Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does This Work?

NoSugarShell

Recommended Posts

NoSugarShell Explorer
NoSugarShell
Posted

I suspect that I have some kind of gluten intolerance so I have eliminated it from my diet. Over the years I have had so many different symptoms that seem to go right along with Celiac disease and I have an uncle that has been diagnosed with it.

Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

If anyone has any advice or insight for me please I am all ears.

Sincerely,

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted

Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

EBsMom Apprentice
EBsMom
Posted
Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

jewi0008 Contributor
jewi0008
Posted
Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

I agree, I'm always really bad for 2 weeks after as well. It's literally on the 13th or 14th day that things start to disappear. I wonder why that timing is?!

NoSugarShell Explorer
NoSugarShell
Posted
  • Author

Thank you for the reply's. It really helps in motivating me to stick with it. I can't wait for the two week mark. :D

JNBunnie1 Community Regular
JNBunnie1
Posted

I second getting a blood panel for nutrients done, and maybe sarting now with some Vitamin B, since everyone with Celiac seems to feel better taking it.

Kitty Cat Newbie
Kitty Cat
Posted
Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

I didn't know this I been almost gluten free since last Friday (3 crakers, 2 small cookies and maybe something else). And I've been feeling like poo. I do work out almost everyday sometime twice a day. So keeping my energy level up is hard.

going to the GI tomorrow to talk about my problems.

You go NoSugarShell :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.