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Site Of Abdominal Pain?

AFH

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AFH Newbie
AFH
Posted

I've been reading quite a bit on Celiac but I still have many questions. I understand that abdominal pain is a symptom but where in the abdomen does it cause pain and is it sharp or dull? I figure Celiac may be an unlikely fit but what do I know?

I went to my internist with complaints of upper left abdominal pain (dull and achy) gas, constipation and occasional heartburn (although it used to be more frequent) and tingling in my legs. He did blood work and said my b12 was normal but my platelets were a little low. I go back on the 8th to have the test repeated to check on my platelets.He put me on protonix and referred me to a GI because of fecal occult blood.

I am scheduled for a EGD and colonoscopy on the 22th of this month. The GI gave me hyoscyamine which gave me the worst heartburn I had ever had. I stopped taking it.

Heres where my Celiac suspicion comes in. I have an uncle who had some sort of malabsorption problem. I don't know if it was celiac or even digestive in nature. They overfed him to compensate and he dies in his sleep after getting a cold (he was severly obese and only about 5 years old). The GI seemed to think he was too distant a relative to affect me.

I am sorry for going on so long. I know it sounds strange but I kinda hope it's Celiac at least then I have some hope of relief and it's better than my worst fear, the C word.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Hi and welcome to the board. It is very hard to say if your pain is celiac related or not. The damage from celiac can be varied and it can effect different folks differently. You should make sure you keep eating gluen until the tests are finished and make sure the GI takes lots of biopsies during the endo. While you are waiting for your test day spend some time here and on other celiac sites like the celiac sprue association and when the tests are done you should do a dietary trial of the gluten free diet. You may even know yourself by your bodies reaction before the biopsies are back. I hope you get some relief from your discomfort soon and don't be afraid to ask any question you need to.

AFH Newbie
AFH
Posted
  • Author

I was just wondering if anyone who had Celiac had the pain where I do. I'm trying to decide if I should bring it up with my internist who I see on the 15th or just ask the GI to take samples for it.

On a different note, does anyone remember if the colonoscopy and EGD are extremely expensive? I only have to pay part of it but I'm wondering how bad it may be.

Motorboater Explorer
Motorboater
Posted
I was just wondering if anyone who had Celiac had the pain where I do. I'm trying to decide if I should bring it up with my internist who I see on the 15th or just ask the GI to take samples for it.

On a different note, does anyone remember if the colonoscopy and EGD are extremely expensive? I only have to pay part of it but I'm wondering how bad it may be.

I live in Illinois and just had my colonoscopy and EGD scope done and it was $4258.00 as an outpatient, and another $1830.00 in Dr's fee's. Every state and insurance is different.

Pam

nora-n Rookie
nora-n
Posted

I am in Europe and paid aabout 50 $...

Daughter had this sharp pain for a long time to the right, just under the liver, where the duodenum starts. I guess the duodenum goes to the left just after that.

nora

AFH Newbie
AFH
Posted
  • Author

I appreciate all of your replies. I'm very excited to get this EGD over with because I think I'm gonna try to go gluten free after it's over. I feel like I've tried everything else. If it doesn't work at least I gave it a shot.

Eating a high fiber diet has been on the top of my list to help me with the Constipation, but after days of forcing down Fiber One cereal I feel awful. Talking to my aunt today she said Fiber One made things worse for her as well.

Sorry for so much detail. It seems like my life revolves around my toilet habits lately. Thanks for listening and responding.

ravenwoodglass Mentor
ravenwoodglass
Posted
I appreciate all of your replies. I'm very excited to get this EGD over with because I think I'm gonna try to go gluten free after it's over. I feel like I've tried everything else. If it doesn't work at least I gave it a shot.

Eating a high fiber diet has been on the top of my list to help me with the Constipation, but after days of forcing down Fiber One cereal I feel awful. Talking to my aunt today she said Fiber One made things worse for her as well.

Sorry for so much detail. It seems like my life revolves around my toilet habits lately. Thanks for listening and responding.

So many of us have dealt with the 'get more fiber' advice, it seems we all reach for that high fiber cereal. For me it was shredded wheat and triscuts. I am always surprised that our medical folks don't let people know that there is more to the world of fiber than cereals grains. I find getting some extra fruits and veggies to be much more helpful. Just adding a couple of those single serving applesauces with some cinnamon on top and an extra serving of veggies helps me out a lot more than all those fiber supplements and grains.

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AFH Newbie
AFH
Posted
  • Author

First off I want to thank everyone who took the time to reply to me. This stuff is all very new and scary and advice from people with experience sure does help.

I went to my internist yesterday for a follow up. My platelets have gone back up to normal! I mentioned a lip rash that I get from time to time to him and he immediately suggested I go off milk. Now I had a milk allergy as an infant but forgot all about it. He said milk was a common allergy and that it is likely since I had it as a baby. He told me that milk causes all sorts of problems, even behavior problems. What I want to know is does anxiety fall under that category. Does anyone have anxiety along with a milk allergy? I hate the thought of going off milk because cheese is my favorite food. But I will try anything at this point.

Questions I have for people who have a milk allergy...

Can I have cheese made from goats milk?

Do I need to avoid milk that is in baked goods?

What about margarine, it is dairy free right?

Do you know of any good sites or forums on this topic?

Thank you so much.

uclangel422 Apprentice
uclangel422
Posted

I am a little late to this post but my pain is in the exact same spot where you are feeling it. My doc thought i was crazy because he didnt think anything was there that could cause anything.

I also had a milk allergy as a child but can tolerate it now, as long as its not too much of it.

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