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Need To Find Celiacs In My Area

dark wolf

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dark wolf Newbie
dark wolf
Posted

Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.

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Jamilah Rookie
Jamilah
Posted

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

No problem eating w/ someone eating gluten---it doen't cc to that extent. Wooden and plastic dishes can retain gluten, but other dishes/glasses are fine. It's good to be careful, but you can't live in a bubble.

Cheers---

Vrazel Newbie
Vrazel
Posted
Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.

Hello. I do not know how to use this either but I live in P'cola, Florida and was just diagnosed with celiac. My daughter was diagnosed first in Atlanta and the doctor said I must be the carrier so I went to Atlanta and had the biopsy and that confirmed it. I am also a diabetic. This is very hard for me. My daughter has stuck to the gluten free diet and it has made the biggest difference in her life. I have been very sick for a long time, diagnosed with fibromyalgia, crohn's disease, asthma, acid reflux, iron deficient anemic, B12 is low, been losing hair, gained weight, have sleep aepnea, etc. My doctors in Pensacola told me I did not have celiac. I kept losing blood, staying tired and I was very depressed. The doctors in Atlanta have helped me. I am hoping to find a support group in Pensacola, Florida, or nearby. I am just newly diagnosed and don't quite understand how easy it is to cross contaminate. My son and daughter in law do not feel celiac is anything to worry about. They feel I should worry more about taking care of my diabetes.

taylor- Rookie
taylor-
Posted

Hey there...there are a ton of people from florida here! I'm from Bradenton (below Tampa) but Im in Tallahassee now for school.

You should definitly look into a support group! https://www.celiac.com/st_prod.html?p_prodid=310

Even though this place could pretty much answer any questions you might have...its so great to have those people close to home. if you have any questions I would be happy to help..if i can..my email is tbv07@fsu.edu

Good luck!

  • 3 weeks later...
ackdavis Rookie
ackdavis
Posted

First, it's tough feeling isolated, nobody understands your basics to live freely. There is a lot of help on the Internet. And in person. There are lots of us who do well gluten-free and who pitch in to help actively.

Do try Open Original Shared Link to find a group near you for information and support. There are others: GIG, CSA so snoop around until you find what fits you best. Check out Open Original Shared Link and print out what you need to inform your friends? - gotta wonder if they are friends saying things like that - and family. Gluten Free Works site Open Original Shared Link has real simple Diet Cards which you can show off to anyone, to help them understand. Since they are sompact and preprinted, they look official but more importantly, they are accurate. Celiac sites for Travel have cards you can download but they aren't as detailed.

You know you are doing the right thing in sticking to gluten-free, for your well-being. I find I can do much more with a positive attitude and a smile than when I sound negative so I try to always approach the unknowing as if I am helping them. Seems to work for me.

Try Open Original Shared Link and celiac chicks site too. They have lots to say in a good manner, all that helps gluten-free and Celiacs everywhere and with a social context.

Best of fortune! The more we get our word out about how easy it it to mess up a simple plate, the better for you and for all of us! Our eats are delicious! Others should have as much variety in their diets as we do.

B)

Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.

mamaw Community Regular
mamaw
Posted

Hello & welcome

First off I'm not from Florida but you can learn so much from this site. I'm not good at this computer thing either so don't let that stop you...

I think you are asking how to navigate around this site? If you wish to answer a thread or message just hit the relpy button & post you response.If you want to post a new question , hit new topic in the section that best fits your question. Ie: a recipe ? would be placed in the cooking section.

You also will see an option choice, if you would like to be notified when someone answers your ? just click on immediate notification & it will let you know someone has answered.

There are many topics as Doctors, Cooking,& so on then when you click on a topic all the ???'s appear & you can read the ones that interest you. They go on forever.

I will tell you that you will learn more right here than most doctors could ever tell you. The recipes are wonderful & alot of sharing & caring takes place here.

I hope this was what you were asking.....

Please ask questions because everyone here will help you.....

blessings

mamaw

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      Awaiting dermatitis herpetiformis confirmation following biopsy

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    • trents
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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
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