Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

8 Yr Old With Celiac


c5land

Recommended Posts

c5land Newbie

My 8 yr old dd was diagnosed with celiac about 5 months ago. She has seemed to be handling the diet quite well. Yesterday she came home from school crying, saying that she doesn't want to eat her lunch at school anymore. She said it is too hard to watch everyone eat stuff that she can't have. Today I was at home so I brought her home for lunch, but on days I'm working this won't be an option.Any sugestions on how to help her deal with this, as she will have to be around people eatting gluten her whole life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

My son went through this when he was 11. It is frustrating for them, especially during the first year. I would suggest that on days you can't bring her home you make the absolutely BEST lunch for her. Make some kind of sandwich or leftovers (like cold pizza) that the other kids will look at and say, "I want what she's having", really yummy treats like giant chocolate chip cookies, get whatever kind of chips she likes that she can still have, juice in a cool looking bottle or container, some ". I made tons of treats and gave my kids more sugar than I wanted to at first so they wouldn't feel deprived.

Nikki'smom Apprentice

Sorry your DD is having a hard time. My DD whi will be 8 in 2 weeks was diagnosed in the beginning of September.

So far she has been great about the lunches but I still feel bad. What we do is I always ask her what she wants for lunch and if possible I make that. thankfully her friends ahve been great about helping her be ok with home lunches.

There has been a few times with eating out wher eI felt really bad and gave her the choice to eat out and chance it or have mommy make something at home and most of the time she has been asking me to make something.

missy'smom Collaborator

Get a little artistic. There are alot of creative ideas out there on various websites about Obentos(Japanese style lunches). Cut heart shaped sandwiches, flower carrots, octopus hotdogs etc. If you're a busy working mom, there are ways to prep ahead and have a stock on hand so that it doesn't take much time to put it together in the am. Check out Lunchinabox.net and the links posted there.

EBsMom Apprentice

Check out this thread....maybe it will give you some inspiration!

Open Original Shared Link

Rho

Darn210 Enthusiast

Ask your daughter what she is missing the most . . . she saw her friends and classmates eating something that she would have liked to have had. One particular lunch at school was particularly troublesome for my daughter so I would make the gluten-free equivalent for it that night for supper. She was very happy with that compromise. She didn't need to have it at the same time as her friends, she just needed to know that she could have it, too.

gfgypsyqueen Enthusiast

It seems the beginning of the school year is the worst time for my kid too. She has a nut allergy so she is the odd ball at school lunch too. She can't have the school lunch so that hurts her feelings too. She also came home one day not in tears but pretty close. Turns out some kids were teasing her becasue she couldn't have PB&J and couldn't believe she had never had a PB&J...blah blah blah. It's hard to be a kid and its harder to be different than everyone else. But I can't stand the pity party for very long. We have the talk about waiting until the allergist says it is time to challenge a nut and the consequences if she tries one on her own. She knows this is a life long allergy and it will only be by th egrace of god that she out grows it. We talk about our friends who have more food allergies and have less food options. Try to put it in perspective.

After all that we decided that she needed "Cool" lunches from home. So now she gets cold pizza and cold chicken nuggets. Hot dogs. pasta. Very few boring sandwiches. Cheese and cracker work some days. Apples are always a favorite but she wont dip in carmel sauce?? Cool drinks and snacks make a big difference to her. So cupcakes with TONS of frosting are in the lunch box periodically. She has more say in her lunch box contents and she helps in the kitchen even more. She LOVES to make gluten-free Chicken nuggets with me. Mainly becasue they go to school with her the next day!

The bonus is little sister who has Celiacs and dairy and shellfish allergies gets cooler lunches now too! She's little so she doesn't tell me if she doesn't like much. If food comes home, either I gave her too much for lunch, or she didn't like it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast
Check out this thread....maybe it will give you some inspiration!

Open Original Shared Link

Rho

Amen. Bento is the BEST!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,196
    • Most Online (within 30 mins)
      7,748

    Marrianne Kraatz
    Newest Member
    Marrianne Kraatz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...