Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain - Worse In Morning


KerriAnne

Recommended Posts

KerriAnne Rookie

Has anyone else ever had bad abdominal pain, particularly in the morning? Over my 3.5y on a gluten-free diet since being diagnosed, occasionally I have these spells where, even though I cannot easily identify any dietary changes, I feel horrible again...and then the symptoms resolve almost as suddenly as they came on. One particular symptom is abdominal pain - and I don't mean gas pain.

Pain is so hard to describe but I'll do my best... it's the worst in the morning but doesn't necessarily ever go away during these "spells", it gets worse with pressure (like if you suck in your stomach or press into your stomach), and it doesn't get better or worse with eating. Sometimes just taking a deep breath makes me feel the pain sharply. I have often wondered whether this is an indication of intestinal damage - do you think the damage caused by gluten is painful? For the most part I've done very well on the diet, so it's hard to imagine that these sick spells that may be caused by a mysterious source of gluten would cause enough damage to cause pain... but it's just a thought. I've had severe gas pain before - I'm fairly certain this pain is due to something else.... I just don't know what!

Let me know if you have ever felt this way or know what causes it.

Thanks.

Kerri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kivmom3

Kerri

Just so you don't feel alone in your stomach pain....

I too have horrible stomach pain. It's about the same as you described. I am going to the GI celiac specialist tomorrow to see if he can figure out what is causing this horrible pain!!!

I can get back to you if he finds anything so that you can inquire to your doctor. Just PM me and I will get back to you.

Hopefully some other people will post to see if there is any other correlation....

Hang in there.

Gg

JNBunnie1 Community Regular

That sounds awful. Has that been happening ever since you went gluten-free? What's the frequency of it? It occurred to me you may have some kind of intestinal blockage, I don't know whether Celiac can cause enough damage to have pain like that when you're gluten-free. Ulcer, maybe?

KerriAnne Rookie

I had an ulcer years ago... doesn't feel the same as far as I can remember, and the pain this time is in the lower/central abdomen - my ulcer pain was under my ribs. I had this pain before being diagnosed - and in general, it went away with my other symptoms when I went on the gluten-free diet. I just wish I knew what causes it. I could be wrong - it could be gas pain, I suppose. I just don't get it. It's a deep stabbing-like pain. Anyhow, I'm going to go do some searching & reading to see what I can find... I'll let you all know if I get enlightened!

tempurachic Newbie

I can relate. I wake up with a painful abdomin often lately. I don't attribute it to consuming gluten or gas either. It particularly hurts under my ribs on the right. It feels hard to the touch and hurts badly. It's hard to push through in the morning. We have two little kids and there is no time to lay down and rest it seems. My husband encourages me to lay down after work and take it easy but it's not practical. Life still has to go on.

Before my stomach would bloat up if I ate gluten. But for the last two weeks my stomach is constantly bloated. It sucks. It hurts. I don't know what is causing it. It's embarassing because it looks like I'm pregnant...and I'm not! My stomach measured at 39 inches and that's no where near my usual size. My clothes arn't fitting and that's discouraging too.

I went to my GI doctor and he ordered another CAT scan. I'm thankful to have an attentive doctor but I'm confident the CAT scan is going to come back negative which is good but doesn't help us explain what's goign on.

It feels good to say this stuff to other peopel with celiac disease. My husband is wonderful and fully supportive but i know he's getting a little weary of this bout with my stomach being so bloated and me not being my usual self.

If anyone has any words for me I'd love to hear them!

  • 2 weeks later...
Runner1978 Rookie

I've been gluten free for about a month and I feel sicker now than I did then. I have the same pains you have described. I also have a complete loss of appetite, which is not normal given that I'm a runner. These pains are worse in the morning and they are followed by nausea. I also get them throughout the day.

Please let me know what you find out.

oceangirl Collaborator

For the females with this pain: Please check this out with a GYN just to be safe. Celiac and GI symptoms can be many things. Where you've had this for awhile, KerriAnne, I think you should check out your reproductive system just to have peace of mind. Of course, you may already have done this. I have terrible abdominal pain with gluten and now am having some again although I live in a gluten-free household and make everything myself! Very frustrating! I hope you fel better very soon!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dinali63 Rookie

I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items I was eating contained some sort of soy). The pain improved in a day and this morning I feel great!

Always check things out medically, but you may want to think about other food intolerances. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.