Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additives And Preservatives


Kaycee

Recommended Posts

Kaycee Collaborator

I get quite frustrated at times.

A lot of people claim that once they go gluten free their problems all clear up just like that. I think that is wonderful, but regretfully that did not happen to me.

With me it is different. I spent quite a few months struggling with the diet, eating as gluten free as I could, but there were things that kept getting me.

In an effort to understand or to better know what the problems were, I went on an elimination diet and I went nearly compeltely additive free, and I thought by doing this I would be able to pin point any possible problems. It worked quite well. My stomach and things settled, but then when I increased the dosage of prepared foods, I turned into a bit of a mess and thought it was all gluten realted, so I would cut back on the additive laden food, only to improve again.

I have never had an aversion to additives in the past, my motto seemed to be if it is food, it is fine. I was just getting a wee bit paranoid that the additives might all be made with gluten. I tell you I was quite paranoid, and people would look at me sideways with disbelief.

In hindsight, I don't have any other particular food problems. The elimination diet proved I can eat peanuts, dairy and legumes and drink coffee without any problems. But every now and then I will eat something that I re-act to. I don't think it is a gluten reaction, but now more a reaction that gives me migrains and or keeps me awake and restless at night. I can usually relate this back to eating prepared food, like coke, sauces, prepared rice dishes, icecreams etc. These are all processed food items and I do wonder whether I have an intolerance to some additives and preservatives. These are all seemingly gluten free products.

Does this happen to anyone else? Is there any particular additive that could be the main culprit?

Maybe it is all in my head.

Cathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NewB Newbie

You are 110 per cent certain that you are not casein intolerant??? I personally avoid all packaged foods...a wee bit of soy sauce can set me off.....the gut is really "old" and it doesn't react well to all these "modified this and thats" and i have stared on digestive enzyemes

gfmolly Contributor

I'm with newB. Dairy is jsut too much of an issue for me. However, I seem to be having trouble with packaged food as well. I don't think it is gluten for me, but maybe your tummy is just taking it's time to heal, and you have developed other intolerances for the time-being. When I ate only fresh foods, I do really well. Add in packaged stuff, i don't know what to link it to!

Kaycee Collaborator

Dairy is not the problem for me, as I eat a bit of cheese and milk and hyoghurts and my stomach seems to have healed. I hardly have issues with it.

Yesterday was a bad day, I had a major headache/migraine.

I still think it is additives for me, but which ones cause the worse problems, msg or what, because like tcat, I do find when I eat fresh foods and meals prepared from scratch, I am more often than not fine, but when I add packaged food, I find it hard to find the cluprit and find myself slowly going downhill.

Cathy

Rachel--24 Collaborator

Some things you might want to look into...

MSG

Aspertame

Sulfites

Food colorings/dyes (i.e. red 40)

MSG and Sulfites are present in nearly all processed foods....although not clearly labeled.

You would have to do some research to get a full understanding of how to identify these chemicals in processed foods.

Generally, when people are reacting to these things...its not just one chemical that they're having problems with.

I avoid all of this stuff...High Fructose Corn Syrup is another one I would stay away from.

Yellow Rose Explorer
I get quite frustrated at times.

A lot of people claim that once they go gluten free their problems all clear up just like that. I think that is wonderful, but regretfully that did not happen to me.

With me it is different. I spent quite a few months struggling with the diet, eating as gluten free as I could, but there were things that kept getting me.

In an effort to understand or to better know what the problems were, I went on an elimination diet and I went nearly compeltely additive free, and I thought by doing this I would be able to pin point any possible problems. It worked quite well. My stomach and things settled, but then when I increased the dosage of prepared foods, I turned into a bit of a mess and thought it was all gluten realted, so I would cut back on the additive laden food, only to improve again.

I have never had an aversion to additives in the past, my motto seemed to be if it is food, it is fine. I was just getting a wee bit paranoid that the additives might all be made with gluten. I tell you I was quite paranoid, and people would look at me sideways with disbelief.

In hindsight, I don't have any other particular food problems. The elimination diet proved I can eat peanuts, dairy and legumes and drink coffee without any problems. But every now and then I will eat something that I re-act to. I don't think it is a gluten reaction, but now more a reaction that gives me migrains and or keeps me awake and restless at night. I can usually relate this back to eating prepared food, like coke, sauces, prepared rice dishes, icecreams etc. These are all processed food items and I do wonder whether I have an intolerance to some additives and preservatives. These are all seemingly gluten free products.

