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Im New And Need Help For My Son..

heidi111

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heidi111 Newbie
heidi111
Posted

Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)

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JennyC Enthusiast
JennyC
Posted

You can purchase gluten free food software, but when I bought it many of the brands that I use were not even on it. In my opinion it was a big waste of money. I think the best way to shop is to buy products from companies that will not hide gluten in other ingredients such as spices, flavorings, and natural flavorings. When you look in the ingredient list from one of those companies if there is gluten in the product they will disclose it. For example, Nestle Butterscotch chips ingredient disclosure looks like this: natural flavors (barley). There are many companies like this including Kraft, General Mills, and Nestle. I will post a link to a more complete list. Other companies have gluten free lists online such as Ore-Ida/Heinz, Newman's Own, and Frito-Lay. What I do is if the company does not list their gluten, I go to their website and look under the FAQ or ingredient section and if I find nothing there, then I call them. It gets easier once you figure out the brands to buy.

I recommend that you call all of the major companies, because this list may not be perfect.

Open Original Shared Link

Luisa2552 Apprentice
Luisa2552
Posted

What a nice mom you are! What you could do is gather the lists and put them in a binder for him. Get him a copy of Living Gluten Free for Dummies- it's a great, easy to follow book. All the big grocery store chains usually have lists of gluten-free foods they stock.

If you are a baker you could do some experimenting with gluten-free products and bake him a gluten-free birthday cake! The possibilities are endless :)

Start with this list of unsafe ingredients. I'm sure others will post other lists for you. Good luck

https://www.celiac.com/st_prod.html?p_prodi...-02107601791.3f

Crystalkd Contributor
Crystalkd
Posted

I agree that there is no need to buy programs to help. I would also suggest Living gluten free for dummies. I have two copies. One I keep at home and the other pretty much stays with me. I would also pick up a gluten free cook book for him as well. It will cut down on cost some if he stays away from the processed stuff and learns to cook for himself. Make larger portions when you cook and the refrigerate or freeze them in single servings that that he doesn't have to cook every night. Things are hard at first but it gets easier with time.

  • 2 weeks later...
JNBunnie1 Community Regular
JNBunnie1
Posted
Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)

Also, if you send a private message to a member called NoGluGirl, she has a list of brands and products that's pretty current.

KHumphrey Newbie
KHumphrey
Posted

My husband has celiac disease and I find myself reading a ton of labels. It can be tiring but he likes to try new things. It is nice that a lot of companies are noting on the bottom of the ingredientes "contains- gluten or wheat". This way I don't have to read through the whole label.

I do a lot of baking for my husband as whenever I make cookies or cakes, he wants some too. I've found that working with corn starch and potato starch as a substitute for flour works pretty well. I usually use 2/3 corn starch and 1/3 potato starch. But usually have to add xanthium gum (not sure on spelling) it helps hold the products together better. You can get it at speciality or organic stores.

There are also some great cookbooks. I'll have to write down the one from home that I use all the time. Sometimes I even prefer his baked goods to mine (his cakes are very dense).

  • 8 months later...
tiredeyes Newbie
tiredeyes
Posted
Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)

If he joins the celiac society he can get a book that lists all types of ingredients, if they contain gluten or not, it makes shopping so much easier yes you have to look at all the ingredients on packets. But being a mum of a daughter with celiacs you get to know what you are looking for and what not to have or give there are alternatives to all sorts of foods these days and a lot of them you wouldn't know the difference. hope this is some help goodluck your a great mum for caring to find out.

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  • 2 weeks later...
Amyleigh0007 Enthusiast
Amyleigh0007
Posted

Get him a crockpot! Crockpot cooking is so easy! Get a large one and they have leftovers for lunch the next day. Just throw in some chicken breasts and BBQ sauce (Sweet Baby Rays is gluten free and yummy) and cook on low for 7 hours. There is nothing easier than that!

Walmat's store brand, Great Value, states Gluten-Free on all products that are free of gluten. That makes shopping much easier and faster.

I also found the book Living Gluten Free for Dummies by Danna Korn very helpful in those early weeks after my son's dx. It's simple to understand and fun to read.

rumbles Newbie
rumbles
Posted

A new cutting board and new cooking utensils, pots, pans might be a great gift. Old cutting boards, collanders, wood spoons that were used to make products containing gluten need to go, - it's almost impossible to get the gluten out of them. A new toaster could also be a great gift, - since he'll need one that is never used for gluten. If he barbeques, perhaps a new barbeque (or grill insert) and some natural wood barbeque coals (the regular BBQ coals are made with gluten).

cruelshoes Enthusiast
cruelshoes
Posted

Here are some links you may find helpful.

Open Original Shared Link - a great starter guide

Open Original Shared Link

Open Original Shared Link

WhimsiKay Apprentice
WhimsiKay
Posted

Because it's something I want very much for myself, and he IS turning 18 ( ;) ), I would recommend getting him an iPod or equivalent for your cell company.

Aside from the sheer awesome of it, it'll be extremely helpful: he can keep DO NOT TOUCH lists or grocery lists on it (tons of list keeping!) without having to carry around physical binders of products, and the best part, he can browse this forum and do a search right on the spot if he's at the store or a restaurant and has to look up a brand name or product.

Plus, you get super, awesome, mega-special bonus points for being coolest mom ever. ;) I've been reassured this by my nephew. :rolleyes:

dksart Apprentice
dksart
Posted
Because it's something I want very much for myself, and he IS turning 18 ( ;) ), I would recommend getting him an iPod or equivalent for your cell company.

iPhone

  • 3 weeks later...
ericajones80 Newbie
ericajones80
Posted

i second the iPhone

TrillumHunter Enthusiast
TrillumHunter
Posted

I third the iPhone. He can search online in the store or call the company. Plus, it has a notepad where he can keep lists of stuff he likes. Not to mention it has an iPod as well.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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