. She talked about having my dd and I pick items the friday before that are safe for her to eat and which days she will ahve them and putting them aside just for her so they don't get contaminated. I know my dd loved eating the school lunch so this was huge for me! Thenurse said she would keep a specail frozen treat so if the class had a suprise treat that she couldn't have she would have one too! Every one kept assuring me they was to make her as healthy as they can with no issues. since we seem to be making this up as we go along we al decided if it need to be tweeked then we tweek it :D

I also got to sit down with her teacher whom I think is great too! She said when ever possible she would try to buy gluten-free candy for treats for the kids so she is never left out! Love it! We also talked about me providing a specail bag just in case which is great. she will also keep a extra cookie treat in her class just in case. We also talked about when ever there is a party if possible I could help plan it and be there to help which i love doing any way B)

All parties involved agree to ry not to single her out with different items from the rest of the class and any chance that they get to get gluten-free stuff would be made.

I told them I am just a call away and to call me any time with any questions. they all said several time how open communication is great and that is what they want! I am so happy!

My dd loves school so much and is only in 2nd grade so this is huge to keep it fun and let her know every once in awhile she will get 'specail ' things that other kids don't get because she is 'special! LOL Of course I can see my dd milking the 'specail ' part big time! LOL

YEAH another great school!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

Congrats! My dd's teacher seems to be great this year, too.

But last year I tried to let my dd eat the school lunches. They really tried to do it right. They would change their gloves before touching her food, etc. But I believe she was getting glutened every day. She was still moody and was having tummy aches. And she got really bored pretty quick with her limited choices of food. So this year, she is taking her lunch every day. It is a BIG hassle, but I just can't handle her moodiness when she has gluten. Just a thought!

ptkds

Nikki'smom Apprentice

Thanks!

I figured I would at least try the lunches and even at worst case all she gets is the yogurt then that is fine she loves yogurt! LOL That i will also know is safe.

We have already been talking about ideas for lunch for her and so far she is ok with it. I just know last yr she loved getting l;unch at school so I have to at least try you know? I want to keep everything as normal as I can.

blueeyedmanda Community Regular

I am so glad to hear that the school was so great about the celiac and more than willing to help you out. this helps you put your mind at ease and lets your DD still enjoy buying her lunch. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.