Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Vitamin D Levels

horsegirl

By horsegirl
in Coping with Celiac Disease

Recommended Posts

horsegirl Enthusiast
horsegirl
Posted

I recently asked my doctor to test my vitamin B12 and vitamin D levels since I'm "free" of several

different major food groups now. My B12 was in the "normal" range, but the D was quite low

("optimum functioning" is 35, & I was 18). The doctor recommended bumping up my intake to 1200 units daily. But how do I do that? Supplements? Certain foods?

Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Mine was also just tested and found to be below optimal. They're having me take a vitamin D3 supplement with 50,000 IU of Vitamin D3...I'm taking one of those a day for a month...don't know what happens after that though, I need to ask tomorrow. She said the idea behind the megadose is to "flood the receptors" whatever that means. I don't think I could get that much with just food alone. You might call your doctor and ask about the best way to get it.

hathor Contributor
hathor
Posted

I believe someone recently posted a link to an article about how D3 supplements are better than the usual D2 ones.

A number of foods are supplemented with D. I see my hemp milk has D2 and my orange juice has D3.

I wouldn't recommend taking more than what your doctor personally prescribes. You don't want to overdose.

Do you get much sunlight? This is the way humans have traditionally gotten their Vitamin D. Here's an article I recently read:

Open Original Shared Link

Nancym Enthusiast
Nancym
Posted

This site has some good information: Open Original Shared Link

This cardiac doctor blogs about the importance of D3 and has specific recommendations on which sort to take in this posting: Open Original Shared Link

JNBunnie1 Community Regular
JNBunnie1
Posted

I'd try an hour outside in the sun every day. Of course, some of us don't have the time for that (ha ha) but it's a noble idea.

Ursa Major Collaborator
Ursa Major
Posted

Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

elye Community Regular
elye
Posted
Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

I'm with Ursula...it's cheap, too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
I'm with Ursula...it's cheap, too!

Oh yeah, that! I forgot about the whole winter thing...

I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

dlp252 Apprentice
dlp252
Posted

I've tried taking a few different brands of EFAs (essential fatty acids) and fish oils and haven't tolerated any of them (also tried Flax seed oil and meal and hemp for some Omega 3s with no luck in the tolerance department)...I'm wondering if the cod liver would do any better for me? :unsure: Just thinking in cyberspace. :P

Ursa Major Collaborator
Ursa Major
Posted
I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

Carlson cod liver oil is lemon flavoured, and really doesn't taste bad. My husband claims it tastes great, I wouldn't go that far myself. But I am one of those people who will absolutely not take anything that tastes bad (I just can't make myself stick with something I hate). So, if I've taken it for two years now, you better believe it tastes okay!

Gentleheart Enthusiast
Gentleheart
Posted

Before I found out I was intensely intolerant of dairy, I enjoyed adding a tablespoon of Carlson's lemon cod liver oil to 8 oz. of plain yogurt, along with a packet of Stevia Plus (or some other acceptable sweetener). It tasted like a wonderful lemon pudding! Honestly. It may sound bad, but it's actually really good! I miss it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,866
    • Most Online (within 30 mins)
      7,748
    Jan Exum
    Newest Member
    Jan Exum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.