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Going To Dermatologist

whitelacegal

By whitelacegal
in Dermatitis Herpetiformis

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whitelacegal Contributor
whitelacegal
Posted

Im going to the derm doc Monday cause i have DH and have had this since i was diganosed with Celiac last March and no one has been able to help me, I have sores in Mouth and get them on my back also, what can i expect when i go there and what do i need to tell him? thanks

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kvogt Rookie
kvogt
Posted

Beware of costs. If your doctor wants to send a biopsy to a lab, be sure to inquire about the cost. My doc sent my biopsy to the Utah and I got a bill for about $600.

Pegster Apprentice
Pegster
Posted

I have an HMO so costs weren't an issue. The dermatologist had me come in when I had actual blisters and he took biopsies of each of my elbows. I guess he took the samples from skin right around the lesions. I was using an ointment for the rash already but it didn't always work. When the DH biopsy came back positive he told me I had celiac disease and he could put me on Dapsone, but it has serious side effects. He told me the best cure was to be gluten-free and he wanted me to research the gluten-free diet on the internet. He set me up with a dietician and a GI dr also. I have learned that the rash comes and goes. There are times when I'm totally clear, and other times when I break out for several days and then it disappears again. I have been tempted to ask for the Dapsone, but I'm alread on thyroid medicine and I don't want to have my life revolve around medication for my various ailments! I rely on aveeno oatmeal baths (I know there's controversy about oatmeal- but it works!) and topical steroid ointments to calm down a flare up. Good luck at your appointment!

whitelacegal Contributor
whitelacegal
Posted
  • Author

I had to go to 2 different docs this week cause the first one didnt even take a biopsy of the sores on my back and i didnt feel like he knew enough about DH, the 2nd doc did the bopsy of my back and i am waiting on the results, he is also drawing blood checking my thyroid and other things, i just want to get dapsone or some med that will actually help this out, i cant live with this condition forever.

num1habsfan Rising Star
num1habsfan
Posted

try having the new doctor is town telling me that he knows very little about Celiac or DH. I know I have it..I have the clear fluid-ed pimple like things all over my chest and neck..I have it on my face and head...the mid to upper back is just little bumps..behind my knees it looks like I have mosquito bites..my elbow tips look like they are raw and cracked..I have the same bumps of my butt as I do on my back..

If that aint DH, I dont know what is ;)

~lisa~

  • 2 weeks later...
bratcat Apprentice
bratcat
Posted

I got a rash last October.I thought it was something caused from the chiggers i got earlier in the summer.Eight months later I was diagnosed celiac.That is when I learned what the rash was.I suffered 8 months.He gave me a prescription for lotrosone cream.It was a God send.It stopped the itching and helped heal.I won't be without it.Maybe it can help you too.

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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