Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Fell Off The Wagon...

TheresaM

By TheresaM
in Coping with Celiac Disease

Recommended Posts

TheresaM Newbie
TheresaM
Posted

I was gluten free for over a year and a half and then fell off the wagon two months ago when my son was born. I was SO HUNGRY while breastfeeding and at first I didn't have the adverse effects...well they are back - extreme joint pain, abdominal pain, numbness in my hands and feet - I've even had eight cavities spring up since my last checkup six months ago. I know I'm going to have to go through Gluten Detox again. I'm beating myself up now for letting it go on for two months...

Can someone help me out in getting back into the swing of things...any advice? I hate having to start over...but I guess I do huh?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

Congratulations on the birth of your baby. Such an exciting time for you and your family!

My opinion is that the diet itself will be the reward, once you start feeling better. You might start with fresh whole foods, with the idea of nourishing your body-- plain fresh meat, chicken and fish, tasty veggies and fruits (cooked if that helps your digestion while your system heals), non-processed foods and little fast food or junk. It's hard but will be worth it!

You might promise yourself something good for following the diet- a massage, coffee with friends, a manicure, dinner and a walk with your spouse/partner. I hope your spouse/partner/family/friends are helpful and can treat you well while you take care of your body and your baby!

NoGluGirl Contributor
NoGluGirl
Posted
I was gluten free for over a year and a half and then fell off the wagon two months ago when my son was born. I was SO HUNGRY while breastfeeding and at first I didn't have the adverse effects...well they are back - extreme joint pain, abdominal pain, numbness in my hands and feet - I've even had eight cavities spring up since my last checkup six months ago. I know I'm going to have to go through Gluten Detox again. I'm beating myself up now for letting it go on for two months...

Can someone help me out in getting back into the swing of things...any advice? I hate having to start over...but I guess I do huh?

Dear TheresaM,

I have been gluten-free since August of 2006. I never cheat due to becoming violently ill upon ingesting even the most minute amount of gluten. My brother, however, is just starting his gluten-free journey. Gluten detox is tough. I think your pregnancy altered your hormones and that caused you to desire the gluten.

Saving your teeth sounds like good motivation to be gluten-free again. ;) If you continue to eat gluten, you will not have any teeth left to chew gluten-containing or any other type of food! My father had to go through the misery of getting his teeth pulled and root canaled, then having to remove a majority of his diseased teeth for false ones. This is not something you want to go through! If it is that hard on your teeth, imagine what it does to your poor, defenseless villi in your intestines. You can just hear them screaming for help as gluten passes through, flattening them. :(

Sincerely,

NoGluGirl

JNBunnie1 Community Regular
JNBunnie1
Posted
If it is that hard on your teeth, imagine what it does to your poor, defenseless villi in your intestines. You can just hear them screaming for help as gluten passes through, flattening them. :(

Sincerely,

NoGluGirl

HAHAHAHAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!

Someone (not me, can't even draw a proportionate stick figure) should start a comic strip about the dangers of Celiac disease. They could have Schwarzenegger be gluten! "I'LL BE BACK!" HAHAHAHAH!!!!

NoGluGirl Contributor
NoGluGirl
Posted

Dear JNBunnie1,

ROTFLMAO! :lol: I could do the comic! I am an artist! How about Osama Bin Laden as gluten? There are a lot of good possibilities for that! Gluten is the enemy!

Sincerely,

NoGluGirl

Saz Explorer
Saz
Posted

Try not to beat yourself up about it, I found that when I was trying to stop eating gluten the more I would be beat myself up about it, the less easy it was. I stoped gradually eating it, start out small by maybe having fruit for breakfast instead toast ( or find a nice gluten-free one). I have to eat a lot gluten before I will get ill so this may not be suitable for you, but just thought I'd share my experince. I also like what other posters mentioned about treating yourself to something special if you avoid gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.