Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Gluten Free Day!

kowkitty

By kowkitty
in Coping with Celiac Disease

Recommended Posts

kowkitty Rookie
kowkitty
Posted

Hi

So I have a doctors appointment for next week. I know it is better to wait until you get all your tests done but.... I was originally diagnosed as a toddler and I've been feeling so miserable lately. I've decided to just go ahead and try it.

I did a great job until a little while ago... forgot about the imitation crabmeat in the california rolls!! oh well, live and learn I guess. I bought a bunch of gluten free items from the supermarket. Soy pudding was very tasty!!!

But not sure about some items. Are these things okay????

balsalmic vinegar

chicken (plain)

fresh spinach

fresh carrot

tofu cheese

regular butter

eggs

honey

yogurt

fresh mushrooms

Guess I should buy a book with a good list in it.

If a item says gluten free can I trust that it is truly gluten free???

Thanks for any info

Jackie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted
Hi

So I have a doctors appointment for next week. I know it is better to wait until you get all your tests done but.... I was originally diagnosed as a toddler and I've been feeling so miserable lately. I've decided to just go ahead and try it.

I did a great job until a little while ago... forgot about the imitation crabmeat in the california rolls!! oh well, live and learn I guess. I bought a bunch of gluten free items from the supermarket. Soy pudding was very tasty!!!

But not sure about some items. Are these things okay????

balsalmic vinegar

chicken (plain)

fresh spinach

fresh carrot

tofu cheese

regular butter

eggs

honey

yogurt

fresh mushrooms

Guess I should buy a book with a good list in it.

If a item says gluten free can I trust that it is truly gluten free???

Thanks for any info

Jackie

The fresh veggies and eggs should be good. What items say gluten free? Are they items tou bought today at your store? Some grocery stores label gluten free on their products. Walmart's Great Value brand and also Wegmans both label their store brands.

Ursa Major Collaborator
Ursa Major
Posted

If you were diagnosed as a toddler, you really don't need any more testing, you still have celiac disease. In those days they falsely believed you outgrow celiac disease, but they were wrong. Teenagers often stop having symptoms for a few years (while the damage continues) for whatever reason. But you pay later for eating gluten again.

Everything naturally gluten-free is good, like fresh meat, eggs, veggies, fruit. Unless you thicken them with flour (or make gravy with it instead of a gluten-free alternative) you can't go wrong here.

Make sure you don't buy yoghourt that has been thickened with wheat starch. Try all natural.

Everything else you mentioned should be fine, unless you are also intolerant to dairy and soy (and there is a fairly good chance you may be).

jewi0008 Contributor
jewi0008
Posted
If you were diagnosed as a toddler, you really don't need any more testing, you still have celiac disease. In those days they falsely believed you outgrow celiac disease, but they were wrong. Teenagers often stop having symptoms for a few years (while the damage continues) for whatever reason. But you pay later for eating gluten again.

Everything naturally gluten-free is good, like fresh meat, eggs, veggies, fruit. Unless you thicken them with flour (or make gravy with it instead of a gluten-free alternative) you can't go wrong here.

Make sure you don't buy yoghourt that has been thickened with wheat starch. Try all natural.

Everything else you mentioned should be fine, unless you are also intolerant to dairy and soy (and there is a fairly good chance you may be).

Question on something you said...you said: "Teenagers often stop having symptoms for a few years (while the damage continues)...." This is so interesting to me. How did you know that? Or where did you find that out? The reason I ask is b/c I remember having problems up until I was a teenager. Then, when I was in college I got a major rash on my nose and cuts in the corners of my mouth. With meds and topical cream, this went away. Then, when I was 21 I had a tonsillectomy. Ever since, I've had nothing but problems with stomach and mouth. Does this sound right to you?!

jewi0008 Contributor
jewi0008
Posted
Hi

So I have a doctors appointment for next week. I know it is better to wait until you get all your tests done but.... I was originally diagnosed as a toddler and I've been feeling so miserable lately. I've decided to just go ahead and try it.

I did a great job until a little while ago... forgot about the imitation crabmeat in the california rolls!! oh well, live and learn I guess. I bought a bunch of gluten free items from the supermarket. Soy pudding was very tasty!!!

But not sure about some items. Are these things okay????

balsalmic vinegar

chicken (plain)

fresh spinach

fresh carrot

tofu cheese

regular butter

eggs

honey

yogurt

fresh mushrooms

Guess I should buy a book with a good list in it.

If a item says gluten free can I trust that it is truly gluten free???

Thanks for any info

Jackie

Jackie...it is VERY tough...I understand what you are going through. Be very careful with the cheese, butter, eggs. I have problems with those. In addition, yeast MAY bother you, so watch out for the mushrooms. The yogurt, if made with Modified food starch is not a good choice. Go all natural; plain meat,fruits and veggies. It's hard and it is by no means "fun" but you should start to feel better. If I get "glutoned" it takes me forever to recover. Good luck!

JennyC Enthusiast
JennyC
Posted

Just wanted to add that Yoplait will clearly list their gluten, and many containers say gluten free right on them. I wish I could get my son to eat the natural stuff. He doesn't like it plain and he will not eat any flavors with fruit chunks. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748
    mark mcdonald
    Newest Member
    mark mcdonald
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.