Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain - Worse In Morning


KerriAnne

Recommended Posts

KerriAnne Rookie

Has anyone else ever had bad abdominal pain, particularly in the morning? Over my 3.5y on a gluten-free diet since being diagnosed, occasionally I have these spells where, even though I cannot easily identify any dietary changes, I feel horrible again...and then the symptoms resolve almost as suddenly as they came on. One particular symptom is abdominal pain - and I don't mean gas pain.

Pain is so hard to describe but I'll do my best... it's the worst in the morning but doesn't necessarily ever go away during these "spells", it gets worse with pressure (like if you suck in your stomach or press into your stomach), and it doesn't get better or worse with eating. Sometimes just taking a deep breath makes me feel the pain sharply. I have often wondered whether this is an indication of intestinal damage - do you think the damage caused by gluten is painful? For the most part I've done very well on the diet, so it's hard to imagine that these sick spells that may be caused by a mysterious source of gluten would cause enough damage to cause pain... but it's just a thought. I've had severe gas pain before - I'm fairly certain this pain is due to something else.... I just don't know what!

Let me know if you have ever felt this way or know what causes it.

Thanks.

Kerri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kivmom3

Kerri

Just so you don't feel alone in your stomach pain....

I too have horrible stomach pain. It's about the same as you described. I am going to the GI celiac specialist tomorrow to see if he can figure out what is causing this horrible pain!!!

I can get back to you if he finds anything so that you can inquire to your doctor. Just PM me and I will get back to you.

Hopefully some other people will post to see if there is any other correlation....

Hang in there.

Gg

JNBunnie1 Community Regular

That sounds awful. Has that been happening ever since you went gluten-free? What's the frequency of it? It occurred to me you may have some kind of intestinal blockage, I don't know whether Celiac can cause enough damage to have pain like that when you're gluten-free. Ulcer, maybe?

KerriAnne Rookie

I had an ulcer years ago... doesn't feel the same as far as I can remember, and the pain this time is in the lower/central abdomen - my ulcer pain was under my ribs. I had this pain before being diagnosed - and in general, it went away with my other symptoms when I went on the gluten-free diet. I just wish I knew what causes it. I could be wrong - it could be gas pain, I suppose. I just don't get it. It's a deep stabbing-like pain. Anyhow, I'm going to go do some searching & reading to see what I can find... I'll let you all know if I get enlightened!

tempurachic Newbie

I can relate. I wake up with a painful abdomin often lately. I don't attribute it to consuming gluten or gas either. It particularly hurts under my ribs on the right. It feels hard to the touch and hurts badly. It's hard to push through in the morning. We have two little kids and there is no time to lay down and rest it seems. My husband encourages me to lay down after work and take it easy but it's not practical. Life still has to go on.

Before my stomach would bloat up if I ate gluten. But for the last two weeks my stomach is constantly bloated. It sucks. It hurts. I don't know what is causing it. It's embarassing because it looks like I'm pregnant...and I'm not! My stomach measured at 39 inches and that's no where near my usual size. My clothes arn't fitting and that's discouraging too.

I went to my GI doctor and he ordered another CAT scan. I'm thankful to have an attentive doctor but I'm confident the CAT scan is going to come back negative which is good but doesn't help us explain what's goign on.

It feels good to say this stuff to other peopel with celiac disease. My husband is wonderful and fully supportive but i know he's getting a little weary of this bout with my stomach being so bloated and me not being my usual self.

If anyone has any words for me I'd love to hear them!

  • 2 weeks later...
Runner1978 Rookie

I've been gluten free for about a month and I feel sicker now than I did then. I have the same pains you have described. I also have a complete loss of appetite, which is not normal given that I'm a runner. These pains are worse in the morning and they are followed by nausea. I also get them throughout the day.

Please let me know what you find out.

oceangirl Collaborator

For the females with this pain: Please check this out with a GYN just to be safe. Celiac and GI symptoms can be many things. Where you've had this for awhile, KerriAnne, I think you should check out your reproductive system just to have peace of mind. Of course, you may already have done this. I have terrible abdominal pain with gluten and now am having some again although I live in a gluten-free household and make everything myself! Very frustrating! I hope you fel better very soon!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dinali63 Rookie

I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items I was eating contained some sort of soy). The pain improved in a day and this morning I feel great!

Always check things out medically, but you may want to think about other food intolerances. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.