Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Glutened Myself!


jenngolightly

Recommended Posts

jenngolightly Contributor

My first big mistake.

I've been on the diet for over 2 weeks now, but haven't been very adventurous in the kitchen. I've never been much of a cook, but this diet is inspiring me to try new things. Plus, my family is getting sick of my dull dinners so I attempted Beef Stroganoff last night. Everyone was excited. Especially me - I felt very Rachael Ray. :)

I went shopping for 3 hours and at 3 different stores. I bought ingredients, a new colander, and sought out the best Tinkyada pasta. I didn't look at the bills, I just signed the slips - and hid them so my husband wouldn't see how much I spent. ;)

So I bustled around the kitchen and made dinner using my new Calphalon One pots and pans (a splurge since we aren't eating out 4x a week anymore). Things were going well until my pasta had only 3 minutes more to cook and I hadn't started the sauce. Oh well, the pasta package said it was hard to overcook, so I ignored the timer, but started to panic! :(

Everything done and I drained the pasta. It glopped out of the pot into my new strainer. It was a weird, ET-ish looking color. I spooned some up and I couldn't really tell one piece from another.

My meat and sauce looked beautiful, but the pasta was a disaster. More panic! Kids and hubby were sitting at the table and I was looking at a mess.

I threw away the pasta and pulled out the trusty egg noodles. I wouldn't be able to eat them, but my family would be happy. Problem solved.

So I boiled the water and cooked the pasta... and kept testing the pasta to check if it was done. I tested a piece of pasta just like I've always tested the pasta - I ate it. After the 4th time it dawned on me what I was doing. I was glutening myself! :o

I paid the price. I had the GI symptoms, but I also had a weird reaction to gluten where my right hip/bum falls asleep. It's really painful and radiates down my leg.

It took me 3 hours to shop for dinner, 1.5 hours to cook, I blew the gluten-free one, saved what I could, then I glutened myself. What a day.

Have you glutened yourself?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello & welcome

It sounds like you had a strange day to say the

least. I remember the first pasta I purchased!!! We are big pasta eaters at our house. I cooked it & when I put it on the plates it looked like a glob of some alien mass & tasted like paste ... I cried then we all laughed about how strange this stuff was..... If I would miss anything on this diet it would be a greasey Pizza HUt Pan Pizza & homemade pasta....

From that point on I was on the look-out for an excellent pasta..... Our choice is BiAglut ( it is an import made by Heinz). It is the very best. My second choice ( & easier to find) is Tinkyada, bionatural or rizsopia. The last one is spelled wrong.

At the beginning for us I glutened myself on a communion wafer & a envelope. The jury states now that envelopes do not contain glue but the ones I had were ancient as my Dad bought enough of everything to last a lifetime... And I don't care if I have to mail a bill in a yellowed envelope!!!!

There are four of us gluten-free so my first shopping trip was around $350.00 just for staples.. I drive over an hour to get to a store that has any gluten-free stuff so I stock up a few times a year & do a lot of mailorder.... Many people do not spend alot of cash but I figure if we have to eat this way I want the best available & enjoy it. With two young kids I have to keep their interest in food or they will just want junk on the time....

It does seem over-whelming at first but after a short period it becomes like brushing your teeth. ----- same routine , read labels, try new things, have baking & cooking disasters & keep truckin...

Things do get better & your health will improve so much you wont ever want to have gluten.

blessings

mamaw

Vykt0r Rookie

Yeah, I glutened myself too just a few hours ago. I feel like breaking something.

Matilda Enthusiast

....

mama2 Apprentice

In the second week of my diet I went and cooked my DD kraft mac'n'cheese... yes I went and tasted it... I ALWAYS checked before out of habbit. Thats when I decided it was easier to cook gluten-free for everyone.

Hope you feel better

JNBunnie1 Community Regular
In the second week of my diet I went and cooked my DD kraft mac'n'cheese... yes I went and tasted it... I ALWAYS checked before out of habbit. Thats when I decided it was easier to cook gluten-free for everyone.

Hope you feel better

I've glutened myself three times in the past four months, so I haven't even had the proper time to recover, but the last time was definitely me being stupid. I went and took a bite out of my boyfriend's ice cream cup instead of mine when we were visiting someone, completely not noticing that they were totally different colors and mine had no handle and his did and I'm just a dope...... Someday I'll learn, I get scared because I know I'm damaging myself, my glutenings last way longer than anyone else's I've read about, I'm so scared I'll trigger refractory sprue one of these days. I'll just have to be careful.

hathor Contributor

I have inadvertently glutened myself by not checking ingredients, and then doublechecking with ingredients like natural and artificial flavors. I guess I've been a little slow on internalizing the idea that this stuff can be ANYWHERE.

The stupidest thing I did was ordering a dish with soba noodles in a restaurant and not ask if they were 100% buckwheat. I meant to, but I was busy asking about dairy or soy ingredients in the sauce. Oops. The amount of gluten there must have been tremendous, at least judging from the wheat content in usual soba noodles I see at the store. The next two weeks were a blur. I guess I'm glad I get brain fog, because I have little recollection of what I went through.

It is hard when you have gluten items in your home. My husband found a sauce in the fridge and was about to put it in something he was cooking for us. I grabbed it just in time and found wheat and soybeans. Sigh. This is after I got sick from a vegetable dish with curried cashews he made -- delicious, but there was no list of ingredients on the curried cashews themselves. I got sick on that.

I hope you get feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyagain Explorer
Oh well, the pasta package said it was hard to overcook, so I ignored the timer, but started to panic! :(

Everything done and I drained the pasta. It glopped out of the pot into my new strainer. It was a weird, ET-ish looking color. I spooned some up and I couldn't really tell one piece from another.

I love Tinkyada pasta... but I don't know why they say it can stand up to overcooking! I did the same thing as you the first time I made it. I have found that I get a much better result using their alternate cooking method (usually printed on the front of the package). Basically, you boil it for 1 minute, cover and turn off the heat. You let it sit there for 20 minutes, then drain it.

Don't worry, we've all gone through the learning period in the kitchen. Just please tell me you didn't gluten your new pots and strainer with the egg noodles? :huh:

janjal Newbie

I glutened myself while putting away left over mac & cheese that I had made for my family. I scraped what was left on the spoon into the container, and then licked my finger without thinking. I felt so guilty, and stupid.

barbara123 Apprentice
I love Tinkyada pasta... but I don't know why they say it can stand up to overcooking! I did the same thing as you the first time I made it. I have found that I get a much better result using their alternate cooking method (usually printed on the front of the package). Basically, you boil it for 1 minute, cover and turn off the heat. You let it sit there for 20 minutes, then drain it.

Don't worry, we've all gone through the learning period in the kitchen. Just please tell me you didn't gluten your new pots and strainer with the egg noodles? :huh:

I have a question, I bought all new pots and pans good stainless steel paid a good price for them if they are scrubbed real well and have no scratches on them is it ok for my husband to cook noodles in them? I thought that was the reason to get rid of teflon. :blink:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.