Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain - Worse In Morning


KerriAnne

Recommended Posts

KerriAnne Rookie

Has anyone else ever had bad abdominal pain, particularly in the morning? Over my 3.5y on a gluten-free diet since being diagnosed, occasionally I have these spells where, even though I cannot easily identify any dietary changes, I feel horrible again...and then the symptoms resolve almost as suddenly as they came on. One particular symptom is abdominal pain - and I don't mean gas pain.

Pain is so hard to describe but I'll do my best... it's the worst in the morning but doesn't necessarily ever go away during these "spells", it gets worse with pressure (like if you suck in your stomach or press into your stomach), and it doesn't get better or worse with eating. Sometimes just taking a deep breath makes me feel the pain sharply. I have often wondered whether this is an indication of intestinal damage - do you think the damage caused by gluten is painful? For the most part I've done very well on the diet, so it's hard to imagine that these sick spells that may be caused by a mysterious source of gluten would cause enough damage to cause pain... but it's just a thought. I've had severe gas pain before - I'm fairly certain this pain is due to something else.... I just don't know what!

Let me know if you have ever felt this way or know what causes it.

Thanks.

Kerri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kivmom3

Kerri

Just so you don't feel alone in your stomach pain....

I too have horrible stomach pain. It's about the same as you described. I am going to the GI celiac specialist tomorrow to see if he can figure out what is causing this horrible pain!!!

I can get back to you if he finds anything so that you can inquire to your doctor. Just PM me and I will get back to you.

Hopefully some other people will post to see if there is any other correlation....

Hang in there.

Gg

JNBunnie1 Community Regular

That sounds awful. Has that been happening ever since you went gluten-free? What's the frequency of it? It occurred to me you may have some kind of intestinal blockage, I don't know whether Celiac can cause enough damage to have pain like that when you're gluten-free. Ulcer, maybe?

KerriAnne Rookie

I had an ulcer years ago... doesn't feel the same as far as I can remember, and the pain this time is in the lower/central abdomen - my ulcer pain was under my ribs. I had this pain before being diagnosed - and in general, it went away with my other symptoms when I went on the gluten-free diet. I just wish I knew what causes it. I could be wrong - it could be gas pain, I suppose. I just don't get it. It's a deep stabbing-like pain. Anyhow, I'm going to go do some searching & reading to see what I can find... I'll let you all know if I get enlightened!

tempurachic Newbie

I can relate. I wake up with a painful abdomin often lately. I don't attribute it to consuming gluten or gas either. It particularly hurts under my ribs on the right. It feels hard to the touch and hurts badly. It's hard to push through in the morning. We have two little kids and there is no time to lay down and rest it seems. My husband encourages me to lay down after work and take it easy but it's not practical. Life still has to go on.

Before my stomach would bloat up if I ate gluten. But for the last two weeks my stomach is constantly bloated. It sucks. It hurts. I don't know what is causing it. It's embarassing because it looks like I'm pregnant...and I'm not! My stomach measured at 39 inches and that's no where near my usual size. My clothes arn't fitting and that's discouraging too.

I went to my GI doctor and he ordered another CAT scan. I'm thankful to have an attentive doctor but I'm confident the CAT scan is going to come back negative which is good but doesn't help us explain what's goign on.

It feels good to say this stuff to other peopel with celiac disease. My husband is wonderful and fully supportive but i know he's getting a little weary of this bout with my stomach being so bloated and me not being my usual self.

If anyone has any words for me I'd love to hear them!

  • 2 weeks later...
Runner1978 Rookie

I've been gluten free for about a month and I feel sicker now than I did then. I have the same pains you have described. I also have a complete loss of appetite, which is not normal given that I'm a runner. These pains are worse in the morning and they are followed by nausea. I also get them throughout the day.

Please let me know what you find out.

oceangirl Collaborator

For the females with this pain: Please check this out with a GYN just to be safe. Celiac and GI symptoms can be many things. Where you've had this for awhile, KerriAnne, I think you should check out your reproductive system just to have peace of mind. Of course, you may already have done this. I have terrible abdominal pain with gluten and now am having some again although I live in a gluten-free household and make everything myself! Very frustrating! I hope you fel better very soon!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dinali63 Rookie

I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items I was eating contained some sort of soy). The pain improved in a day and this morning I feel great!

Always check things out medically, but you may want to think about other food intolerances. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    2. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Dried Chickpeas

    4. - ainsleydale1700 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,434
    • Most Online (within 30 mins)
      7,748

    LexiBusch
    Newest Member
    LexiBusch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
    • ainsleydale1700
      Hi, could someone help me understand the result of my gene test? DQ2 (DQA1 0501/0505,DQB1 02XX): Negative DQ8 (DQA1 03XX,DQB1 0302): Negative The patient is positive for DQB1*02, one half of the DQ2 heterodimer.  The doctor said I don't have Celiac genes.  I asked him to clarify about my positive DQB1*02, and he said it's a gene unrelated to Celiac.  I have all the symptoms and my bloodwork is positive for antibodies, despite being on a gluten-free diet for the past 4 years.  He also did a biopsy but told me to continue a gluten-free diet and not eat gluten before the biopsy.  Based on the gene test and biopsy (which came back negative) he ruled out Celiac, leaving me very confused.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.