Does this happen to anyone else? Is there any particular additive that could be the main culprit?

Maybe it is all in my head.

Cathy

Could be MSG check out this site Open Original Shared Link symptoms of MSG toxicity

Also check out around page 7 of the post Oh my gosh I might be on to something. There is lots of info on MSG there.

Yellow Rose

irish daveyboy Community Regular

Hi 'Kaycee',

.

Reading through your post, yes people do have reactions to additives and there is no Gluten involved.

.

Here is an extract of a post I made some time ago.

.

People who are sticking to a gluten-free diet and still suffering some or all of the symptoms, should look at food additives in processed and canned products.

.

We all know that modified starch could mean anything if it is not specified.

.

There is a suggesting that some additives and E numbers can cause similar type symptoms to

Celiac Disease (for those that may be susceptible) for example:

Phenylephine: Side effects are nausea, stomach upset, loss of appetite, headache, chest pain.

Zinc: Toxic doses cause vomiting, diarrhea, stomach irritation, depressed immune function, anaemia.

Quinine Sulphate: headaches and nausea.

Taurine: excessive consumption can cause diarrhea.

E110: Sunset Yellow, side effects hives, rhinitis, nasal congestion, allergies, abdominal pain, nausea, vomiting indigestion, distaste for food.

E132: Indigotine, may cause nausea, vomiting, skin rash, breathing problems and other allergic reactions.

E219: Tert-ButyHydroQuinone, may cause nausea, vomiting, delirium. (a dose of 5g is considered fatal)

E412: Guar gum, can cause nausea, flatulence, cramps.

E440: Pectin, large quantities may cause temporary flatulence and intestinal discomfort.

E622: Monopotassium glutamate, can cause nausea, vomiting, diarrhea, abdominal cramps.

E924: Potassium bromate, large quantities can cause nausea, vomiting, diarrhea, pain.

.

.

You may want to read through this.

.

Open Original Shared Link

.

.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
busybee629 Newbie

Here is another website on MSG. I have found this to be quite helpful. I find if I make everything from scratch I feel much better. Most of the gluten free products have xanthen gum in them, which has free glutamates( which is in MSG) in it. According to the information I read in this websites book ,there is a long list of names of glutamate containing foods. Things like gelatin capules. It is in everything.

I have switched to agar agar that I get from an asian market for my gluten free baking and it works so much better for me.

Here is the website Open Original Shared Link They are even great about answering questions about msg and offer a email address to contact them.

Hope this information is helpful. I have added the list below that shows foods that contain msg.

Debbie

Hidden Names for MSG

Foods always contain MSG when these words are on the label:

MSG, Gelatin, Calcium Caseinate

Monosodium glutamate, Hydrolyzed Vegetable Protein (HVP) Textured Protein

Monopotassium glutamate Hydrolyzed Plant Protein (HPP) Yeast Extract

Glutamate Autolyzed Plant Protein, Yeast food or nutrient

Glutamic Acid, Sodium Caseinate, Autolyzed Yeast

Foods made with the following products often contain MSG.

Malted Barley (flavor) Flavors, Flavoring Modified food starch

Barley malt, Reaction Flavors Rice syrup or brown rice syrup

Malt Extract or Flavoring Natural Chicken, Beef, or Pork, Flavoring "Seasonings" (Most assume this means salt, pepper, or spices and herbs, which sometimes it is.) Lipolyzed butter fat

Maltodextrin Soy Sauce or Extract "Low" or "No Fat" items

Caramel Flavoring (coloring) Soy Protein Corn syrup and corn syrup solids (some companies use another process to make their product, saying it is MSG free)

Stock Soy Protein Isolate or Concentrate Citric Acid (when processed from corn)

Broth, Cornstarch, Milk Powder

Bouillon, Flowing Agents, Dry Milk Solids

Carrageenan, Wheat, rice, or oat protein Protein Fortified Milk

Whey Protein or Whey Anything enriched or vitamin enriched Annatto

Whey Protein Isolate or Concentrate Protein fortified "anything" Spice

Pectin, Enzyme modified "anythng" Gums

Protease Ultra-pasteurized "anything" Dough Conditioners

Protease enzymes Fermented "anything" Yeast Nutrients

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748

    Bob Madden
    Newest Member
    Bob Madden
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.