Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Positive-wait To Go Gluten Free?


tumtumsmom

Recommended Posts

tumtumsmom Newbie

Hi All, this is new to me but from what I've seen and read so far I think this website and messageboard might be the key to my sanity...

My 13 yr old son has had stomach problems for years and just last week went through a barrage of tests scheduled by his pediatrician. She called yesterday and said that his bloodwork shows he's positive for Celiac and that he also had blood in his stool. We've got an appt. with a GI doctor on Tuesday but my question is: Does my son need to keep eating glutens until we see the GI? I was going to start him gluten-free free immediatly but after reading books and such I'm guessing there will be further tests. I would call the Doctor but they are closed for the 3 day weekend.

I'm so glad to have found this site. Yesterday was such a shock and emotional time. At least I feel more calm and in control today. Reading these wonderful posts answers so many questions although I'm sure I'll have thousands of questions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

It is best to wait to talk to the gi dr, unless you dont want to do an scope. But since there is blood in his stool, i would think it is best to have all the test that the gi dr wants to do, that way you will get more accurate results. During this weekend, it would be best to read up as much as you can on what is safe and what is not safe. Get new pots and pans and get rid of plastic dishes, so when you are ready to go gluten free you will already be ready. Do things in bb steps so you will not be overwhelmed. Get yourself and spouse tested and if you have any other kids get them tested asap. Do you plan on everyone going gluten free or just your 13 yr old. My stepson was diagnosed at 13, and it has been so rough. He cheats all the time and it is hard on the whole family. IS your 13 yr old willing to go gluten free?

paula

MySuicidalTurtle Enthusiast

When I was 17 my doctor told me to go gluten-free after my blood test and I never saw anyone else. My Brother, however, continued eating gluten and saw a specialist to get another postive. So, it is really up to you and him. The diet worked fine for me right away, so, I didn't want to go back on it for another test. It's a personal thing.

tumtumsmom Newbie

Thanks for the responses. I think I'll just let him continue and eat gluten foods until we see the GI. I want to have any tests needed especially since he has blood in his stool. Both my husband and I are scheduled for a blood test and my other two sons will be next.

I'm a confused as to why I need to buy new pots and pans? Isn't dishwashing them enough? Or are these new ones to just be kept gluten free? I still have so much reading to do....

gfpaperdoll Rookie

welcome to our group. The reason that you want new pots & pans is that if you have non stick ones or cast iron they are porous & have gluten hidden in the scratches, even dishwasher will not get that stuff out, same thing with plastic & wooden cutting boards, plastic spatulas, wooden spoons. So you might want to wait till you get the whole family tested to see if you are going to have a gluten-free kitchen or a "mixed" kitchen. Either way the flour canister has to go, because wheat flour will poof up & get into everything, not counting breathing it in. There are a lot of threads here on these issues...

Most newbies are very skeptical of this but then they learn the hard way & hence the many posts on these issues. Plus this info is also in most books on Celiac...

I have a gluten-free house & use stainless steel & glass pans & baking dishes. Well, I have some baking pans not stainless steel - new ones from Walmart. You will need things like parchment paper & cup cake liners (& I do suggest new muffin pans) because you will want to learn to bake gluten-free because it is healthier & better than bought gluten-free stuff... There is a learning curve but we have recipe sections etc. & we have all been there & are available to walk you though your first efforts. One of the easiest things to convert is a banana bread recipe or a carrot cake or an apple cake, that kind of stuff.

Just read a lot & take it one day at a time. This journey will surely result in healthier meals for everyone.

sickchick Community Regular

Very good luck on your journey. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.