Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

8 Yr Old With Celiac

c5land

Recommended Posts

c5land Newbie
c5land
Posted

My 8 yr old dd was diagnosed with celiac about 5 months ago. She has seemed to be handling the diet quite well. Yesterday she came home from school crying, saying that she doesn't want to eat her lunch at school anymore. She said it is too hard to watch everyone eat stuff that she can't have. Today I was at home so I brought her home for lunch, but on days I'm working this won't be an option.Any sugestions on how to help her deal with this, as she will have to be around people eatting gluten her whole life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

My son went through this when he was 11. It is frustrating for them, especially during the first year. I would suggest that on days you can't bring her home you make the absolutely BEST lunch for her. Make some kind of sandwich or leftovers (like cold pizza) that the other kids will look at and say, "I want what she's having", really yummy treats like giant chocolate chip cookies, get whatever kind of chips she likes that she can still have, juice in a cool looking bottle or container, some ". I made tons of treats and gave my kids more sugar than I wanted to at first so they wouldn't feel deprived.

Nikki'smom Apprentice
Nikki'smom
Posted

Sorry your DD is having a hard time. My DD whi will be 8 in 2 weeks was diagnosed in the beginning of September.

So far she has been great about the lunches but I still feel bad. What we do is I always ask her what she wants for lunch and if possible I make that. thankfully her friends ahve been great about helping her be ok with home lunches.

There has been a few times with eating out wher eI felt really bad and gave her the choice to eat out and chance it or have mommy make something at home and most of the time she has been asking me to make something.

missy'smom Collaborator
missy'smom
Posted

Get a little artistic. There are alot of creative ideas out there on various websites about Obentos(Japanese style lunches). Cut heart shaped sandwiches, flower carrots, octopus hotdogs etc. If you're a busy working mom, there are ways to prep ahead and have a stock on hand so that it doesn't take much time to put it together in the am. Check out Lunchinabox.net and the links posted there.

EBsMom Apprentice
EBsMom
Posted

Check out this thread....maybe it will give you some inspiration!

Open Original Shared Link

Rho

Darn210 Enthusiast
Darn210
Posted

Ask your daughter what she is missing the most . . . she saw her friends and classmates eating something that she would have liked to have had. One particular lunch at school was particularly troublesome for my daughter so I would make the gluten-free equivalent for it that night for supper. She was very happy with that compromise. She didn't need to have it at the same time as her friends, she just needed to know that she could have it, too.

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

It seems the beginning of the school year is the worst time for my kid too. She has a nut allergy so she is the odd ball at school lunch too. She can't have the school lunch so that hurts her feelings too. She also came home one day not in tears but pretty close. Turns out some kids were teasing her becasue she couldn't have PB&J and couldn't believe she had never had a PB&J...blah blah blah. It's hard to be a kid and its harder to be different than everyone else. But I can't stand the pity party for very long. We have the talk about waiting until the allergist says it is time to challenge a nut and the consequences if she tries one on her own. She knows this is a life long allergy and it will only be by th egrace of god that she out grows it. We talk about our friends who have more food allergies and have less food options. Try to put it in perspective.

After all that we decided that she needed "Cool" lunches from home. So now she gets cold pizza and cold chicken nuggets. Hot dogs. pasta. Very few boring sandwiches. Cheese and cracker work some days. Apples are always a favorite but she wont dip in carmel sauce?? Cool drinks and snacks make a big difference to her. So cupcakes with TONS of frosting are in the lunch box periodically. She has more say in her lunch box contents and she helps in the kitchen even more. She LOVES to make gluten-free Chicken nuggets with me. Mainly becasue they go to school with her the next day!

The bonus is little sister who has Celiacs and dairy and shellfish allergies gets cooler lunches now too! She's little so she doesn't tell me if she doesn't like much. If food comes home, either I gave her too much for lunch, or she didn't like it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


buffettbride Enthusiast
buffettbride
Posted
Check out this thread....maybe it will give you some inspiration!

Open Original Shared Link

Rho

Amen. Bento is the BEST!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    4. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    5. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.