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Waiting For Test Results


Kathy'sUnicorns

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Kathy'sUnicorns Apprentice

Hi all;

I had my blood test done Saturday and they still don't have the results back. This is my second day of being gluten free and I feel like a new person. On Monday I had left over japaneese steak house food (a last time out there if positive) for lunch. I was feeling so out of it. I felt drugged up, I couldn't concentrate on anything for an hour or so. Then that night for dinner I had fish that was breaded and started having the most excrusiating pain I've ever had and decided to go gluten free the next day. Even if my test results are negative I have had major improvement in just two days.

A little about myself. I have lupus (another autoimmune disease) so I'm sure I probably have Celiac Sprue. I've had problems with having bloating and pain in my stomach off and on for about 8 years. When I think back now I believe the times I didn't have pain I was on high doeses of prednisone.

Since about Spring I've started dropping things, having to look at words twice because I would read them wrong, when I spoke I would want to say one word but another one would come out (that made no sence <_< ) amoung other things. I read a post here the other day (not sure if it was this forum or not) that someone was saying things they had happening to them before being diagnosed and it was me to a T! I was so excited to finally find out I may not be as crazy as I thought I was.

Hope to get to know you all very well and will definately come to you for help and my time of uncertanty.


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Guest keegans_mommy

I use to do that with words too! I would try and say one thing but another would come out, I would stutter and look stupid constantly! I hated public functions because of this nonesense!

I am happy you are starting to feel better! It will continue to feel better the longer you go without gluten. :)

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
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    • JoJo0611
      Thank you this really helped. 
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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