Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Just Being Paranoid?

goldyjlox

Recommended Posts

goldyjlox Contributor
goldyjlox
Posted

I just got my DX and my doctor told me that one if not both my children will be positive with Celiac....and I have read the book Children with Celiac and now Isee symptoms in both my children but they could also be alot of other things so I was hoping that if I mention them and they sound familiar that someone could give me so advice.

My daughter is 3 1/2 years and she is more so the one I worry about. She is skinny as skinny gets, hardly eats anything, she never gains weight, she has always had a hard time with her bowels (she used to hold in her poo until it got so hard that it came out dry, large and it hurt her to pass it) She since has stopped this but she still has weird bowel habits. She is super whinny lately, throws tempers and for some reason she has been peeing in her pants. Now this could all be related or none of it can. But Isont know why she is like this. I Am going to talk to my doctor about it next week.

My son is 11 1/2 months and has had rashes in his diapers for about 6 weeks now and its starting to become a pain. I took him off wheat, dairy and he was using a medication and the rashes healed up. Then I started giving him oatmeal and I noticed the rashes again. I am now introducing milk as of today and I will see if that causes any more rashes. At first the rashes looked like Eczema and they were all on his buttocks and up his back a bit. Now they are small read dots and look like Hives.

Could my children have Celiac?? I am trying to change their diets to gluten free also, my daughter eats alot of crackers and cookies...alot of gluten. My son not too much as he is still so young. Today I gave him some cheerios so I will see if those react any way.

thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpaperdoll Rookie
gfpaperdoll
Posted

Yes, it sounds as if your children should be gluten free & dairy free. the best thing for children is not to feed them these items & then if their symptoms change - there is your answer. but they must be 100% gluten & dairy free, it takes a bit to get it out of your system. I am sure you are in a bit of shock & denial it is very common... Have you read any of the books on celiac - gluten intolerance?

You can check at your library or order them on line...

wishing you the best...

ptkds Community Regular
ptkds
Posted

If you plan on testing them, you need to keep them on gluten until the tests are done. But if you are just wanting to try the diet, then take them off of all gluten.

My dd had a diaper rash that I couldn't get rid of, and that is one of the things that led us to Celiac disease. I tried antifungals, Rx's, and different diaper rash meds, and nothing worked.

Also, some celiacs crave gluten before going gluten-free. So if your dd is always wanting bread/ gluten-filled things, it could be a symptom. My older dd who has celiac would often want ONLY bread w/ butter for meals. I coudn't get her to eat anything else. But now that she is gluten-free, she doesn't crave it as much.

ptkds

JennyC Enthusiast
JennyC
Posted

I would get your oldest blood tested right away before you take her off of gluten, and if you want to biopsy her then she will have to continue to eat gluten untill the procedure is complete. My son was a gluten junkie before he was diagnosed. He lived on crackers, cereal and pasta. Before diagnosis he would only eat the pasta or bread at dinner, and now he only really eats the meat. B) Your youngest is too young for accurate testing. I believe that children should be atleast 24 months old before blood tested. That is a very long time, so you may want to consider trying the diet with him as well. You could also get genetic tests done. That would tell you if he has a predisposition to develop celiac disease. I know this is a lot to deal with, but you will get through it. It gets so much easier as time goes on. :)

lovegrov Collaborator
lovegrov
Posted

Have your oldest one tested. The youngest is too young for testing and the rash doesn't particularly sound like DH or celiac related.

Anybody who has been diagnosed with celiac should urge every first-degree relative to be tested.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.